Hey my name is Sam and Iam a 40 years old woman. I was diagnosed
with HD 4 years ago. My sister also has HD and her three children
are at risk.
My Mum died from HD at 55 years old. I live in Sydney, Australia
with my beautiful dog Zack. I am a welfare worker and working at a
crisis refuge with young women.
I was an actor for 20 years.
I have been feeling very alone with this and there is no support
groups here unless you are in the late stages of the disease.
Iam a lesbian and have had a partner for three years who I do not
live with.
The only reason I got the test for HD was because I wanted to have a
child without passing on the Huntingtons gene. Until that time I
had convinced myself that I did not have HD and therefore was very
shocked and devastated by the news that I was positive.
My spirit lost hope at this time and I have only recently felt a
sense of hope when I read a fantastic amazing book called Radical
Forgiveness. This has given me a sense of acceptance around the HD
and there are always different levels of acceptance.
I go along with my life because I have not had a huge amount of
symptoms. The thing I notice the most is my memory and twitching in
my fingers and toes. Probably because I still do the things I love
like bush walking, camping, walking my dog, driving the car and
going to work.
I take 12 fish oil tablets and 1 vitamin e per day because I have
heard that this is beneficial for HD.
I would also love to know other alternative health information
should you have any??
I would love to hear how others deal with HD and look forward to
hearing from you and being part of this group.
chio bellas
Sam