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Re: [One Big Huntingtons Family] Re: Huntingtons Advice Please   Message List  
Reply | Forward Message #686 of 1487 |
Re: [One Big Huntingtons Family] Re: Huntingtons Advice Please

hi shannon

thanks for the emails.
what it is i get a slight movement of the head, arms and legs which last for
about 1 second.
last night i got really worried though as my thumb moved from side to side like
it had a muscle spasm or something.
The general twitching that i get apparently thats a side effect of the
antidepressants that i am on so hopefully nothing to worry about.
I know here in the UK that HD effects around 5,000-8,000 people out of the
60million population and i've heard that in 3% of cases that there may be no
family history this may be due to adoption or previous generations dying of
other causes before HD was diagnosed.
But i know 100% that i am not adopted and im not aware of any family members who
died early of other causes or anything.
Someone told me that people can carry the gene and not have the illness, example
my nan and my dad had the gene and not the illness and i could inherit the
illness is this true?
I dont even know what made me think i have HD i just show someone on tv with it
and thought i may have that so for no reason it aint as if i know someone in my
family has it or something.
I have been abit forgetful lately but i think everyone gets that now and again,
my partner doesnt see any weird movements from me and she says my behaviour is
normal and hasnt changed and i havent stumbled or been clumsy or anything.
What are uncontrollable jerky movements? can you tell me please and how long do
the jerky movements last for? i wouldnt say my slight head twitching or arm or
leg twitches that last for 1 second or so or a muscle spasm was a jerky movement
would you?
I mean if i went say to see a neurologist tomorrow he wouldnt see me acting
strange or any abnormal movements.
I also get alot of aches and pains especially in my hands but have never seen
this to be a symptom of HD, could be my depression or anxiety or maybe a side
effect of my pills.

I really appreciate you emailing me and i hope to hear from you again soon.

Take care and hope everything is ok with you.


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Sat Oct 16, 2004 1:53 am

karlmprice
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Message #686 of 1487 |
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Hey karl You're safe. There's no HD in your family, so you can't get it. If you ever need to talk though, feel free to contact me. By the way, where are you...
shabs96@...
monkeybear83
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Oct 14, 2004
5:00 am

hi shannon thanks for the emails. what it is i get a slight movement of the head, arms and legs which last for about 1 second. last night i got really worried...
Karl Price
karlmprice
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Oct 16, 2004
1:53 am

Hi Karl, It is very possible that your movements are just a side effect of the anti-depressants. It is quite hard to diagnose over the internet, especially...
shabs96@...
monkeybear83
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Oct 18, 2004
2:58 am

Hi thanks for your emails, so is there any chance at all then that i could get HD with no family history? I know my dad has seen a neurologist afew times in...
Karl Price
karlmprice
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Oct 21, 2004
12:31 pm

If you did have HD, then it would show up in your blood work. A brain scan has nothing to do with it. The disease normally progresses for 10-15 years. It...
shabs96@...
monkeybear83
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Oct 22, 2004
2:44 am

hi give me your honest opinion though do you think that i have HD? is it almost impossible to get it with no family history? and you would know wouldnt you if...
Karl Price
karlmprice
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Oct 22, 2004
4:36 pm

I don't often post, but had to say that I will be remembering your test on Wednesday Shannon. It is such a big step for you to take, whatever the outcome - my...
Tom Lister
airtroopertom
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Oct 22, 2004
10:48 pm

Thank you so much! I am so nervous, but excited at the same time. I just hope he can give me good news soon. I am in dire need of it! -Shannon...
shabs96@...
monkeybear83
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Oct 25, 2004
3:11 am

Let us know how you get on. I'm sure everyone on here will be wishing the best for you. Tom ... From: shabs96@... To:...
Tom Lister
airtroopertom
Offline Send Email
Oct 25, 2004
7:44 pm

Hello, I was wondering if you would be interested in doing a Female only support group in Florida.. if you would can you please email me privately at...
Tara Bintliff
tara1644
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Oct 25, 2004
7:50 pm
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