This my New Years address. We have lots of hope from this year. Lots of treatments. Lots of new possible cures. We should take stock in knowing this. Every...
I wish I qualified, I could get a 3 month supply of Synthroid $20.00 vs what Medicare is costing! Income To use Rx Outreach, your income needs to be less than...
There are so many great video's on the Internet on HD that I tried finding as many as I could and linked them all to a new website: Huntington's Disease Video...
One of the HD Video Theater links I shared yesterday was this excellent resource video: The Gift of Caring http://www.youtube.com/watch?v=tUPs-Xr5nSw Time:...
Many people have told me that they didn't receive the most recent copy of the HDSA Marker magazine in the mail. Well HDSA now has the electronic version...
I found a bunch of new video's today that, although not HD specific, I'm hoping y'all find helpful. I don't know about some of you, but I'm a visual person....
For any young person at-risk 12 to 17 living in the St. Louis, Missouri area I'm happy to report that there is a teen group for you! St. Louis Chapter At-Risk...
If you have any young people living with HD, ages 9 to 29, please read the HDSA message below. First, any existing member of the NYA must fill out the new NYA...
This was posted on Hunt-Dis January 17th. The author, Ricki Lewis, is a geneticist who is also a science writer for CHDI. Inc. [http://www.chdi-inc.org/]....
I just ran across another forum where you can ask about HD, post your own story about living with HD, or try to help somone else looking for answers if you're...
Sorry according to the station's website the time is listed in Pacific Time http://www.patientpower.info/blog/Events/default.asp?Year=2008&Month=01&Day=23 So...
Hi hope everyone had a chance to listen to the PatientPower show on HD today with Dr. Jane Paulsen and Karen Milek, it was chock full of some great questions,...
I'd even recommend your friends or coworkers also listen to this to learn more about HD! Hopefully the 2nd interview on HD will be scheduled sometime soon! ...
For anyone interested I've add a couple things to the HD Video Awareness website, which has both video and media resources! Here's what's new: Drugs & Your...
Today I won a World Wide Web Award. It is very hard to get. They are official awards. So many people apply for them and I got one. This is such a great feeling...
Dear Friends & Family I would like your help in signing a petition to get the Social Security Administration [SSA] to update their Disability Evaluation Under...
I am trying to find some old buddies from the HD groups I was a part of back in the mid to late 90's to the early 2000's. I was known by Jvabean/Upwithhd. If...
With the exception of the Cambridge Brain Repair Centre in the United Kingdom, all DIMOND study locations are in the USA. Please read more about this clinical...
For anyone who has attended an HDSA National Convention you have witnessed, first hand, how important peer support is for all of our young people living with...
If you live in New Hampshire you might want to read this! It's a wonderful article about a lady with HD finding the right home services to help her maintain...
I now on a blogs top 100 Chronic Disease Blog list. They were combing the web and found my HD site. They loved it and put it on there. This is what a positive...
As almost everyone knows by now, the HDSA 2008 National Convention is June 6-8th in Pittsburgh, PA. That's only a little over 16 weeks away. That may seem...
Anyone associated with the New England Chapter of the HDSA knows they've done an outstanding job of advocating for HD families in the New England states!...
How many times have you gone to www.google.com websearch and just put in the words you needed to search for something, never paying attention to what else the...
Don't miss Charles Sabine's, the NBC world news correspondent who was diagnosed with HD, presentation on video that he gave at the CHDI conference last month:...
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