As most of you know the FDA will have a hearing for Tetrabenazine [TBZ] on December 6, 2007. This hearing will be a Open Public Hearing which provides...
Sorry, I won't post anything else on this subject until after the meeting, I promise! The only reason I'm posting this one is because it gives the mailing...
Probably one of THE most important studies being done in Huntington's Disease [besides PREDICT HD] is the Huntington's Study Group's [HSG] COHORT Study. Why? ...
This was posted on-line yesterday. For anyone participating in the DOMINO study or taking Minocycline, it's important you read the below HDSA coverage. I'm...
What's a little more nuts to an HD family? Well it appears eating them can help! The Society for Neuroscience recently had its annual meeting and the HD...
If you belong to Hunt-Dis and you use the archive link to read messages [like me] or are on Digest and haven't received your digest from yesterday, there is a...
Can We Get There From Here? The Huntington's Disease Community's Strategic Plan for the Cure My computer's working again! Part II of the above series of...
Office Max has two sites where you can upload personal picture[s] of your face [or others in your family or friends] and create a Holiday video dance. I've...
This GREAT news was posted by Dr. LaVonne Veatch Goodman from the HD Drug Works on Hunt Dis last night. Check HDSA's website www.hdsa.org or the Hereditary...
For those have haven't received this exciting bulletin from HDSA, below is Barbara Boyle's update on the FDA Advisory Committee meeting as promised. WOW 1500...
For those that haven't read Dr. Marsha Miller's excellent article covering the 2007 HSG Clinical Research Symposium for HDSA's website, here's the link: The...
The Greenfield Millis in Indiana has some of THE BEST 100% natural pancake mix and other products and they are very reasonable too! How do I know? Well,...
"Old timers" will remember this song that was played, I believe, at the convention in San Diego. You can hear it sung on the HDSA Central Florida Affiliate...
I went to see my councilor. She had a good idea for me too put ways to cope with HD. I worked on it in the holidays. I really believe it can help all of you…...
Jane Mervar shared a link with me last night on the new video her daughter Jacey recently uploaded to YouTube. I wrote Jacey personally that her heart has the...
This my New Years address. We have lots of hope from this year. Lots of treatments. Lots of new possible cures. We should take stock in knowing this. Every...
I wish I qualified, I could get a 3 month supply of Synthroid $20.00 vs what Medicare is costing! Income To use Rx Outreach, your income needs to be less than...
There are so many great video's on the Internet on HD that I tried finding as many as I could and linked them all to a new website: Huntington's Disease Video...
One of the HD Video Theater links I shared yesterday was this excellent resource video: The Gift of Caring http://www.youtube.com/watch?v=tUPs-Xr5nSw Time:...
Many people have told me that they didn't receive the most recent copy of the HDSA Marker magazine in the mail. Well HDSA now has the electronic version...
I found a bunch of new video's today that, although not HD specific, I'm hoping y'all find helpful. I don't know about some of you, but I'm a visual person....
For any young person at-risk 12 to 17 living in the St. Louis, Missouri area I'm happy to report that there is a teen group for you! St. Louis Chapter At-Risk...
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