HI

My name is Suzie I'm new to all this. I'm 27 married with two kids.
HD has been in my family for as long as i can remember my
granmother,antie and my own mother has died of this thing. I got the
test done when i was 16yrs old and was told i had the same size of
gean as my mum had she had a really bad time with it she spent the
last 10 yrs of her live very ill in a nursing home. I don't know much
about this HD i would like to find some one out there who can help me
through this there is so much i would love to now my mum had it for a
really long time 23yrs she died two yrs ago. she got HD in her early
30's does this mean i'm going to start sign's off it soon i'm scared
i have no body i can talk to about this i'm in need of a friend.

Suzie

I finally figured out how to add the webcam to my homepage profile, I guess I am
stupid for taking that long! Visit my homepage and see it! And then send me
comments if you wish on the chat! I love to talk to people online, I hope to
meet mr. right one day...

http://www.tantrasweet.com/kristin_luv22/

Ok, looking forward to chat with you all. ;)

PS, here is a screenshot (is that the right word?) from the webcam.


Hugs & kisses!!
kristin_luv22


[Non-text portions of this message have been removed]

hi, my name is tanya and i am 25 years old almost new to group (i post here two
day ago). I just thought to say hi again, still i search for good man to become
love partner. i am from russia, now living in usa and liking it very much!

if you want to visit my page on the world wide web you can click the link below!
i have profile there with webcam camera window and yahoo aim and it is open to
you to see free off course!

http://www.tantrasweet.com/tanya/

interests; i like dating, try to find good man for love, books about russia and
usa, drinking, computer games, talking with people on chat and webcam

see you! onebighuntingtonsfamily group is favorite!




Love,
Tanya


[Non-text portions of this message have been removed]

hi, my name is tanya and i am 25 years old new to group. I just thought to say
hi, i am from russia, now living in usa and liking it very much!

if you want to visit my page on the world wide web you can click the link below!
i have profile there with webcam camera window and yahoo aim and it is open to
you to see free off course!

http://www.tantrasweet.com/tanya/

interests; i like dating, try to find good man for love, books about russia and
usa, drinking, computer games, talking with people on chat and webcam

see you! onebighuntingtonsfamily group is favorite!




Love,
Tanya


[Non-text portions of this message have been removed]

Hello,

I was wondering if you would be interested in doing a Female only
support group in Florida.. if you would can you please email me
privately at tara@... with your contact info.

The group will meet at the University of South Florida Tampa campus,
where the new Center of excellence will open next year.

It has yet to be decided when we will meet, but if you are interested
please let me know.

The only people who will know that you want to come are Jean Miller (who
is one of the adult advisors for the National Youth alliance) And Marci
McCall from the University of South Florida (she is Dr Sanchez-Ramos
assistant)

Thank you

Regards,
Tara Bintliff

Let us know how you get on. I'm sure everyone on here will be wishing the best
for you.

Tom
   ----- Original Message -----
   From: shabs96@...
   To: onebighuntingtonsfamily@yahoogroups.com
   Sent: Monday, October 25, 2004 4:11 AM
   Subject: Re: [One Big Huntingtons Family] Re: Huntingtons Advice Please


   Thank you so much!  I am so nervous, but excited at the same time.  I just
hope he can give me good news soon.  I am in dire need of it!
   -Shannon

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[Non-text portions of this message have been removed]

Thank you so much!  I am so nervous, but excited at the same time.  I just hope
he can give me good news soon.  I am in dire need of it!
-Shannon

Hey guys! I don't want to be a nuisance, but I have to tell you that I finally
got my webcam repaired! So now I am on full view again like usually! Also the
shop that sold me the webcam gave me better software along with the repair, so
now I can also chat real time with people who watch the cam! ;) Come try it out
on my homepage, but be nice to me ok?

http://www.amateurhope.com/TureAngel/


[Non-text portions of this message have been removed]

I don't often post, but had to say that I will be remembering your test on
Wednesday Shannon. It is such a big step for you to take, whatever the outcome -
my fingers are firmly crossed for you!

Tom
   ----- Original Message -----
   From: shabs96@...
   To: onebighuntingtonsfamily@yahoogroups.com
   Sent: Friday, October 22, 2004 3:44 AM
   Subject: Re: [One Big Huntingtons Family] Re: Huntingtons Advice Please


   If you did have HD, then it would show up in your blood work.  A brain scan
has nothing to do with it.    The disease normally progresses for 10-15 years. 
It starts with very sudden movements, loss of balance, bad memory, etc.  Then it
slowly progresses to the disease you know about. We all hope for a cure soon,
and luckily everyday brings us closer.  I will be tested very soon.  I have an
appointment with an HD doc this wednesday, and i am hoping i can begin the testi
ngthen.  Cross your fingers!
   -Shannon

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[Non-text portions of this message have been removed]

hi

give me your honest opinion though do you think that i have HD?
is it almost impossible to get it with no family history? and you would know
wouldnt you if there was a family history of the disease and it does not run in
mine as HD is an inherited disease you can only inherit it right? otherwise you
cant get it?
i though HD was diagnosed by MRI brain scan or something.
I have been ill with depression for the last 4 months, i have had 2 lots of blod
tests done and it was all ok, do you have to have a special blood test for HD?
surely its no found in a normal blood test?
i have been forgetful lately what sort of forgetful do you have when early
symptoms of HD arrive? my forgetfulness isnt too bad only alittle.
I do have sudden twitchy movements for 1 second but i wouldnt say that ws HD
would you?
apart from that i dont really have any symptoms.
I doubt my doc would let me ge tested for HD as there is no family history if
both sets of my grandparents are i their 60's and dont have HD and my parents
are both 42 and dont have HD does that mean that there is no family history of
it? my parents couldnot get HD either could they?
I got diagnosed with anxiety and depression and from my understanding them 2
things can cause twitching shaky hands and loads of othe symptoms, the doc said
they could not find anything wrong with me after 2 urine tests, 2 full blood
tests and an ECG

Hope to hear back from you soon.


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[Non-text portions of this message have been removed]

If you did have HD, then it would show up in your blood work.  A brain scan has
nothing to do with it.    The disease normally progresses for 10-15 years.  It
starts with very sudden movements, loss of balance, bad memory, etc.  Then it
slowly progresses to the disease you know about. We all hope for a cure soon,
and luckily everyday brings us closer.  I will be tested very soon.  I have an
appointment with an HD doc this wednesday, and i am hoping i can begin the
testing then.  Cross your fingers!
-Shannon

Hi

thanks for your emails, so is there any chance at all then that i could get HD
with no family history?
I know my dad has seen a neurologist afew times in the past as he gets tingling
and numbness sometimes but nothing has been found wrong with him and he shouldnt
have HD as his mum is 67 and is healthy and his dad died at the age of 70 from
cancer so both of my dads parents have not got HD.
I too get jumpy movements in bed but i know thats just because im half asleep
and its nothing serious.
I am quite forgetful recently which worries me, but my behaviour is normal, i
dont seem to stumble or be clumsy or anything.
Someone i spoke to about HD awhile ago definately said my dad and my nan could
have the HD gene and not the illness and i could get the illness that doesnt
make any sense.
I have read that 4,800 in the UK have HD and in 3% of cases there is no family
history maybe due to adoption or other family members dying early of other
causes, but i know my family history and i am definately not adopted.
So why do i keep constantly worrying? if i went to see a neurologist he wouldnt
see any jerky movements with me as i get a few slight movements 3-4 times a day
and they are very very slight.
When people say that early symptoms of HD are slight uncontrollable jerky
movements what does that mean can you describe what the movements are and how
does your body move and how many seconds are minutes do these movements last
for?
I wish you good luck with your test results it must be very hard doing it
knowing that you could have HD and im sorry that your sister has tested positive
she must be taking it very hard.
So do people with manage to live afairly normal life for a few years or is it
very severe for 10-15 years?.
It seems such a cruel disease and i would not want it, i hope they can found a
cure for it soon.
I would know though wouldnt i if there was a family history of the disease? as i
have read some people have the symptoms for upto 10 years before a diagnosis of
HD is made this is true when people are not aware that it runs in that family.
Apparently personality changes can happen 10 years before the onset of the
disease, ive just been reading up on it alot.
But why am i worrying just because i saw someone on tv have it i think i may
have it too?
I mean you are different you know it runs in your family as your dad sadly
passsed away with it but my parents havent got it so why am i worrying i
probably have a 2-4% chance of having it.
I know why i worry so much its because i was born 2 months early and had to stay
in hospital for amonth, but apart from being born with asthma ive never had any
difficulties with anything, if there was something wrong with my brain when i
was born they would have found it, i dont think being born early can cause you
to have HD can it? as the only way you can get it is if you inherit the gene
which i havent i dont think or unless its a new genetic mutation which is quite
rare i think to develop it with no family history.
Its just i always thought that being born early causes problems later in life.

Ive said enough for no i think take care and i hope to hear back from you soon.


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[Non-text portions of this message have been removed]

Come into my chatroom and introduce yourself.

http://www.orgyindex.com/bubiboo/

Hi Karl,

It is very possible that your movements are just a side effect of the
anti-depressants.  It is quite hard to diagnose over the internet, especially
since new information is available everyday in the world of science. I am
currently 21, and at risk for HD (my father passed away last june).  I used to
be terrified when falling asleep b/c i would get a sudden muscle spasm, and my
leg or arm would flinch w/o my control.  It wasn't until i fell asleep next to
james (my husband) and he kicked me..w/o knowing.  My mind was put to ease in
knwoing that at ngiht, when just about to fall asleep, muscles suddenly flinch
b/c the are being relaxed.  ahh.  I slept better that night than ever before. 
So, i definetly understand your concern.
However, it is not possible to have HD if your parents do not have it. There's
no way to just be a carrier either. basically, you either have it, or you don't.
My father had HD, and so each one of his offspring had a 50% chance of getting
it as well.  My sister has tested positive, and has already begun showing signs.
Her daughter also has a 50% chance of inheriting it.  My brother, on the other
hand, tested negative for the HD gene, so his 2 children are safe.  There is no
way they can develop HD.  I will begin the testing process in about 2 weeks.
Best of luck-
Shannon "in the states"

hi shannon

thanks for the emails.
what it is i get a slight movement of the head, arms and legs which last for
about 1 second.
last night i got really worried though as my thumb moved from side to side like
it had a muscle spasm or something.
The general twitching that i get apparently thats a side effect of the
antidepressants that i am on so hopefully nothing to worry about.
I know here in the UK that HD effects around 5,000-8,000 people out of the
60million population and i've heard that in 3% of cases that there may be no
family history this may be due to adoption or previous generations dying of
other causes before HD was diagnosed.
But i know 100% that i am not adopted and im not aware of any family members who
died early of other causes or anything.
Someone told me that people can carry the gene and not have the illness, example
my nan and my dad had the gene and not the illness and i could inherit the
illness is this true?
I dont even know what made me think i have HD i just show someone on tv with it
and thought i may have that so for no reason it aint as if i know someone in my
family has it or something.
I have been abit forgetful lately but i think everyone gets that now and again,
my partner doesnt see any weird movements from me and she says my behaviour is
normal and hasnt changed and i havent stumbled or been clumsy or anything.
What are uncontrollable jerky movements? can you tell me please and how long do
the jerky movements last for? i wouldnt say my slight head twitching or arm or
leg twitches that last for 1 second or so or a muscle spasm was a jerky movement
would you?
I mean if i went say to see a neurologist tomorrow he wouldnt see me acting
strange or any abnormal movements.
I also get alot of aches and pains especially in my hands but have never seen
this to be a symptom of HD, could be my depression or anxiety or maybe a side
effect of my pills.

I really appreciate you emailing me and i hope to hear from you again soon.

Take care and hope everything is ok with you.


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[Non-text portions of this message have been removed]

I can tell you from my experience with my Mom is that she just did not go to the
DR. for 2 years. She now had medicade and medicare. It is a pain in the butt.
They dont leave you with any other option.
Colleen

April Hynes <thehynesfamily@...> wrote:
Hi everybody, I haven't posted in a while because I've been terribly busy.  Was
hoping you could help me sort out the confusion of managing Disabililty for
someone with HD

My Aunt has been diagnosed with HD and is currently (barely) holding a simple
job.  Her doc told her she can go on Disability whenever she wants at this
point.  If she goes on Disability, she has to wait 4 months with no income (how
is she supposed to do that?) and then he SSD starts.  Then she doesn't get any
medical benefits until she waits two years.

My question is this.

What is the best option while she waits those 2 years.  COBRA would be a fortune
and an indiv policly would also........what do people do?????


   ----- Original Message -----
   From: shabs96@...<mailto:shabs96@...>
   To:
onebighuntingtonsfamily@yahoogroups.com<mailto:onebighuntingtonsfamily@yahoogrou\
ps.com>
   Sent: Thursday, October 14, 2004 1:00 AM
   Subject: Re: [One Big Huntingtons Family] Re: Huntingtons Advice Please


   Hey karl
     You're safe.  There's no HD in your family, so you can't get it.  If you
ever need to talk though, feel free to contact me.  By the way, where are you
from?  I'm in jersey.  Hooray for the garden state.  :)
   -Shannon

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[Non-text portions of this message have been removed]


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colleen


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[Non-text portions of this message have been removed]

Hi everybody, I haven't posted in a while because I've been terribly busy.  Was
hoping you could help me sort out the confusion of managing Disabililty for
someone with HD

My Aunt has been diagnosed with HD and is currently (barely) holding a simple
job.  Her doc told her she can go on Disability whenever she wants at this
point.  If she goes on Disability, she has to wait 4 months with no income (how
is she supposed to do that?) and then he SSD starts.  Then she doesn't get any
medical benefits until she waits two years.

My question is this.

What is the best option while she waits those 2 years.  COBRA would be a fortune
and an indiv policly would also........what do people do?????


   ----- Original Message -----
   From: shabs96@...<mailto:shabs96@...>
   To:
onebighuntingtonsfamily@yahoogroups.com<mailto:onebighuntingtonsfamily@yahoogrou\
ps.com>
   Sent: Thursday, October 14, 2004 1:00 AM
   Subject: Re: [One Big Huntingtons Family] Re: Huntingtons Advice Please


   Hey karl
     You're safe.  There's no HD in your family, so you can't get it.  If you
ever need to talk though, feel free to contact me.  By the way, where are you
from?  I'm in jersey.  Hooray for the garden state.  :)
   -Shannon

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[Non-text portions of this message have been removed]

It's nice to be here and I look forward to getting to know all of you better.

If you want to see my pic go to: http://www.orgyindex.com/bubiboo/

Hey Karl,
Me again.  Have you by any chance been tested for Tourette's?  It is similar to
HD, but as far as i know, it is not fatal.  I have not heard of any cases where
a person developed HD with no family history of the disease, but i suppose it
has to start somewhere. If you're that worried, why not talk to a professianal. 
If needed, you can get tested, even just to put your mind at ease.
-Shannon

Hey karl
   You're safe.  There's no HD in your family, so you can't get it.  If you ever
need to talk though, feel free to contact me.  By the way, where are you from? 
I'm in jersey.  Hooray for the garden state.  :)
-Shannon

Hi everyone, just though I would introduce myself. I'm looking forward to the
discussions here.

Oh yeah, my pics are at: http://www.geocities.com/a_sweet_bi_girl18/

Hello
  No HD can not skip generations ur granparents have to of had the gene for ur
parents to get it for u to get it
karlmprice <karlmprice@...> wrote:


Hi

how do you know if there is a family history of HD in your family.
For some stupid reason i think i may have HD, I am a 22 year old male
and to my knowledge no-one in my family has HD.
I've got it into my head for some reason that because i was born 2
months premature that i could develop HD or a brain disease but apart
from having asthma i have not had any other health problems.
Can you only get HD if someone in your family has it?
My mum and dad are both 42, they are both alive and healthy.
One set of my grandparents are in their mid 60's and they are fairly
healthy and do not have HD.
My other nan is in her mid 60' as well and does not have HD, and m
other grandad died at age 70 from cancer.
Is it possible for HD to skip the grandparents then go straight to my
parents or myself?
My mum ha 2 sisters and my dad has 2 sisters and abrother and they
are all healthy.
No-one out of my family has HD so if there was some kind of family
history would at least one person in my family have HD by now?
Is it possible that you can get HD naturally without having any HD
family history?
I know HD is a rare disease read about 4,000-8,000 people in the UK
ou of 60million has this terrible disease ive read up on it and get
scared probably for no reason.
I am currently suffering from depression and i am on antidepressants.
I do get some weird jumpy movements in my head, arms, legs sometimes
and it worries me and im quite forgetful.
And i know HD symptoms are forgetfulness, uncontrollable movements,
depression so i get really paranoid, i get slight jumpy movements
that last for a bout 1 second where my head slightly twitches or my
body quickly jumps, is this uncontrollable movement? or is
uncontrollable movement something that last for seconds or minutes
and you cant control?
I do not have any idea why i think i may have HD but if someone
explains to me about family history and can you get it without family
history then it would really put my mind at rest.
I've read that in as many as 3% of cases there is no family history
and it could be due to adoption or earlier generations not being
diagnosed as they died of other causes before being diagnosed is this
true?
And i sometimes get the idea i could be in that 3% chance of getting
it with no family history.

I would really appreciate comments and advice.

Thankyou

Karl.




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[Non-text portions of this message have been removed]

Hi

how do you know if there is a family history of HD in your family.
For some stupid reason i think i may have HD, I am a 22 year old male
and to my knowledge no-one in my family has HD.
I've got it into my head for some reason that because i was born 2
months premature that i could develop HD or a brain disease but apart
from having asthma i have not had any other health problems.
Can you only get HD if someone in your family has it?
My mum and dad are both 42, they are both alive and healthy.
One set of my grandparents are in their mid 60's and they are fairly
healthy and do not have HD.
My other nan is in her mid 60' as well and does not have HD, and m
other grandad died at age 70 from cancer.
Is it possible for HD to skip the grandparents then go straight to my
parents or myself?
My mum ha 2 sisters and my dad has 2 sisters and abrother and they
are all healthy.
No-one out of my family has HD so if there was some kind of family
history would at least one person in my family have HD by now?
Is it possible that you can get HD naturally without having any HD
family history?
I know HD is a rare disease read about 4,000-8,000 people in the UK
ou of 60million has this terrible disease ive read up on it and get
scared probably for no reason.
I am currently suffering from depression and i am on antidepressants.
I do get some weird jumpy movements in my head, arms, legs sometimes
and it worries me and im quite forgetful.
And i know HD symptoms are forgetfulness, uncontrollable movements,
depression so i get really paranoid, i get slight jumpy movements
that last for a bout 1 second where my head slightly twitches or my
body quickly jumps, is this uncontrollable movement? or is
uncontrollable movement something that last for seconds or minutes
and you cant control?
I do not have any idea why i think i may have HD but if someone
explains to me about family history and can you get it without family
history then it would really put my mind at rest.
I've read that in as many as 3% of cases there is no family history
and it could be due to adoption or earlier generations not being
diagnosed as they died of other causes before being diagnosed is this
true?
And i sometimes get the idea i could be in that 3% chance of getting
it with no family history.

I would really appreciate comments and advice.

Thankyou

Karl.

Hope to get to know you all. I will try to contribute to the discussion with my
thoughts, knowledge, and opinions.

Thanks for your message shannon.

So are you saying that i basically no chance of having huntingtons as
my parents are in their 40's and are healthy and dont have HD and
because my grandparents are in their 60's fairly healthy and dont
have HD and to my knowledge there is no family history.
If there is no family history can you still get HD?
I dont even know im worried i may have HD its just becuase ive read
up on it and i am suffering depression and on antidepressants plus i
have some dodgy jumpy movements now and again.
My dads uncle is 80 and healthy too so on the basis of the info i
have given you my parents are 42, grandparents are in their 60's
other nan in her 60's and my other grandad died at 70 years old from
cancer plus all my other relatives are healthy.
Does this mean that HD does not run in my family i was thinking maybe
my parents could have HD for some reason and havent been diagnosed
but none of their relatives or parents have HD so im probably being
stupid and getting worried for no reason at all.

Any comments from anyone would be much aprreciated.




--- In onebighuntingtonsfamily@yahoogroups.com, shabs96@a... wrote:
> Hi Karl.
>   You have nothing to fear..at least where HD is concerned.
Huntington's is a genetic disease, so it is passed on through the
genes of a parent.  Hd is a very odd gene.  It doesn't follow the
normal traits of genetics.  Basically, a person cannot carry the
gene.  They either have it or they don't.  I, myself, am 21 and at
risk.  My father died of HD in june of 2003, and i am preparing to
begin the testing process, which starts the end of this month.
> -Shannon
>
> ps.  thanks for the link, tara.  I'm gonna check it out too!

Hi Karl.
   You have nothing to fear..at least where HD is concerned. Huntington's is a
genetic disease, so it is passed on through the genes of a parent.  Hd is a very
odd gene.  It doesn't follow the normal traits of genetics.  Basically, a person
cannot carry the gene.  They either have it or they don't.  I, myself, am 21 and
at risk.  My father died of HD in june of 2003, and i am preparing to begin the
testing process, which starts the end of this month.
-Shannon

ps.  thanks for the link, tara.  I'm gonna check it out too!

Hi

How do you now if there is a family history of HD?

Would it be possible for me to have HD if one set of my grandparents
are still alive and well and in their 60's and dont have HD, my
parents are both 42 and are healthy and dont have HD and my other nan
is 67 and is fairly healthy and doesnt have HD and my other grandad
died of cancer when he was 70.
If none of these people have HD what are the chances of my getting HD?
Can HD skip my grandparents and my parents and come straight to me? s
i know no-one in my family that has HD.
Or can HD skip m grandparents and goto my parents and the havent been
diagnosed yet.
So as far as i am aware there is no family history of th disease so
what are the chances of me getting HD?

Advice and comments will be much appreciated, i dont even though why
ive started worrying i have HD when ive only read up on it, im on
antidepressants for depression an i get a few jumpy movements of my
head, arms, legs now and again and im just worried maybe worrying for
no reason.

Thanks.

Hey
I'll do my best to answer what I can.....

Theres a lot of young people I know who are on anti depressants who have
tested negative for hd... even thought they thought they had it...

Theres also so many young people on antidepressants that don't have
anything to do with hd...

Theres a gray zone when it comes to hd..  I'll add some links here for u
to read about it... instead of trying to explain it.

http://huntingtondisease.tripod.com/genetictesting/id73.html
u may also find some info here http://hdlighthouse.org/abouthd/cag/


another site you may want to check out is the national youth alliance..
its for youth aged 9-29 who are at risk, tested negative, tested
positive have friends, not at risk etc for hd.
http://huntingtondisease.tripod.com/nya/id1.html

it's a great place to meet people your own age in your situation...

im part of it.. im 24.. and at risk, my mom has hd.

If you want to talk feel free to message me anytime.

Regards

Tara

-----Original Message-----
From: karlmprice [mailto:karlmprice@...]
Sent: Tuesday, October 05, 2004 11:42 AM
To: onebighuntingtonsfamily@yahoogroups.com
Subject: [One Big Huntingtons Family] Huntingtons Advice Please




Hi

Everyone I am 22 years old and for some reason i am really scared i
have HD.

I am currently suffering from depression and am on antidepressants
but alo now and again i get jumpy movements of my head, arms, legs
etc not very often and it onlys last for a second.
Both of my parents are in their 40's and are healthy and one set of
my grandpaents are still alive and their are fairly healthy.
And my other nan is in her 60's and she is fairly healthy as well if
my grandparents and parents does that mean im not at any risk of
developing the disease.
Or is it possible to skip my grandparents and goto my parents? but
wouldnt my parent sbe showing symptoms by now?
And is it possible for HD to skip my grandparents and parents then
come to me?
How do you know if their is a fmaily history of the disease.
If their is no family history what are the chances of getting HD?
Please give me some advice on this matter please t put my mind at
rest.
Thanks

Karl.



--- In onebighuntingtonsfamily@yahoogroups.com, Colleen Hutt
<carebear22_00@y...> wrote:
> Hi Donna,
> I think it would be really hard for any of us to say what stage
your friend is in since we cant see her or dont know her. I am
surprised the Doctor does not tell her what stage she is in. Your
friend knows she has HD but does not want to know about it? Is she in
denial?
> My Mom has HD and has been diagonsed for about 5 years now. I think
everyone progresses differently, i have watched my Mom go down hill
very quickly. I can answer any questions you have from my own
experience. If you want to email me my address is carebear22_00@y...
>
> Colleen
>
> shirlydonna <shirlydonna@y...> wrote:
> can any one help me to understand what my friend is going through.
I
> go to hospital appointments with her, but she doesn't ask questions
> and i don't like to ask any. in case it upsets her.  She says she
> doesn't want to know, but then she ask's me thing's and i don't no
> any ansewers.  She was diagnosed three years ago but has been
unwell
> for the past 10 years.  How advanced is she? Her talking is
slurred,
> shes lost her taste and smell.  her movements are controlled with a
> drug and she is on antidepessents. She went down to 6 stone in
weight
> but is now putting on weight. Her husband left her and her sons are
> scarred and dont want to know PLEASE HELP ME TO HELP HER.
> DONNA
>
>
>
> Yahoo! Groups SponsorADVERTISEMENT
>
>
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> colleen
>
>
>
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> [Non-text portions of this message have been removed]







Yahoo! Groups Links

Hi

Everyone I am 22 years old and for some reason i am really scared i
have HD.

I am currently suffering from depression and am on antidepressants
but alo now and again i get jumpy movements of my head, arms, legs
etc not very often and it onlys last for a second.
Both of my parents are in their 40's and are healthy and one set of
my grandpaents are still alive and their are fairly healthy.
And my other nan is in her 60's and she is fairly healthy as well if
my grandparents and parents does that mean im not at any risk of
developing the disease.
Or is it possible to skip my grandparents and goto my parents? but
wouldnt my parent sbe showing symptoms by now?
And is it possible for HD to skip my grandparents and parents then
come to me?
How do you know if their is a fmaily history of the disease.
If their is no family history what are the chances of getting HD?
Please give me some advice on this matter please t put my mind at
rest.
Thanks

Karl.



--- In onebighuntingtonsfamily@yahoogroups.com, Colleen Hutt
<carebear22_00@y...> wrote:
> Hi Donna,
> I think it would be really hard for any of us to say what stage
your friend is in since we cant see her or dont know her. I am
surprised the Doctor does not tell her what stage she is in. Your
friend knows she has HD but does not want to know about it? Is she in
denial?
> My Mom has HD and has been diagonsed for about 5 years now. I think
everyone progresses differently, i have watched my Mom go down hill
very quickly. I can answer any questions you have from my own
experience. If you want to email me my address is carebear22_00@y...
>
> Colleen
>
> shirlydonna <shirlydonna@y...> wrote:
> can any one help me to understand what my friend is going through.
I
> go to hospital appointments with her, but she doesn't ask questions
> and i don't like to ask any. in case it upsets her.  She says she
> doesn't want to know, but then she ask's me thing's and i don't no
> any ansewers.  She was diagnosed three years ago but has been
unwell
> for the past 10 years.  How advanced is she? Her talking is
slurred,
> shes lost her taste and smell.  her movements are controlled with a
> drug and she is on antidepessents. She went down to 6 stone in
weight
> but is now putting on weight. Her husband left her and her sons are
> scarred and dont want to know PLEASE HELP ME TO HELP HER.
> DONNA
>
>
>
> Yahoo! Groups SponsorADVERTISEMENT
>
>
> ---------------------------------
> Yahoo! Groups Links
>
>    To visit your group on the web, go to:
> http://groups.yahoo.com/group/onebighuntingtonsfamily/
>
>    To unsubscribe from this group, send an email to:
> onebighuntingtonsfamily-unsubscribe@yahoogroups.com
>
>    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
> colleen
>
>
>
> ---------------------------------
> Do you Yahoo!?
> vote.yahoo.com - Register online to vote today!
>
> [Non-text portions of this message have been removed]