If anyone lives anywhere the New England you might want to get your parents to
attend this conference so you can attend the youth forum!! Kudos' to the HDSA
New England Chapter for including a Youth Forum with a full day of activity!!!

New England Regional HDSA Chapter's
Annual HD Education Day - Youth Forum Info
Saturday, November 4, 2006
University of Massachusetts Medical School in Worcester, MA.

Source: Fall 2006 Newsletter:
http://www.hdsa-ne.org/Portals/0/Articles/fall06newsletter.pdf
Print out the Registration Form and Youth Permission Slip

Youth Forum $10.00 per child (Ages 8-15) [must pre-register]
Open to: children ages 8 to 15
The Youth Forum will be from 9:00 am to 3:45 p.m. Children must be
pre-registered and will not be allowed to register at the door. All Youth Forum
registrations must also include the signed permission slip found on this
page.[see newsletter]

Youth Forum Schedule
8:30 am - 9:00 am Registration
9:00 am - 9:45 am "Who Are We": Introductory Group Activity
9:45 am - 10:00 am Break (restroom)
10:00 am - 11:00 am "HD 101" presented by Bonnie L. Hennig, MSW, LCSW
11:00 am - 12:00 pm Make Your Own T-shirt
12:00 pm - 1:30 pm Lunch together with the adult conference participants
1:30 pm - 2:30 pm "What's New in HD Research" presented by Dr. Vanessa Wheeler
2:30 pm - 2:45 pm Break (restroom)
2:45 pm - 3:45 pm Group Talk and Activity
YOUTH FORUM

The Youth Forum will run concurrently with the regular conference schedule. It
is open to children ages 8 to 15 who know someone with HD. The goal is to
provide education and support. In addition, kids will feel comforted by knowing
that they are not the only one who is dealing with HD in their family.

In this program, kids will hear a presentation by Bonnie L. Hennig, MSW, LCSW,
Clinical Social Worker at the University of Connecticut Health Center
Huntington's Disease Program entitled, "HD 101: Everything You Need to Know
About HD". They will learn the who, what, when and why about Huntington's
Disease.

The kids will then participate in a recreational activity.

Lunch will be provided together with the adult participants of the annual
conference. After that the kids will hear a presentation by Dr. Vanessa Wheeler,
Assistant Professor of Neurology at the Center for Human Genetic Diseases,
Massachusetts General Hospital. She will present, "What's New in HD Research".
This session will discuss how scientists are looking for a cure and the latest
information available.

The group will then have a chance to talk about what they have learned, ask
questions, share stories and ideas.

CHILDREN WHO PARTICIPATE IN THIS PROGRAM MUST BE REGISTERED BY OCTOBER 23, 2006.
ALL PARENTS/GUARDIANS WILL BE CONTACTED BEFORE THE EVENT TO ENSURE THE FORUM IS
APPROPRIATE FOR THEIR CHILD. ABSOLUTELY NO WALK-INS WILL BE ALLOWED




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