In case anyone hasn't seen this...........there's one week left for your application for the 2008 NYA Convention Scholarship to be postmarked!! Remember, if...
The kids and young adults in the National Youth Alliance will be kicking off their annual search for donated items to support their Silent Auction at HDSA's...
I have won more awards in a short period time than any other site, 41. 8 of them are International Awards. They are the hard ones to win. I applied to them...
The HD Lighthouse had an article up on Avicena's HD-02 Phase III HD Trial before I sent out the release a few minutes ago! Phase III Creatine Trial: ...
Anyone living near the Indiana/Michigan state line please plan to attend this event and support theses two wonderful HDSA National Youth Alliance members as...
hi, hard to know where to start because things are just so messed up right now i need someone who knows about hd to talk to ... Looking for last minute...
Lisa, Yes I am here. How can I help you?This is my background in relation to hd. I am an RN and I have a hubby who is a Patient with huntington's, I have one...
Hey Lisa. Weird I am also former nurse too. I did that I had to look after my HD mother. Now I have HD. I am 24. I found out that I was symptomatic last month....
hi, i'm in the same situation. i need help in coping. my husband has hd and he is 49 years old. he has basically given up. he is capable of doing things but...
... right now i need someone who knows about hd to talk to ... Search. ... hey everyone thank you for responding. I think my man has HD. I am new to all of...
Hello everyone, I need your help. I am asking everyone to please email Ellen Degeneres on my behalf on March 28th. I would like to be on her show to discuss ...
For anyone living in this area of California, try to attend. You can learn a lot at the state held HD conferences & convention plus you get to meet others...
Hi Maud Sorry to hear about your husband........it can be hard as they dont know what its like, my husband is 50 and is going through the same thing, but i...
Does anyone have infor as to what the odds are for the CAG repeats to be in that grey area of 30-39 which makes the results rather dicey? I am going to be...
It is about 1%. My hubby is a 39 with all clinical manifestations of hd so is considered positive. In the grey area, especially in males, the gene can still...
Marsha has a new HDL article online covering the exciting press release this past weekend on Novel targets for HD. It's a pretty detailed study and article. I...
Dear Friends of HDSA: I am a former member of the HDSA San Diego Chapter and participant in the upcoming Rock and Roll Marathon this June. And I have declared...
I have a friend back home in North Louisiana, that has 2 out of 3 daughters that have been diagnosed with HD. One is 25 and one is a twin age 23. She has...
For anyone planning on attending the HDSA convention in Pittsburgh, this is a good site to estimate the cost of round-trip airfare anywhere in the US. After...
For some reason, without the http:/ that site isn't working. This one does: http://www.farereport.com/ Fare Report is a free tool that provides travelers with...
First, the HDSA and the NYA Adult Advisors are ELATED to announce that the National Youth Alliance [NYA] 2008 Convention Scholarship Fund will be sending...
I received terrible, terrible news today. My 18 year old cousin Jenny died today. She was involved in a school bus accident in Rimbey. My home town. A gravel...
Below is information on the upcoming upstate New York area HD conference May 3rd. As always, I encourage anyone who can attend their state HD conferences...
The Northern California HDSA Chapter recently held their 2nd Youth Support Group event, with a Bowlathon, on May 31 in Fresno. Another JHD Mom just wrote me...
Resources for anyone driving to Pittsburgh Below are a lot of good resources for anyone who is planning on driving to Pittsburgh for the first annual HDSA NYA...
I have a great honor I received a few days ago. I am going to represent the HD cause.Let people know what it feels like to be us. SENT TO ME Your blog is a...
We're trying to find a good place in downtown Pittsburgh, near the HDSA Convention hotel the Omni William Penn, to hold the 8th Annual On-Line HD Family Get...
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