i was adopted along with my two sisters we had been reintoduced to our bio mom, and both of our uncels one who has it and one who doesn't our mom has it as...
I'm so sorry to hear that you are at risk. I am also at risk as my Mother is in the beginning stages (age 65) and so is her sister. Death is always a...
Hi I would like someone to tell me all about HD and how it goes around and everything and whether you can get it with no family history. I am 22 years old, my...
hi i had to reply to you because i know what you are feeling. i was with a man we had 2 sons and i was heavily pregnant with the 3rd when we found out that he...
hi karl i can only tell you what i know. i started seeing a man, we had 2 sons together and i was heavily pregnant on our third son when my partner was...
Hi Tracy Thanks for your mail, really sad to hear your story and it does not make any sense either. I thought you could you get HD with no family history,...
Karl, i really dont think your problem is HD. As far as i know if there is no family history you can not get it. As far as Traceys ex husband maybe his Father...
terri, i am trying to understand. Was it your Mom that passed or your Uncle? Were you close to either of them? When did you meet them? Are you trying to cope...
Hi Colleen Thanks for your email, i am 22 years old and i am currently being treated for depression, i have been suffering from it for about 6 months now and i...
This is my family history:- MUM'S DAD IS 65, MUM'S MUM IS 62, DAD'S MUM IS 68 AND DAD'S DAD DIED AGED 70 OF CANCER. None of these people have HD or not as far...
lol-exactly Karl why are you worring? Maybe you are just a worry wart. I know i am and i am currently on Zoloft and it has helped with my anxiety. For me it...
Thanks for your email Colleen, the symptoms i have are just mainly forgetfulness which doesn scare me, i feel tired all the time and i am lazy and dont want to...
You are right Colleen i am abit of a worry wart i have always been like that, i don't know why i think i may be at risk from having HD seeming as there is no...
Hi Tracy Could i ask you afew questions please? you don't have to answer them as i know you are going through a tough time right now with your ex partner...
hi Karl to be honest with you i havnt got a clue. My ex husband has a very large family and i am pretty sure that he isnt just a one off, i know that in one...
Hi Tracy Thank you for your email, i understand its hard and i can understand why you dont know much about it but you have totally lost me when you say i know...
hi karl i had a genetic nurse come to my house, i have known her for a long time as she had once nursed my husband, i asked her to explain to me all the facts,...
Hi Tracy Thank you for your email, i am 22 years old, I understand what you are saying it's the CAG repeat but for him to have a repeat that high someone in...
hi Karl, thats what i meant the CAG repeat. They have told us that the reason they think the CAG is so high was that Robs parents were in their forties when...
Hi Tracy Thanks for your reply, didnt think that having ababy in your forties could make the child have ahigh CAG count but you learn something new every day,...
hello lorraine thank you for emailing me. all i can say is you are a braver woman than i am. I had to leave rob when my boys were 3, 5 and 7. He had started...
My name is Winn, and my wife, Harriet has HD. We run support groups at a local senior center for people with chronic illnesses. Lately, her condition has...
Dear Winn, I agree that we serve a strong and awsome God who can carry us thru any difficult trial or illness. It's hard to see someone we loved and known for...
hi April i have just read youre letter and i wish i had been like you are now. I have 3 sons at risk my eldest is 16 and being tested after xmas. There dad has...
Tracy, I'm so sorry to hear of the pain that you went through with your late husband. My condolences to your family. Tracy, in your situation, you would have...
when i moved closer to home i ended up going to the rockland support group i didn't like it cuz it wasn't really support it was more of a info group so we went...
Jesus is the only way one can persevere through such a difficult disease. My mother in law has HD and each day she gets worse. HD does not have to be the...
There is no easy answer. Your faith in God is what will keep you going. through our sufferings he recives glory if we keep our eyes on him. We must choose to...
Tracey, You should feel no guilt at all. As spouses of people who suffer from chronic illnesses, we are expected by God and by society to stand by and support...
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