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Re: [One Big Huntingtons Family] Re: Huntingtons Advice Please   Message List  
Reply | Forward Message #687 of 1488 |
Re: [One Big Huntingtons Family] Re: Huntingtons Advice Please

Hi Karl,

It is very possible that your movements are just a side effect of the
anti-depressants. It is quite hard to diagnose over the internet, especially
since new information is available everyday in the world of science. I am
currently 21, and at risk for HD (my father passed away last june). I used to
be terrified when falling asleep b/c i would get a sudden muscle spasm, and my
leg or arm would flinch w/o my control. It wasn't until i fell asleep next to
james (my husband) and he kicked me..w/o knowing. My mind was put to ease in
knwoing that at ngiht, when just about to fall asleep, muscles suddenly flinch
b/c the are being relaxed. ahh. I slept better that night than ever before.
So, i definetly understand your concern.
However, it is not possible to have HD if your parents do not have it. There's
no way to just be a carrier either. basically, you either have it, or you don't.
My father had HD, and so each one of his offspring had a 50% chance of getting
it as well. My sister has tested positive, and has already begun showing signs.
Her daughter also has a 50% chance of inheriting it. My brother, on the other
hand, tested negative for the HD gene, so his 2 children are safe. There is no
way they can develop HD. I will begin the testing process in about 2 weeks.
Best of luck-
Shannon "in the states"



Mon Oct 18, 2004 2:57 am

monkeybear83
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Message #687 of 1488 |
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Hey karl You're safe. There's no HD in your family, so you can't get it. If you ever need to talk though, feel free to contact me. By the way, where are you...
shabs96@...
monkeybear83
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Oct 14, 2004
5:00 am

hi shannon thanks for the emails. what it is i get a slight movement of the head, arms and legs which last for about 1 second. last night i got really worried...
Karl Price
karlmprice
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Oct 16, 2004
1:53 am

Hi Karl, It is very possible that your movements are just a side effect of the anti-depressants. It is quite hard to diagnose over the internet, especially...
shabs96@...
monkeybear83
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Oct 18, 2004
2:58 am

Hi thanks for your emails, so is there any chance at all then that i could get HD with no family history? I know my dad has seen a neurologist afew times in...
Karl Price
karlmprice
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Oct 21, 2004
12:31 pm

If you did have HD, then it would show up in your blood work. A brain scan has nothing to do with it. The disease normally progresses for 10-15 years. It...
shabs96@...
monkeybear83
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Oct 22, 2004
2:44 am

hi give me your honest opinion though do you think that i have HD? is it almost impossible to get it with no family history? and you would know wouldnt you if...
Karl Price
karlmprice
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Oct 22, 2004
4:36 pm

I don't often post, but had to say that I will be remembering your test on Wednesday Shannon. It is such a big step for you to take, whatever the outcome - my...
Tom Lister
airtroopertom
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Oct 22, 2004
10:48 pm

Thank you so much! I am so nervous, but excited at the same time. I just hope he can give me good news soon. I am in dire need of it! -Shannon...
shabs96@...
monkeybear83
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Oct 25, 2004
3:11 am

Let us know how you get on. I'm sure everyone on here will be wishing the best for you. Tom ... From: shabs96@... To:...
Tom Lister
airtroopertom
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Oct 25, 2004
7:44 pm

Hello, I was wondering if you would be interested in doing a Female only support group in Florida.. if you would can you please email me privately at...
Tara Bintliff
tara1644
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Oct 25, 2004
7:50 pm
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