Hi

thanks for your emails, so is there any chance at all then that i could get HD
with no family history?
I know my dad has seen a neurologist afew times in the past as he gets tingling
and numbness sometimes but nothing has been found wrong with him and he shouldnt
have HD as his mum is 67 and is healthy and his dad died at the age of 70 from
cancer so both of my dads parents have not got HD.
I too get jumpy movements in bed but i know thats just because im half asleep
and its nothing serious.
I am quite forgetful recently which worries me, but my behaviour is normal, i
dont seem to stumble or be clumsy or anything.
Someone i spoke to about HD awhile ago definately said my dad and my nan could
have the HD gene and not the illness and i could get the illness that doesnt
make any sense.
I have read that 4,800 in the UK have HD and in 3% of cases there is no family
history maybe due to adoption or other family members dying early of other
causes, but i know my family history and i am definately not adopted.
So why do i keep constantly worrying? if i went to see a neurologist he wouldnt
see any jerky movements with me as i get a few slight movements 3-4 times a day
and they are very very slight.
When people say that early symptoms of HD are slight uncontrollable jerky
movements what does that mean can you describe what the movements are and how
does your body move and how many seconds are minutes do these movements last
for?
I wish you good luck with your test results it must be very hard doing it
knowing that you could have HD and im sorry that your sister has tested positive
she must be taking it very hard.
So do people with manage to live afairly normal life for a few years or is it
very severe for 10-15 years?.
It seems such a cruel disease and i would not want it, i hope they can found a
cure for it soon.
I would know though wouldnt i if there was a family history of the disease? as i
have read some people have the symptoms for upto 10 years before a diagnosis of
HD is made this is true when people are not aware that it runs in that family.
Apparently personality changes can happen 10 years before the onset of the
disease, ive just been reading up on it alot.
But why am i worrying just because i saw someone on tv have it i think i may
have it too?
I mean you are different you know it runs in your family as your dad sadly
passsed away with it but my parents havent got it so why am i worrying i
probably have a 2-4% chance of having it.
I know why i worry so much its because i was born 2 months early and had to stay
in hospital for amonth, but apart from being born with asthma ive never had any
difficulties with anything, if there was something wrong with my brain when i
was born they would have found it, i dont think being born early can cause you
to have HD can it? as the only way you can get it is if you inherit the gene
which i havent i dont think or unless its a new genetic mutation which is quite
rare i think to develop it with no family history.
Its just i always thought that being born early causes problems later in life.

Ive said enough for no i think take care and i hope to hear back from you soon.


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