I have a friend back home in North Louisiana, that has 2 out of 3 daughters that have been diagnosed with HD. One is 25 and one is a twin age 23. She has...
For anyone planning on attending the HDSA convention in Pittsburgh, this is a good site to estimate the cost of round-trip airfare anywhere in the US. After...
For some reason, without the http:/ that site isn't working. This one does: http://www.farereport.com/ Fare Report is a free tool that provides travelers with...
First, the HDSA and the NYA Adult Advisors are ELATED to announce that the National Youth Alliance [NYA] 2008 Convention Scholarship Fund will be sending...
I received terrible, terrible news today. My 18 year old cousin Jenny died today. She was involved in a school bus accident in Rimbey. My home town. A gravel...
Below is information on the upcoming upstate New York area HD conference May 3rd. As always, I encourage anyone who can attend their state HD conferences...
The Northern California HDSA Chapter recently held their 2nd Youth Support Group event, with a Bowlathon, on May 31 in Fresno. Another JHD Mom just wrote me...
Resources for anyone driving to Pittsburgh Below are a lot of good resources for anyone who is planning on driving to Pittsburgh for the first annual HDSA NYA...
I have a great honor I received a few days ago. I am going to represent the HD cause.Let people know what it feels like to be us. SENT TO ME Your blog is a...
We're trying to find a good place in downtown Pittsburgh, near the HDSA Convention hotel the Omni William Penn, to hold the 8th Annual On-Line HD Family Get...
Below is a message from Jim Pollard on the May 18, 2008 Annual Garbage Trail Walk to Massacree HD. The flyer on their website was too big to attach to Yahoo...
hi, first i would like to give a little history about myself and hd. i first learned about my families history with hd 12 years ago. my uncle don told me about...
The place for the 8th annual event where all the HD on-line groups, or everyone arriving in Pittsburgh on Thursday, are invited to get together to meet old...
For anyone in the Connecticut or New England area....... Save the Date.. May 31,2008 to support HDSA National Youth Member Mindy Maher's 3rd Annual HD Benefits...
I don't know if anyone posted the below message from Marie, however they're looking for families in Southern Illinois and Indiana to put them up for a night...
Below is the HDSA announcement on the eBay auction for a signed lithograph by Tony Bennett, also known as Anthony Benedetto in the world of art collectors!...
I just got through watching this video and am so PROUD of NYA member Mind !! You and Susan covered a LOT in 3 short minutes and I hope that coverage brings...
I have early onset HD. I am starting an hopeful email list. It will also have a support aspect to it. I am having Home Supports come to my house. Everyone is...
Hi how is everybody Here you can find useful advices , articles , tips and programs to lose some pounds quickly http://www.tipsweight-loss.com We're waiting...
Congressman Bob Filner introduced the bill to congress to require the Commissioner of Social Security to revise the medical criteria for evaluating disability...
There is an excellent article published in the June issue of the New York Magazine written by author Kevin Baker who has Huntington's Disease in his family....
Phase II DIMOND Study [Dimebon] Results Are Very Encouraging HDSA Breaking News by Marsha Miller http://www.hdsa.org/research/news/815.html Not only is it safe...
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