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Re: [One Big Huntingtons Family] Digest Number 76   Message List  
Reply | Forward Message #546 of 1487 |
APRIL, BOTH OF YOU ARE IN MY PRAYERS. I DON'T KNOW TO MUCH ABOUT JHD
BUT PREATTY SURE IT RUNS THAT WAY ONLY IF SOMEONE ELSE HAS JHD. EITHER WAY I
WILL PRAY FOR YOU!! TRACY
VIC, SORRY ABOUT YOUR SORROW I HAVE A GIRL THAT IS 23 AND HAS NOT BEEN TESTED.
AND A SON WHO'S 17 THAT I HAVE TO TELL I AM HD POSS, THIS YEAR. I ALSO HAVE A
BROTHER THAT IS VERY BAD WITH HD WHO'S 35,SIS THATS NEG, ALSO I WILL BE 40 THIS
YEAR AND DOING GOOD!! I ALSO HAVE BEEN ON NERVE MEDS, TO SO I AM SURE THAT'S WHY
I AM SMILING MORE THAN CRYING LOL!! TRACY

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------------------------------------------------------------------------

There are 2 messages in this issue.

Topics in this digest:

1. I've Been through It All
From: "viki01cr"
2. POSS JHD
From: "April Hynes"


________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Fri, 25 Jul 2003 15:45:12 -0000
From: "viki01cr"
Subject: I've Been through It All

I'm 18 an at the age of 3 my mother started to get really ill. nobody
could help her and nobody knew what was wron. i visited her every
time i could just to see her i didn't understand any of it as i was
only 3.
come just after my 10th birthday i was delivered some very
upsetting news. my mother had died.
now im 18 i ahve 2 brothers and 1 sister
both of my brothers have the disease and my older sister is free of
it. i hav'nt had the test and i don't want it because if i had it id
always be watching what im doing all the time and i dont want that!

i want to get on with my life buts its not easy when you whole
family is suffering
yours
viki



________________________________________________________________________
________________________________________________________________________

Message: 2
Date: Fri, 25 Jul 2003 16:47:47 -0400
From: "April Hynes"
Subject: POSS JHD

Need some help.

I'm 30 at risk with late onset. I have a 3 yr old son who in just the past 4
weeks went from completely normal to having occiptal siezures with major
behavioral disturbances. Both my husband and I had epilepsy so that certainly
could be what this is but I'm FRANTIC that my son has JHD. He's seeing a ped
neurologist on Monday.

Does JHD just come out of Nowhere or does it gradually happen? He's been totally
normal up until recently and I pray it's epilepsy which hopefully can get him
back to his normal lovely self.
----- Original Message -----
From: viki01cr
To: onebighuntingtonsfamily@yahoogroups.com
Sent: Friday, July 25, 2003 11:45 AM
Subject: [One Big Huntingtons Family] I've Been through It All


I'm 18 an at the age of 3 my mother started to get really ill. nobody
could help her and nobody knew what was wron. i visited her every
time i could just to see her i didn't understand any of it as i was
only 3.
come just after my 10th birthday i was delivered some very
upsetting news. my mother had died.
now im 18 i ahve 2 brothers and 1 sister
both of my brothers have the disease and my older sister is free of
it. i hav'nt had the test and i don't want it because if i had it id
always be watching what im doing all the time and i dont want that!

i want to get on with my life buts its not easy when you whole
family is suffering
yours
viki


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Tue Jul 29, 2003 10:07 pm

sweetncute_1963
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Forward
Message #546 of 1487 |
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APRIL, BOTH OF YOU ARE IN MY PRAYERS. I DON'T KNOW TO MUCH ABOUT JHD BUT PREATTY SURE IT RUNS THAT WAY ONLY IF SOMEONE ELSE HAS JHD. EITHER WAY I WILL...
TRACY BRADY
sweetncute_1963
Offline Send Email
Jul 29, 2003
10:07 pm

Hey Tracy! How are you? I miss our convos so much. How is your mother holding up? And your delightful brother? How's he been? I hope all is well, and keep in...
shabs96@...
monkeybear83
Offline Send Email
Aug 2, 2003
1:07 am
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