Hello Lori,
My name is Jennifer and I am so sorry that you are going through this. My
husband is also showing signs of huntington's. We have not had testing done yet
so I don't know how long it takes. We have ond little boy and I worry all the
time about him. My husband and I are 29 so he is showing signs early. his
father passed away 4 years ago of huntington's. We plan to have my husband
tested soon. I know that nothing I can say will make this better but we find
comfort in God. I don't know what you believe and I don't want to preach to you
but it makes us feel better knowing that we are not walking this road alone and
that when we feel that we can no longer walk under the weight of this burden
that God will carry us through. I cannot imagine what you are going through but
I understand what your husband may be feeling. He proably doesn't want to face
the possibility of losing you to this disease but he dose need to talk to you
about it. There are alot of great support groups for people with hunnington's
and their family. I know that I had a hard time talking to my husband about
hunnington's but he came to me and said that he really needed me to talk to me
and I had to get over what i was feeling because no matter how i felt it could
never be as bad as what he was feeling. I am very scared for our future and I
know that you are too. Please feel free to email me back if you want to talk
again I will do whatever I can. I will be praying for you.
Jennifer