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onebighuntingtonsfamily · One Big Huntingtons Family - Support from those who have been there.
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Messages 701 - 730 of 1483   Oldest  |  < Older  |  Newer >  |  Newest
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701
HI My name is Suzie I'm new to all this. I'm 27 married with two kids. HD has been in my family for as long as i can remember my granmother,antie and my own...
suzbab27
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Nov 2, 2004
5:42 pm
702
Hi Suzie, I am sorry for the reason that you have had to post your message, but the good news is that these days there is a lot of information available about...
Tom Lister
airtroopertom
Offline Send Email
Nov 2, 2004
11:43 pm
703
Hi Tom Thanks very much from replying to my email I'm from Lisbon in N'Ireland. I don't know anybody over hear with hd. It feels like a time boom ticking away...
suzie Moore
suzbab27
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Nov 3, 2004
12:50 pm
704
Hi Suzie, Helen and I are in Aultbea, Scottish Highlands. I am no expert, but from what I understand there is no way to predict when symptoms will appear....
Tom Lister
airtroopertom
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Nov 3, 2004
1:14 pm
705
Hey guys, I am new to the group and just wanted to say hi! If you would like to check out a pic of me I took yesterday, or talk to me check my profile our over...
Bubiboo
maude7128@...
Send Email
Nov 3, 2004
3:53 pm
706
I knew if it was out there you guys would track it down! Sounds as if this is what was being reported - thanks Jean and Marsha! Tom ... From: Jean E. Miller ...
Tom Lister
airtroopertom
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Nov 6, 2004
12:35 pm
707
hi, my name is tracy and i live in Plymouth ,England. I have three sons who are at risk from Huntingtons, ages 16, 13 and 11. My 16 year old is finding it very...
bty33772242
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Nov 12, 2004
11:53 am
708
Hey people! I am pretty new to the group and I don't mean to be annoying, but I wanted to let all of you know I finally got my webcam back. It took a while to...
WetnWaitin18
maude7128@...
Send Email
Nov 12, 2004
5:22 pm
709
Hi Tracy I am very sorry to hear about your situation. How comes you didnt know that your husband at the time had huntingtons? who did he inherit it from? did...
Karl Price
karlmprice
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Nov 13, 2004
8:20 pm
710
Hi Karl My wife's father walked out on Helen and her mum when she was two, and she had no further contact with him until she was in her mid-thirties. She met...
Tom Lister
airtroopertom
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Nov 14, 2004
11:58 pm
711
Hi Tom Thanks for your message, i am really sorry to hear about what has happened with your wife it does not sound good at all when things like that happen. ...
Karl Price
karlmprice
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Nov 15, 2004
11:56 pm
712
Gosh Karl, I'm not sure that I'm the right person to answer all those questions, but I will do my best! 1. Yes, your family history shows that Hd isn't...
Tom Lister
airtroopertom
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Nov 16, 2004
12:09 am
713
Hi Tom thanks for your reply sorry to ask all those questions so what you are basically saying to me is that i should never get HD and i should not worry about...
Karl Price
karlmprice
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Nov 16, 2004
2:55 pm
714
Hi Tom, I'm reading your message and just wanted to ask you to investigate the age of onset in your family. Who had hd?? A great grandparent? We have a late...
April Hynes
thehynesfamily
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Nov 16, 2004
4:23 pm
715
Hi April, It was Helen's dad who had HD. He didn't realy start showing symptoms until late middle age. His parents died (I believe) fairly young of non-HD...
Tom Lister
airtroopertom
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Nov 16, 2004
11:31 pm
716
Hi Karl, No bother to answer questions. I think that the chances that what is troubling you is due to HD, given your background, is vanishingly small. I hope...
Tom Lister
airtroopertom
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Nov 16, 2004
11:33 pm
717
Hello I run a website www.mind1st.co.uk that sells the highest grade of pure Epa thats available today. Just recently a customer of mine informed me that High...
David McEvoy
davemcevoy2004
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Nov 17, 2004
2:05 pm
718
Hi Tom, Well I'm not sure really what CAG count my mom is. She was diagnosed with HD by her neurologist but I don't think she had a blood test to confirm...
April Hynes
thehynesfamily
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Nov 17, 2004
7:51 pm
719
Hey people! I am pretty new to the group and I don't mean to be annoying, but I wanted to let all of you know I finally got my webcam back. It took a while to...
WetnWaitin18
maude7128@...
Send Email
Nov 18, 2004
2:59 pm
720
Hi April, The CAG count refers to the number of times the sequence "CAG" appears at the end of the Huntingtin gene. It normally repeats up to 34 times (a...
Tom Lister
airtroopertom
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Nov 18, 2004
11:47 pm
721
TOOO ALL!!!!!!!! PLEASE READ!! HD CAN SKIP A PERSON!! I HAVE HD AS WELL AS MY BRO, MY SIS DOES NOT!! I WAS UPSET ABOUT WHAT WAS SAID IN HERE ABOUT IT CAN'T...
TRACY BRADY
sweetncute_1963
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Nov 19, 2004
2:17 pm
722
Im not sure who the person was that said that it doesn't skip people.. but tracy's right on this one... That's why they call us at risk... if we didn't have...
Tara Bintliff
tara1644
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Nov 19, 2004
2:31 pm
723
Hi Tracy, I never said that it can't skip a PERSON, I said it can't skip a GENERATION. Never intended to upset anyone. If your parent has HD then you have a...
Tom Lister
airtroopertom
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Nov 20, 2004
12:49 am
724
Dear Tracy, I think we need to clarify the meaning of the word "skip". The HD gene can not SKIP a generation. The gene is passed down and a child of an HD...
April Hynes
thehynesfamily
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Nov 23, 2004
3:52 pm
725
Hi Megan, Welcome. I am 31 years old and I am at risk also. My 65 year old mother was diagnosed with HD last year and she is in the beginning stages or Mid...
April Hynes
thehynesfamily
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Nov 23, 2004
4:01 pm
726
Hi someone told me that everyone has a chance of developing Huntington's disease. They told me that everyone has the huntingtin gene which everyone needs for...
Karl Price
karlmprice
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Nov 23, 2004
5:47 pm
727
Karl, never heard that before. Don't worry......if you have no family history.......as far as I'm aware......you have 0 chance of developing Huntingtons. Your...
April Hynes
thehynesfamily
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Nov 26, 2004
1:27 am
728
Absolutely right, April. Went to the funeral yesterday of our minister's wife. She died of cancer on Monday morning, only 39. Lots of tears at the funeral, but...
Tom Lister
airtroopertom
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Nov 26, 2004
9:18 am
729
Hi April Thank you for your email. Well i do not have any family history. My parents are both 42 years old and are healthy and do not have HD. My Mums Mum and...
Karl Price
karlmprice
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Nov 26, 2004
5:23 pm
730
Hi Just another thing quickly i am suffering from depression and also i have noticed that over the last few months i have been getting quite forgetful and it...
Karl Price
karlmprice
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Nov 26, 2004
5:26 pm
Messages 701 - 730 of 1483   Oldest  |  < Older  |  Newer >  |  Newest
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