I am 24 years old and for some reason i am really worried that
huntingtons could be in my family and that i am starting to develop
the disease.

My mum and dad are both 44 years old, my mum's mum is 63 years old, my
mum's dad is 67 years old, my dad's mum is 68 years old and my dad's
dad died aged 70 from cancer.

If huntingtons was in my family wouldnt have someone in my family
already have been diagnosed with it?

I am worrying because over the last few weeks my memory does not seem
as good as usual, my thinking and spelling is not as good as well.

But i have not been getting any abnormal movements or personality
changes or anything like that.

I was wondering if someone my age did develop huntingtons i would
imagine it would progress faster than usual? and i would die within
5-10 years max?

What are the chances of a genetic mutation? i read on the english nhs
direct health website that in 3% of hd cases there is no family
history of the disease.

I know that there are 65 million people here in england and only
4,800-6,500 people have hd was seems very little i know but i am
really worried.

Obviously i would not be able to have the genetic test as there is no
history of it in my family, but i have heard of cases where it has
struck out of the blue where people were not aware that it ran in
their family.

The only person in my family that has died young is my mums sister who
died aged 32 from cancer.

I would really appreciate some advice on this matter.

Thank you for taking the time to read this and i hope to get some
replies soon,

Thank you again.

This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis,
Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie,
Pavarotti, Giorgio Armani, Donors, Peace, History, Campaigns and about you if
you care about these words.

Hi there,

I am SAM, an Iraqi refugee living in Lebanon at the moment; I have spent the
last 10 years of my life as a refugee registered with the UNHCR in Beirut. The
last 4 years, I have spent as an activist for peace and human rights (especially
refugees and asylum seekers) on the Internet; I'm also books author and ebooks
publisher. I have launched many campaigns to improve our situation as refugees
in Lebanon and hopefully bring more understanding to our problems worldwide. I
helped make many changes and improvements at the UNHCR office in Beirut; I used
the Internet as the field for my activities (you can read more about that in my
free ebook 'MY CAMPAIGNS'). All my ebooks are free and could be download from my
sites.

This is my newest campaign, it's about the illegal and humiliating actions of
the UNHCR, who using photos of refugees as banners and human-buttons to collect
money. This is an abuse of the dignity and humanity of the refugees and must
stop immediately and a clear public apology present by The United Nations High
Commissioner for Refugees. My friends, I am talking about the pictures you can
see here:
http://www.cybcity.com/read

Where you can read the rest of this message as web page.

Also you can read my new campaign 'Urgent, we need smile' here:
http://truth4all.atspace.com/smile.html


For more info about UNHCR and life of refugees you can read my free ebooks. I
invite you as fellow humans and members of the world community to support my
campaign by reading my article on my site and see the human-buttons. The
campaign is to support and improve the UNHCR http://www.unhcr.ch especially
after the last scandals in the UN and UNHCR, just for example:

The refugees allege that UNHCR staff is selling most of the food items they are
supposed to be supplied.
"They aren't supplying sufficient food to us because they sell most of the food
items," they allege: http://allafrica.com/stories/200503140214.html
  Here is another example: Burmese Refugees Withdraw Protest Against UNHCR 
http://www.mizzima.com/archives/news-in-2005/news-in-april/12-April05-22.htm

"We make demonstration and fast because the UNHCR office in Cairo did nothing
for our problem..." http://news.bbc.co.uk/2/hi/africa/4440730.stm

Together we will build better world.

You could reach me fast via this form:
http://unhcrlebanon.250free.com/email_me.htm
  and if you like to know more about me, you can google for my name 'osam
altaee'.

Thanks
THE TRUTH WARRIOR
http://unhcr.fbhosting.com

This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis,
Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie,
Pavarotti, Giorgio Armani, Donors, Peace, History, Campaigns and about you if
you care about these words.

Hi there,

I am SAM, an Iraqi refugee living in Lebanon at the moment; I have spent the
last 10 years of my life as a refugee registered with the UNHCR in Beirut. The
last 4 years, I have spent as an activist for peace and human rights (especially
refugees and asylum seekers) on the Internet; I'm also books author and ebooks
publisher. I have launched many campaigns to improve our situation as refugees
in Lebanon and hopefully bring more understanding to our problems worldwide. I
helped make many changes and improvements at the UNHCR office in Beirut; I used
the Internet as the field for my activities (you can read more about that in my
free ebook 'MY CAMPAIGNS'). All my ebooks are free and could be download from my
sites.

This is my newest campaign, it's about the illegal and humiliating actions of
the UNHCR, who using photos of refugees as banners and human-buttons to collect
money. This is an abuse of the dignity and humanity of the refugees and must
stop immediately and a clear public apology present by The United Nations High
Commissioner for Refugees. My friends, I am talking about the pictures you can
see here: http://read.bizhat.com
  Where you can read the rest of this message as web page.

Also you can read my new campaign 'Urgent, we need smile' here:
http://www.angelfire.com/un2/unhcrlebanon/smile.html


For more info about UNHCR and life of refugees you can read my free ebooks. I
invite you as fellow humans and members of the world community to support my
campaign by reading my article on my site and see the human-buttons. The
campaign is to support and improve the UNHCR http://www.unhcr.ch especially
after the last scandals in the UN and UNHCR, just for example: The refugees
allege that UNHCR staff is selling most of the food items they are supposed to
be supplied.
"They aren't supplying sufficient food to us because they sell most of the food
items," they allege: http://allafrica.com/stories/200503140214.html

  Here is another example: Burmese Refugees Withdraw Protest Against UNHCR 
http://www.mizzima.com/archives/news-in-2005/news-in-april/12-April05-22.htm

"We make demonstration and fast because the UNHCR office in Cairo did nothing
for our problem..." http://news.bbc.co.uk/2/hi/africa/4440730.stm

Together we will build better world.

You could reach me fast via this form:
http://unhcrlebanon.topcities.com/email_me.htm
  and if you like to know more about me, you can google for my name 'osam
altaee'.

Thanks
THE TRUTH WARRIOR
http://www.oddworldz.com/human

Hello all, my name is Beth Magallon maiden name Marino. I am 28 yeas
old looking for extended family. My immediate family are located in
Brookfield, ILL. My father's generation grew up on the South side of
Chicago in many different locations. He is Mike Marino one of 6. His
mother name was Geraldine & father Carmin Anthony Marino. Gerry &
Carmin divorced long ago, then Carmin died. He drowned in the Cal Sag
River about 1967ish. I am looking for Carmin's side of the family. If
Carmin was still alive he or his brothers or sisters would be in there
70s (if HD neg.), there children in there 50s, & grandchildren (me) in
there 20s. Nobody alive in my family can tell me anything, but I
believe that there is some family out there & I would really like to
find them. Thank you!
If anyone can help please e-mail me back here at Yahoo or my personal e-
mail,
EMBaldy78@...
Please use the subject line Marino.
THANK YOU!!!

Damn, it has sure been a while... I just realized today that it's been 18 months
since I      went out with a special lady last, but I'm pretty happy to be
heading out tonight. I've had a bit of trouble finding ANY decent women lately
so I joined up at this place a couple of weeks ago
http://www.followmeherenow.info/fydr . And so far been doing pretty well, just
chatting to a few girls near me on Webcam and via the mail system on the place,
but this is the first one I've lined up. So anyway, wish me luck guys!!

Yeah I know, I never really thought this stuff would work either, but honestly I
stand totally corrected. This place
http://www.millionsofonlineprofiles.info/ipne is actually very awesome. I hooked
mycam up and within no time  at all I was talking to a few great ladies over it.
Anyway, I recommend it to everyone here!

Well even if    you're not    looking for love, and just a bit of fun thought
I'd give you all this tip. So you can stay away from all the BS fake profiles
places. This is what I've been using http://www.followmeherenow.info/mlbc . No
joke, I've messaged about 5 women close to me and already 3 have responded, and
I am already organising to meet up with one. Not bad     for a guy who hasn't
had a date in a while, lol! :)

Met my fiance here! hehe. Thought I should share it with any other guys who are
worried about ending up alone like   I   was. Check it out
http://www.easytojoinandchat.info/kjnc

Well I just got engaged! I can't believe it, just last year I was beginning to
think i would never meet anyone. I'm 25 already and I thought it was all over.
After some recommendations from a buddy I   joined up here:
http://www.meetemhookup.info/iyfg and after 2 weeks I was already meeting up
with a beauty. Well, 14 months later and where still together and planning our
marriage for later this year =)

just a reminder that huntingtons radio will be launched on the 28th of
this month. we have really been encouraged with an average of 80
listeners per day and we are not even launched yet and only playing
music. with the e-mails i have received over the last few weeks from
huntingtons associations and from people around the globe im sure our
first day will be a good one we are sure of over 800 listeners. it has
also been advertised in many mags and on radio. if you would like us to
give your group or another group a mention on our opening day or would
like us to just say hi to someone or even to read out somthing please
let us know. have a look at our updated site.
www.huntingtonsradio.moonfruit.com   hope to hear you on the 28th.you
will be able to phone in as well on the launch day. and we have lots to
give away.

im 38 and my father has hd we get it pretty late in life so i guess im
lucky but it doesnt help ive a daughter who is nearly 15 and i havent
told her about this disease yet x

G'day everyone....I have an aboriginal girl....my daughter...only
daughter.....10....dying from this horrrible disease....i need to talk to
someone who has lost or has lost a baby.....i mean child to this....i was
recommmend by southeren area health in new south wales
australia
thankyou
god bless



---------------------------------
  Yahoo! FareChase - Search multiple travel sites in one click.

[Non-text portions of this message have been removed]

come listen to the interview with dr roger barker.an expert on brain
repair and h.d
http://www.live365.com/stations/bigbrother55

check out huntingtons radio the only radio station dedicated to hd. you
can have a message or a song played just for you. live chat,phone
inns,games and lots more so tune into huntingtons radio
http://www.live365.com/stations/bigbrother55   enjoy

Hi Kara,Welcome to the club. I have a brother in Reno,
Neveda. We are from California and live in Missouri
now. My husband has HD, early stage, and his mom and
aunt are in the late stages.We have three at-risk
kids. I understand why you might not want tested. As a
parent of at risk kids I can understand why you worry
about guilt. My husband worries so much about that.
However, I will share with you that finding out about
my husband has given us so much hope and knowledge of
what we are up against. We were clueless as to why
certain things were happening, but now we know and
knowledge is power. However, it is your choice no one
elses. Feel free to vent and cry or smile and laugh
with your new friends-people living in the same boat.
Welcome!!!
Ginnie

--- Kara <leostar_2003@...> wrote:

> I'm new to this, but I figured it was probably time
> for me to be
> around someone that knows what I am going through.
> My name is
> Kara.  I just turned 20 and I live in Reno, Nevada.
> My Grandma is
> in the final stages of HD, and my Mother is in the
> beginning
> stages.  Late Onset HD runs in our family so we
> don't start showing
> symptoms until our mid-50's.  Upon her diagnosis my
> mother started
> to drink and smoke heavily, and blames herself for
> every little
> emotional crisis I might have even if it has nothing
> to do with any
> of the HD stuff.  I am scared to get tested because
> I am afraid that
> my Mom will blame herself even more.  I am also the
> only person I
> know with the prospect of HD.  None of my friends
> even really know
> what it is, and when it comes up in any Biology or
> Psych class and I
> tell my teacher that my Mom has it, I am looked at
> like either a
> science experiment or they start questioning
> me..nonstop.  So I
> don't even offer up that information anymore.
> Basically, I can't
> talk to anyone.  I hope to make some friends here
> and I am glad that
> there are places that we can go to talk.
>
> Thank you,
> Kara
>
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

I'm new to this, but I figured it was probably time for me to be
around someone that knows what I am going through.  My name is
Kara.  I just turned 20 and I live in Reno, Nevada.  My Grandma is
in the final stages of HD, and my Mother is in the beginning
stages.  Late Onset HD runs in our family so we don't start showing
symptoms until our mid-50's.  Upon her diagnosis my mother started
to drink and smoke heavily, and blames herself for every little
emotional crisis I might have even if it has nothing to do with any
of the HD stuff.  I am scared to get tested because I am afraid that
my Mom will blame herself even more.  I am also the only person I
know with the prospect of HD.  None of my friends even really know
what it is, and when it comes up in any Biology or Psych class and I
tell my teacher that my Mom has it, I am looked at like either a
science experiment or they start questioning me..nonstop.  So I
don't even offer up that information anymore.  Basically, I can't
talk to anyone.  I hope to make some friends here and I am glad that
there are places that we can go to talk.

Thank you,
Kara

Hi I hope everyone is ok? My dad has had HD since I was 8 years old so
it has been a tough 15 years but recently it has come a lot more to
home as my partner has proposed and wants to marry but I keep asking
myself if I can put him through what might happen.....and could I give
him children not knowing if I am passing on HD again? (I have not had
the tests). My mum and dad divorced when I was about 6 years old (not
due to HD) and now my mum's house is being knocked down and as my
dad's name is on the deeds also and he is unable to sign his own
signature she could lose half of her house to the government....surely
this isn't right? Anyway, I thought I would contact people who have
been through the same thing and see if I can get any advice??

Thank you for reading,

Becca

Note: forwarded message attached.




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs


[Non-text portions of this message have been removed]

Note: forwarded message attached.


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

[Non-text portions of this message have been removed]

_tara@..._ (mailto:tara@...) --- Thank you  so much! God
bless and take care!

Lori -Remember to live everyday to the fullest as if it's your  last because
you are not promised tomorrow!



[Non-text portions of this message have been removed]

Congrats on the results!!!
Most wonderful news~!!!

-----Original Message-----
From: onebighuntingtonsfamily@yahoogroups.com
[mailto:onebighuntingtonsfamily@yahoogroups.com] On Behalf Of mom71180
Sent: Tuesday, August 23, 2005 5:31 PM
To: onebighuntingtonsfamily@yahoogroups.com
Subject: [One Big Huntingtons Family] Test Results

I am writing to let you all know that I went to the Dr, today and got
my results.They were negative! I don't have it nor will I develop it
later in life.Thank you all for your thoughts and prayers as they were
heard and they were appreciated.God bless you all and take care!






Yahoo! Groups Links

Note: forwarded message attached.


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

[Non-text portions of this message have been removed]

I am writing to let you all know that I went to the Dr, today and got
my results.They were negative! I don't have it nor will I develop it
later in life.Thank you all for your thoughts and prayers as they were
heard and they were appreciated.God bless you all and take care!

Well today is my birthday,I am 25 now and I still have no test
results.I was looking foward to having something to celebrate,perhaps
a negative result.I am still getting a sitter tomorrow night though
and me and the hubby are going out.Hope everyone is doing good! God
bless!

Hello!
Get a quick glance of Healthcare News and Resources here
http://www.allinonedirectory.info/HealthUpdate/
Take care,
Kate



__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

[Non-text portions of this message have been removed]

For those interested:

http://www.ninds.nih.gov/apps/disorders/brochure_order_form.asp?
PageTitle=Huntington's%20Disease

for those of you who have lost a loved one:


_Eternal  Life Skills - Heaven Questions_
(http://www.eternallifeskills.com/heaven_questions.htm)


Lori -Remember to live everyday to the fullest as if it's your  last because
you are not promised tomorrow!


[Non-text portions of this message have been removed]

Hello!
Look at this healthcare information directory.
URL : http://www.hi-fiweb.com/users/anusha/
Cheers!
Amitha

Jennifer,

Hi! Thanks for writing me.I am sorry to hear that your Husband  is showing
signs of Huntington's especially at such a young age.But you are  right,God will
see us through it all.I know what it's like to worry about your  kids
too.They want to know everything and how do you tell them? Mine knew Great 
Grandma
was sick and my older son knows that I went Friday to have blood  drawn.He
asked me I f I had it did they need to stay away from me? Kids are  so funny
sometimes.I hope that I don't have it so I don't have to  worry about them and
that
my mom won't necessarily have it either. Please  feel free to write me as
often as you'd like.It's great to have friends that  know what you are going
through.God bless you and take care.

Lori

  (http://www.tickercentral.com/)

  (http://www.tickercentral.com/)

  (http://www.tickercentral.com/)









[Non-text portions of this message have been removed]

Hello Lori,
My name is Jennifer and I am so sorry that you are going through this.  My
husband is also showing signs of huntington's. We have not had testing done yet
so I don't know how long it takes. We have ond little boy and I worry all the
time about him.  My husband and I are 29 so he is showing signs early.  his
father passed away 4 years ago of huntington's.  We plan to have my husband
tested soon.  I know that nothing I can say will make this better but we find
comfort in God.  I don't know what you believe and I don't want to preach to you
but it makes us feel better knowing that we are not walking this road alone and
that when we feel that we can no longer walk under the weight of this burden
that God will carry us through.  I cannot imagine what you are going through but
I understand what your husband may be feeling. He proably doesn't want to face
the possibility of losing you to this disease but he dose need to talk to you
about it. There are alot of great support groups for people with hunnington's
and their family.  I know that I had a hard time talking to my husband about
hunnington's but he came to me and said that he really needed me to talk to me
and I had to get over what i was feeling because no matter how i felt it could
never be as bad as what he was feeling.  I am very scared for our future and I
know that you are too.  Please feel free to email me back if you want to talk
again I will do whatever I can. I will be praying for you.
Jennifer