Ok i'll tell a bit about myself. I'm 28 years old,married and i have
a 3 year old daughter. I have a sister, she is 26 years old. My
sister tested positve for H.D and i tested negative.
For years me and my sister knew there was something wrong with our
mum. She changed, she got more angry, she walked differently,
hesitated when she tried to pick things up. All this time we didn't
know what was wrong with her.
We found out 3 years ago that there was H.D in the family. Our mum
told us this herself, she said that my uncle had it and she thought
we should know. We asked if it was hereditory, she said yes, but her
exact words were " you two are ok, u won't get it, because i haven't
got it". We knew she had got it though, she had all the classic
symtoms. We didn't argue with her at the time, we were too scared to.
Me and my sister decided to have the test done, we needed to know.
Waiting for the results was agony though. I was negative but my
sister tested positive. It was heartbreaking seeing my sister cry the
way she did as we are so close. Don't get me wrong i was relieved to
be negative, mainly for my daugters sake. For 3 years i have had such
guilt because i was negative, i think this has been a main factor in
why i suffer with depression.
None of the family know we had the test, including our mum. My
sister just doesn't want anyone knowing and i have to respect her
decision. Sometimes the secrecy gets to me though.
My mum is in denial, she won't admit shes got H.D, we tried
confronting her about 12 months ago but she still insisted she hadn't
got it. We have to stand by watching her get worse, we are powerless
to do anything.We have been told that when the time comes and she
can't look after herself, we'll have no choice but to get her
sectioned. Every time i see my mum shes getting worse, shes very
unsteady, her speech is terrible,she chokes and has trouble
swallowing. Two days ago she fell down a few steps and sprained her
ankle.
At times i feel so alone, like i have no one to talk to. I can't talk
to my mum for obvious reasons and i don't like raising the subject to
my sister because of her positive result. Every now and then i have a
cry, it makes me feel better, letting my emotions go
I need help, i don't know what to do about my mum. Should i try
confronting her again? Or let her carry on living her life till she
has no choice but to go into care? I'm so scared of confronting her
though, afraid she will turn on me or worse never speak to me again.