Hi I am new here, I found out My Mom has HD 4 years ago, and she has gone down hill so fast i was just seeing if anyone here has experienced a parent or...
Hi Colleen, My name is Shannon, and both my father and sister have tested positive for Huntington's. We found out about 6 years ago that my dad had the gene,...
hi colleen sorry u hav had 2 join this group, my mother in law is in a home........she is doing quiet well, my husband has hd he is in the early stages...
hi bethany, you can read my story on the site. I'm sorry you ahve to be here. Huntington's is not a pretty illness, but we get through it together. Has your...
I'm 18 an at the age of 3 my mother started to get really ill. nobody could help her and nobody knew what was wron. i visited her every time i could just to...
Need some help. I'm 30 at risk with late onset. I have a 3 yr old son who in just the past 4 weeks went from completely normal to having occiptal siezures...
APRIL, BOTH OF YOU ARE IN MY PRAYERS. I DON'T KNOW TO MUCH ABOUT JHD BUT PREATTY SURE IT RUNS THAT WAY ONLY IF SOMEONE ELSE HAS JHD. EITHER WAY I WILL...
Hey Tracy! How are you? I miss our convos so much. How is your mother holding up? And your delightful brother? How's he been? I hope all is well, and keep in...
SHANNON, I HAVE MISSED YOU ALSO I HOPE YOU GOT ALL YOUR DAD'S STUFF TAKEN CARE OF. MY MOM HAS TO HAVE HER BREAST REMOVED NOT SURE THE DATE YET SHE GOES TO THE ...
Beth, I think the thing that worrys me the most is that i have t worry about weather i have the disease but seeing my brothers the way they are just makes me...
VICKI, SORRY YOUR BROTHER IS GETTING WORSE. I AM GOING TO BE 40 AND HAVE A YOUNGER BROTHER WHO'S VERY BAD EVERYTIME I SEE HIM IT BREAK'S MY HEART. I LOOK AT ...
Hi Teacy My Brother started getting i'll when he was 21 he is now 26. i have another brothr named lee and he has the same he started also when he was around 21...
hey vivki, I know the feeling. My uncle acts the same way. Ever since my father, his younger brother, was put into a nursing home, my uncle has been drinking ...
Hey vivki, Me again. I am 21, My sister is HD positive (started signs around 25, is now 30) and my brother is negative (now 29). I really know where you're...
Hi everyone, I am new here and i am a little confused on how this works. I basically recieve an email every time you all reply to eachother. Is there a chat...
Hi Colleen, You will find that these sites have a hugs impact on your life and the way you live it. Before I found this family of friends, I felt so alone and ...
Dear Colleen, My name is Dori, Huntington's disease is in my family too, my grandfather and my great-uncle died of HD, and when my I was 8 yrs old my mom died...
Hi Colleen, I am new at this group experience also - we can sort of learn things together. I am 32 years old and have in the past couple of months learned at...
Wow, Thank you all so much for your responses, you all are so understanding and open. That really means alot. The only people i can talk to about all this are...
Hi Colleen I have just read your e-mail with interest, you say that you want children but won't have any in case you do have H D and do not want to pass it on....
Hi Shannon My Mother had the gene but nobody has any idea at to where it came from! luv viki shabs96@... wrote: Hey vivki, Me again. I am 21, My sister is...
Hi Colleen Its Viki, wat can i say my mum had the disease and died at the age of 41 very young i know my only 2 brothers bothe have the disease and im scared...
Cuold i just say that even when your clear of HD you could always be a carrier of the disease so if children r on the books there is a test to check the baby...
Carol, I appreciate your opinion about having children but I respectfully have a very different opinion. My mother knew she was at risk when she gave birth to...
Carol, I appreciate your opinion about having children but I respectfully have a very different opinion. My mother knew she was at risk when she gave birth to...
Viki, if you get the test that tells you if you have the bad gene or not...if the test say you don't have the bad gene, you can never pass it on. What kind of...
Dear Colleen, I don't know of any family that the mother or father had HD and non of the children didn't get HD, Its a 50% chance thats pretty high, but...
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