DORI, SORRY ABOUT YOUR SISTERS. I REALLY AM. WHEN MY
DAD PASSED HE WAS 48 AND WAS SKIN AND BONES. MAY I
ASKED YOU A ?? WOULD SHE WANT A FEEDING TUBE?? I AM
SORRY IF YOU THINK I AM RUDE!! TRY TO FOLLOW HER
WISHES! BEFORE SHE GOT SICK. A FEEDING TUBE WILL ONLY
PROLONG HER SUFFERING. WHO WANT'S TO GO THREW LIFE.
NOT BEING WHO THEY ONCE WERE? IT WOULD BE DIF, IF
THERE WAS A CURE. BUT THERES NOT. AS FAR AS MOST DRS,
GO THEY WILL HOOK ANYBODY UP TO ANYTHING TO MAKE THERE
LIVES EASYER. THE ONLY THING THATS CHANGED WITH HD IS
YOU CAN GET TESTED NOW! NO DR. KNOWS HD LIKE A HD
FAMILY. YOU ARE THE ONE TO TELL THE DRS. WHAT TO DO!!
MY PRAYERS ARE WITH YOU ALL!! TRACY
--- onebighuntingtonsfamily@yahoogroups.com wrote:
> ------------------------ Yahoo! Groups Sponsor
>
> There are 2 messages in this issue.
>
> Topics in this digest:
>
> 1. Re: HELP!!!!!!!
> From: terrijerome82
> 2. Questions?
> From: "rosey" <squashergrl@...>
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
> Message: 1
> Date: Fri, 06 Feb 2004 00:13:22 -0000
> From: terrijerome82
> Subject: Re: HELP!!!!!!!
>
> --- In onebighuntingtonsfamily@yahoogroups.com, dori
> derricotte
> <dori_34@y...> wrote:
> > Hi Everyone,
> > I have 4 sisters with
> Huntington's disease. I
> have some questions. Does anyone out there use
> Creatine? Does anyone
> know of any other new medications beingused on HD
> patients? Im really
> worried about one of my sisters, she down to 85lbs.
> The doctors can't
> put a feeding tube in, because she moves to much, is
> there anyone out
> there that has successfully used a feeding tube? Is
> there a
> medication out there that can help her chorea? Any
> help will be
> greatly appreciated!
> >
> > your friend,
> > Dori
>
>
> dori
>
> don't know much bout creatine
> i do take CoEnzymeQ10 it works for me
> my mom is on a feeding tube it is just like being
> fed thru a iv it
> has the same affect
> >
> >
> > ---------------------------------
> > Do you Yahoo!?
> > Yahoo! Hotjobs: Enter the "Signing Bonus"
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> >
> > [Non-text portions of this message have been
> removed]
>
>
>
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
> Message: 2
> Date: Fri, 06 Feb 2004 03:47:27 -0000
> From: "rosey" <squashergrl@...>
> Subject: Questions?
>
> Hi group I haven't been here in a long time. Last
> time I was here I
> was just at risk. Now I know I am positive. I have
> also had a
> daughter before I knew for sure. I have known for
> about 6 months now.
> I had 1 appointment with a nueroligist and another
> next week. He
> isn't all that caught up on hd and my family that
> does have it has
> not been doing much preventive care. I am just
> wondering if there are
> vitamins i should take. Any diet restrictions or
> exercises that
> help . I also wonder about disibility . how do you
> go about getting
> that? I have probably been having symptoms the last
> 5 years. Now i
> have muscle spasms all throughout my body. I spill
> everything and
> can't remember anything. I also notice i am having
> some speech
> problems...any advice i can get would help greatly.
> I have a very
> suupportive hubby and his family is wonderful but
> really has no idea
> what i have...they have never seen it. My
> hubby knew we he met me and also when we married.
> Well i will look
> forward to some good advice.
>
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
>
>
>
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