Brief SSDI questionnaireThis message was forwarded to me. It was sent to the HDSA Chapters Presidents by Sean Luis, the new Advocacy & Family Service Manager...
I remembered to follow up! The second article about the Jackowski family from Illoinois is published on the Daily Herald news today! Another fantastic...
Thanks to the hard work of the Northwest Chapter of HDSA President, Liz Weber and their board, a Tribute Concert to Celebrate the lives of Woody and Marjorie...
If you have a few minutes, please check the messages out on the HD Map Where We Live. There might be someone you can related to who even lives in the same...
If you were a member of Hunt-Dis, or even a little further back the AOL HD Chats, you'll remember our friend, Julie Sando, who was a member for many, many...
For those living in the CT or NY area's, MRSA is not something to mess with and to have it found in the public schools is outright scary! If you have family...
The 2007 World Congress on Huntington's Disease was held in Dresden, Germany in September. I learned this morning on the HDAC forum that they have the entire...
Hello I would just like 2 say thank you........have read jave blog and found it, dont know what works to use, it was uplifting and sad at the same time but...
As always, when I post something about the HD Map and people looking to communicate with others in their neighborhood, or going through the same HD situation...
You guys have to check it out! It just started up Saturday and I just finished making my profile. Its like a myspace for HD. There's groups, friends for you to...
I'm sharing the HDAC request with everyone with their permission! ======================================================== There are so many thoughts and...
Rich people: fortunate, lucky, selfish, and arrogant? Or highly educated, caring, brilliant individuals? Becoming rich isnt hard, but it does require a bit of ...
Thanks to a friend, the below report was brought to my attention yesterday. As the person who sent it to me said, "this document is very readable in layman's...
Don't we all wake each day with the same thought [hope/prayer] in our hearts/mind that this will be the day the headline will announce "A Cure for Huntington's...
In early 2006 my wife Kath was looking for free finance ebooks on the web. We were both disgruntled about the pay and long dangerous hours in my contracting...
The HD Lighthouse has reviewed the below document and their comments are now posted. A BIG THANK YOU to the HDL editors, Marsha Miller & Steve Ireland, for all...
Once again the HDL is on-top of the latest research news! The HDL commentary on be below RNAi news release has been published: siRNA helps a viral transgenic...
It is never too late or too early to start investing for the future. Of course there will be a lot of advantages if you start investing for the future at an ...
Contrary to most people's experiences, the FOREX market is not a voracious "black hole" that seeks to swallow up your hard earned money. The FOREX market is ...
Today the full US Senate approved the S.1710 Bill containing support for access to taxpayer funded research [my birthday gift I'm sure]! The HDAC has an...
Our own [HDSA NYA and Hoop-A-Thon] Billy Aaron Brown is starring in the world premier of the Headless Horseman on the SciFi channel this weekend. So break...
The below message from Nancy Wexler was forwarded to me. The FDA will be reviewing Tetrabenazine's safety on December 6, 2007. Nancy is urging any patients...
For any young people 9 through 30 living in Northern California, mark your 2008 calendar to attend the NEW Youth Support Group meeting in January. Print out...
Well some New Yorkers and others throughout the country recently were able to attend both the Annual Guthrie Dinner and the first annual Woody & Marjorie...
As most of you know the FDA will have a hearing for Tetrabenazine [TBZ] on December 6, 2007. This hearing will be a Open Public Hearing which provides...
Sorry, I won't post anything else on this subject until after the meeting, I promise! The only reason I'm posting this one is because it gives the mailing...
Probably one of THE most important studies being done in Huntington's Disease [besides PREDICT HD] is the Huntington's Study Group's [HSG] COHORT Study. Why? ...
This was posted on-line yesterday. For anyone participating in the DOMINO study or taking Minocycline, it's important you read the below HDSA coverage. I'm...
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