hey vivki,
I know the feeling. My uncle acts the same way. Ever since my father, his
younger brother, was put into a nursing home, my uncle has been drinking
non-stop. I haven't seen him sober in over 3 years now. Though my uncle was
never
tested, I can see the signs of HD in his movements, and I believe that is why he
drinks so much. Perhaps he sees it too but is too afraid of knowing the truth.
HD took my father's life this past june, and since then, the family has net
been the same. I too am at risk and have no yet been tested...I have an
appointment in September to meet with the Huntington's doctor. I know your pain.
Good
luck, and no matter what, keep on smiling. -Shannon
[Non-text portions of this message have been removed]
Beth, I think the thing that worrys me the most is that i have t worry about weather i have the disease but seeing my brothers the way they are just makes me...
hey vivki, I know the feeling. My uncle acts the same way. Ever since my father, his younger brother, was put into a nursing home, my uncle has been drinking ...
Hi everyone, I am new here and i am a little confused on how this works. I basically recieve an email every time you all reply to eachother. Is there a chat...
Dear Colleen, My name is Dori, Huntington's disease is in my family too, my grandfather and my great-uncle died of HD, and when my I was 8 yrs old my mom died...
Wow, Thank you all so much for your responses, you all are so understanding and open. That really means alot. The only people i can talk to about all this are...
Hi Colleen I have just read your e-mail with interest, you say that you want children but won't have any in case you do have H D and do not want to pass it on....
Cuold i just say that even when your clear of HD you could always be a carrier of the disease so if children r on the books there is a test to check the baby...
Viki, if you get the test that tells you if you have the bad gene or not...if the test say you don't have the bad gene, you can never pass it on. What kind of...
Hi Colleen Its Viki, wat can i say my mum had the disease and died at the age of 41 very young i know my only 2 brothers bothe have the disease and im scared...
Dear Colleen, I don't know of any family that the mother or father had HD and non of the children didn't get HD, Its a 50% chance thats pretty high, but...
Colleen, Dori mentioned that she does not know any family where the mother or father had HD and the children did not get it. I am living proof. My mother has...
Wow Pattie, That is awesome, i am so happy for you and your brother. You are so lucky!! You are proof that miracles happen. Thanks for that. Colleen Patti...
Dear Pattie, you misunderstood what i said, I said I don't know of any families that the mother or father had HD, and NONE of the children didn't get HD, I...
Dori, I did understand what you meant and the reason I wrote back was because my mother does have HD, she had 2 children, myself and my brother. We were both...
Hi Patti wat i believe dori means is that both parents have HD but none of the children do i think thats wat she was trying to say. viki Patti LaMarche...
Patti, you are still misunderstanding me, What I was telling Colleen was I personally didn't know of a family that the mother or father had HD, and ALL THE...
Hey Collenn, I understand how you'd be hesitant about allowing your mother to move in. Taking care of a HD patient is very trying. My dad started showing signs...
Hey Vicki, You CANNOT be a carrier with HD. You either have the disease or you don't. There is no passing of the genes if you yourself are not affected. The...
Hey Dori, I'm not sure if that's possible. I haven't been in biology in a while, but i can try and do the chart to figure it out. Either way, I go for my test...
Hi Colleen, I am new at this group experience also - we can sort of learn things together. I am 32 years old and have in the past couple of months learned at...
Hi Colleen, You will find that these sites have a hugs impact on your life and the way you live it. Before I found this family of friends, I felt so alone and ...
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