Hi Kara,Welcome to the club. I have a brother in Reno,
Neveda. We are from California and live in Missouri
now. My husband has HD, early stage, and his mom and
aunt are in the late stages.We have three at-risk
kids. I understand why you might not want tested. As a
parent of at risk kids I can understand why you worry
about guilt. My husband worries so much about that.
However, I will share with you that finding out about
my husband has given us so much hope and knowledge of
what we are up against. We were clueless as to why
certain things were happening, but now we know and
knowledge is power. However, it is your choice no one
elses. Feel free to vent and cry or smile and laugh
with your new friends-people living in the same boat.
Welcome!!!
Ginnie

--- Kara <leostar_2003@...> wrote:

> I'm new to this, but I figured it was probably time
> for me to be
> around someone that knows what I am going through.
> My name is
> Kara. I just turned 20 and I live in Reno, Nevada.
> My Grandma is
> in the final stages of HD, and my Mother is in the
> beginning
> stages. Late Onset HD runs in our family so we
> don't start showing
> symptoms until our mid-50's. Upon her diagnosis my
> mother started
> to drink and smoke heavily, and blames herself for
> every little
> emotional crisis I might have even if it has nothing
> to do with any
> of the HD stuff. I am scared to get tested because
> I am afraid that
> my Mom will blame herself even more. I am also the
> only person I
> know with the prospect of HD. None of my friends
> even really know
> what it is, and when it comes up in any Biology or
> Psych class and I
> tell my teacher that my Mom has it, I am looked at
> like either a
> science experiment or they start questioning
> me..nonstop. So I
> don't even offer up that information anymore.
> Basically, I can't
> talk to anyone. I hope to make some friends here
> and I am glad that
> there are places that we can go to talk.
>
> Thank you,
> Kara
>
>
>


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