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onebighuntingtonsfamily · One Big Huntingtons Family - Support from those who have been there.
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Messages 1 - 30 of 1486   Oldest  |  < Older  |  Newer >  |  Newest
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1
Welcome to the Yahoo! Message Board for One Big Huntingtons Family...
kat_lt
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May 26, 2000
8:48 pm
2
I am glad to get to know anyone on here. anyone who needs someone to talk to please e-mail me<br>KAT_LT@... and i will do my best to be a good friend....
kat_lt
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May 26, 2000
8:57 pm
3
would like to say congrats. it is good to be a mamber. sorry about earlier, but my computer froze. <br>sometimes_sunday...
sometimes_sunday
sometimes_su...
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May 27, 2000
3:03 am
4
Thank everyone of you for joining me club I am hoping to keep it as informative as possible. If you have any suggestions or ideas then please let me know....
kat_lt
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May 27, 2000
2:03 pm
5
I am 19, and live in Bethesda Maryland. In the US Navy. This past Jan, I was put into the Psych ward in Great Lakes Ill, because of one of the episodes I was ...
kat_lt
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May 27, 2000
3:24 pm
6
Hello everyone... I don't really have too much to say, but hello, and I'm glad to be a member. Congradulations on the site Katie!<br>Love always,<br>Lauren...
truestyou
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May 27, 2000
7:09 pm
7
i just wante to post that i am starting a newsletter. if anyone fits these five perspectives: caregiver, at-risk, tested pos/neg, pHD, or a doctor; i'd love to...
sometimes_sunday
sometimes_su...
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May 27, 2000
11:50 pm
8
Katie,<br><br>Sorry our conversation got interrupted last night, I hope we can continue it soon! Just wanted to wish you every success with this, the latest of...
sue_twin2
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May 28, 2000
12:06 am
9
Dear Katie,<br><br>I'm glad that you are doing so well.Hope that your site can bring you also some happines. I'm very glad to see you happy.<br><br>See you,...
nicolet_nl
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May 28, 2000
9:57 am
10
I am so very, very happy and you did not check out of this old world, and that you have found Cullen......<br><br>You have so much to offer this world, and you...
hcjime
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May 29, 2000
12:15 am
11
Congratulations on your new chat room, hope I can catch you online here soon. I have a similar story as yours to tell, maybe one day we can share. Thanks Jim...
jano5w
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May 29, 2000
7:23 am
12
Thank you for joining the club. Please add me to your friends list and then when ever you see me online say hello. Or e-mail me KAT_LT@... and we can ...
kat_lt
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May 29, 2000
2:19 pm
13
little all day get together to get to know people.<br>Please come on and well post stories, put pictures on here and whatever else you think might let others...
kat_lt
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May 29, 2000
2:28 pm
14
I'll try my best to get on Tuesday. Weekday's are normally kinda crazy for me (considering I have school & karate). I probably won't get on until like...
truestyou
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May 29, 2000
8:29 pm
15
Kat_lT Just like to say thinking of you, and all the FAMILY, Great club nice to know there are many clubs that we can all use. Take care coz we CARE!!!!!!!!...
aidis_1999
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May 29, 2000
10:03 pm
16
What is your repeat? I have HD my repeats are 38 and 18. I am 62 and counting-I expect to live 24 more years, if I eat enough.<br><br>In my opinion, you are ...
Jeff_McKenzie
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May 29, 2000
10:34 pm
17
Hello, I wanted to let you know about my web page I made for my wife Kathy, Please visit it.<br>www.homestead.com/living_the_facts/index.html<br><br>Olav...
banditowl99
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May 30, 2000
2:38 am
18
i don't know if you heard, but i'm starting a HD newsletter. i need sumitions, for a caregiver, at-risk, tested pos/neg, pHD, and doctor perspectives....
sometimes_sunday
sometimes_su...
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May 30, 2000
3:57 am
19
Allow me to share some web site that I feel should be part of your news letter<br><br>Huntington disease (HD) is a genetic disorder <br><a...
hcjime
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May 30, 2000
11:03 am
20
I take paxil too. 30 mg... IT helps a lot.. I think my repeats were 42.. or something like that. I will have to check my records... I am glad you posted a...
kat_lt
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May 30, 2000
7:33 pm
21
I will check in as soon as I get back, <br><br>Jim...
hcjime
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May 30, 2000
8:29 pm
22
I will be 62 on June 15th. <br>3rd generation HD, was caregiver for my mother, who died 1986 at age of 83 from HD. Since we knew very little about HD and ...
hcjime
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May 31, 2000
2:38 am
23
Jim after reading your story, I think YOUR A LEGENE keep up the good work and dedication you give to HD research, we need more people like you, and by the way...
jano5w
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May 31, 2000
7:00 am
24
Since we are sharing stories about our HD, I thought I might share mine with you.<br><br>I was tested in 1997, after I had been battling on and on with bouts...
jano5w
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May 31, 2000
8:02 am
25
I was very lucky to be asked to be part of the of the largest HD experimental drug testing program to take place in HD research history. In June 1994 I was ...
hcjime
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May 31, 2000
12:30 pm
26
While I was waiting to here on starting, I got a call from the U of Michigan asking if I could help them by loaning my brain for scanning. I said sure and they...
hcjime
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May 31, 2000
12:32 pm
27
i appreciate you sharing your story with the club. my father is on COQ 10 and it seems like there isin't much change. for one thing his progression has always...
sometimes_sunday
sometimes_su...
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May 31, 2000
7:34 pm
28
jano, thanx for sharing your story. i agree whole heartedly that the kids should know. i'v known since dad was diagnosed in 1991. It makes it hard to grasp at...
sometimes_sunday
sometimes_su...
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May 31, 2000
7:36 pm
29
Jano,<br>I agree with Sometimes_Sunday. It is the best to let the kids know about HD, than to keep it from them. They'll know what's going on, and they won't...
truestyou
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May 31, 2000
10:21 pm
30
It is great to seen the number of people that have joined since you started it Kathie,,,,,,,,,,,Outstanding job, job well done<br><br>Jim Eaon...
hcjime
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Jun 2, 2000
5:12 pm
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