Dear Friends & Family I would like your help in signing a petition to get the Social Security Administration [SSA] to update their Disability Evaluation Under...
I am trying to find some old buddies from the HD groups I was a part of back in the mid to late 90's to the early 2000's. I was known by Jvabean/Upwithhd. If...
With the exception of the Cambridge Brain Repair Centre in the United Kingdom, all DIMOND study locations are in the USA. Please read more about this clinical...
For anyone who has attended an HDSA National Convention you have witnessed, first hand, how important peer support is for all of our young people living with...
If you live in New Hampshire you might want to read this! It's a wonderful article about a lady with HD finding the right home services to help her maintain...
I now on a blogs top 100 Chronic Disease Blog list. They were combing the web and found my HD site. They loved it and put it on there. This is what a positive...
As almost everyone knows by now, the HDSA 2008 National Convention is June 6-8th in Pittsburgh, PA. That's only a little over 16 weeks away. That may seem...
Anyone associated with the New England Chapter of the HDSA knows they've done an outstanding job of advocating for HD families in the New England states!...
How many times have you gone to www.google.com websearch and just put in the words you needed to search for something, never paying attention to what else the...
Don't miss Charles Sabine's, the NBC world news correspondent who was diagnosed with HD, presentation on video that he gave at the CHDI conference last month:...
For everyone who was overwhelmed and impressed by NBC world news correspondent Charles Sabine presentation [and video] given to the HD researchers in...
Even though I have been experiencing HD mental symptoms for two years now. They could not diagnose anyone who does not fail the neurological test. I passed it...
Found a good video of a Nancy Wexler lecture uploaded to YouTube January 23, 2008 talking on her passion - genetic testing for any disease including HD of...
The HD Lighthouse has put up Jim Thretheway's article: 2008 CHDI HD Therapeutics Conference: A Report from an HD Family Perspective February 4-7, 2008 in Palm...
I have found way to heal since I got my official results. I did take the suggestion and wrote positive HD poems. I wrote two of them. It is a great way to...
In case anyone hasn't seen this...........there's one week left for your application for the 2008 NYA Convention Scholarship to be postmarked!! Remember, if...
The kids and young adults in the National Youth Alliance will be kicking off their annual search for donated items to support their Silent Auction at HDSA's...
I have won more awards in a short period time than any other site, 41. 8 of them are International Awards. They are the hard ones to win. I applied to them...
The HD Lighthouse had an article up on Avicena's HD-02 Phase III HD Trial before I sent out the release a few minutes ago! Phase III Creatine Trial: ...
Anyone living near the Indiana/Michigan state line please plan to attend this event and support theses two wonderful HDSA National Youth Alliance members as...
hi, hard to know where to start because things are just so messed up right now i need someone who knows about hd to talk to ... Looking for last minute...
Lisa, Yes I am here. How can I help you?This is my background in relation to hd. I am an RN and I have a hubby who is a Patient with huntington's, I have one...
Hey Lisa. Weird I am also former nurse too. I did that I had to look after my HD mother. Now I have HD. I am 24. I found out that I was symptomatic last month....
hi, i'm in the same situation. i need help in coping. my husband has hd and he is 49 years old. he has basically given up. he is capable of doing things but...
... right now i need someone who knows about hd to talk to ... Search. ... hey everyone thank you for responding. I think my man has HD. I am new to all of...
Hello everyone, I need your help. I am asking everyone to please email Ellen Degeneres on my behalf on March 28th. I would like to be on her show to discuss ...
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