If you're having speech problems I suggest seeing a speech dr.


Heres some vitamins.. I've also included related links to that vitamin
and hd
Coenzyme q10
(http://www.coenzymeq10supplement.com/Huntingtons-disease-coq10.htm )
Blueberry extract ( this is from the Parkinson's disease page but also
includes reference to hd
http://www.pdf.org/AboutPDF/nutri_supplements.cfm )
Creatine (http://www.nucare.com/creatanforhu.html )
Tudca (heres a research study link dealing with hd
http://www.stanford.edu/group/hopes/rltdsci/hdnews/t3.html )
Minocycline
(http://www.pharmj.com/Editorial/20000729/clinical/huntingtons.html )
Cystamine
(http://news-service.stanford.edu/news/2002/march6/huntingtons.html )
Trehalose (http://en.wikipedia.org/wiki/Huntingtons_Chorea )
Fish oil (EPA) - http://www.digitalnaturopath.com/cond/C640137.html



Heres an interesting link on fatty acids
http://ness-foundation.org.uk/Lipids-in-Huntingtons-disease.html
Weight gain strategies & alternative therapies for hd (click on
nutritional recommendations) -
http://www.uihealthcare.com/depts/med/psychiatry/neuropsychologylab/hind
sight00.html


Some self care facts from a cnn web site
(http://www.cnn.com/HEALTH/library/DS/00401.html dont suggest this site
for drug questions.. )
Having Huntington's disease presents a number of challenges that require
daily or regular attention. The following steps may improve how you
feel:
* Exercise regularly. People with Huntington's disease who
exercise regularly tend to fare better than those who don't, and
physical activity can help you feel mentally and physically better. Keep
your home free of sharp, hard objects in case you fall while moving
around. Consider wearing special padding to protect yourself from falls
that may happen while you're on walks. Wearing sturdy, properly fitting
shoes may help with stability.
* Maintain proper nutrition. People with Huntington's disease may
burn as many as 5,000 calories a day, so be sure to get adequate
nutrition to maintain your body weight, and consider extra vitamins and
supplements. Because Huntington's disease can impair coordination, you
may need assistance when eating. Allow plenty of time for meals. Cutting
food into small pieces or eating pureed food may make swallowing easier
and prevent choking. Dairy products may make you secrete excess mucus,
which may increase your risk of choking. Occupational therapists may
make other suggestions on how to improve your swallowing. Using cups
with lids and suction cups and tableware designed for people with
disabilities may prevent spills.
* Drink plenty of fluids. Huntington's disease can make you
vulnerable to dehydration. Drink large amounts of liquids, especially
during hot weather. Some people find that bendable straws make drinking
easier.

Hope this helps some :-)

-Tara

-----Original Message-----
From: rosey [mailto:squashergrl@...]
Sent: Thursday, February 05, 2004 10:47 PM
To: onebighuntingtonsfamily@yahoogroups.com
Subject: [One Big Huntingtons Family] Questions?

Hi group I haven't been here in a long time. Last time I was here I
was just at risk. Now I know I am positive. I have also had a
daughter before I knew for sure. I have known for about 6 months now.
I had 1 appointment with a nueroligist and another next week. He
isn't all that caught up on hd and my family that does have it has
not been doing much preventive care. I am just wondering if there are
vitamins i should take. Any diet restrictions or exercises that
help . I also wonder about disibility . how do you go about getting
that? I have probably been having symptoms the last 5 years. Now i
have muscle spasms all throughout my body. I spill everything and
can't remember anything. I also notice i am having some speech
problems...any advice i can get would help greatly. I have a very
suupportive hubby and his family is wonderful but really has no idea
what i have...they have never seen it. My
hubby knew we he met me and also when we married. Well i will look
forward to some good advice.





Yahoo! Groups Sponsor


ADVERTISEMENT

<http://rd.yahoo.com/SIG=12cs5ibbb/M=280690.4431914.5687123.4317406/D=eg
roupweb/S=1705094698:HM/EXP=1076125873/A=1969607/R=0/*http:/www.choicetr
ust.com/servlet/com.kx.shared.util.ClickMan2?site=3&clickid=296111812939
087874> click here


<http://us.adserver.yahoo.com/l?M=280690.4431914.5687123.4317406/D=egrou
pweb/S=:HM/A=1969607/rand=611759429>

_____

Yahoo! Groups Links
* To visit your group on the web, go to:
http://groups.yahoo.com/group/onebighuntingtonsfamily/

* To unsubscribe from this group, send an email to:
onebighuntingtonsfamily-unsubscribe@yahoogroups.com
<mailto:onebighuntingtonsfamily-unsubscribe@yahoogroups.com?subject=Unsu
bscribe>

* Your use of Yahoo! Groups is subject to the Yahoo! Terms of
<http://docs.yahoo.com/info/terms/> Service.


[Non-text portions of this message have been removed]