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onebighuntingtonsfamily · One Big Huntingtons Family - Support from those who have been there.
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Reply | Forward Message #545 of 1487 |
Need some help.

I'm 30 at risk with late onset. I have a 3 yr old son who in just the past 4
weeks went from completely normal to having occiptal siezures with major
behavioral disturbances. Both my husband and I had epilepsy so that certainly
could be what this is but I'm FRANTIC that my son has JHD. He's seeing a ped
neurologist on Monday.

Does JHD just come out of Nowhere or does it gradually happen? He's been totally
normal up until recently and I pray it's epilepsy which hopefully can get him
back to his normal lovely self.
----- Original Message -----
From: viki01cr
To: onebighuntingtonsfamily@yahoogroups.com
Sent: Friday, July 25, 2003 11:45 AM
Subject: [One Big Huntingtons Family] I've Been through It All


I'm 18 an at the age of 3 my mother started to get really ill. nobody
could help her and nobody knew what was wron. i visited her every
time i could just to see her i didn't understand any of it as i was
only 3.
come just after my 10th birthday i was delivered some very
upsetting news. my mother had died.
now im 18 i ahve 2 brothers and 1 sister
both of my brothers have the disease and my older sister is free of
it. i hav'nt had the test and i don't want it because if i had it id
always be watching what im doing all the time and i dont want that!

i want to get on with my life buts its not easy when you whole
family is suffering
yours
viki


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Fri Jul 25, 2003 8:47 pm

thehynesfamily
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Message #545 of 1487 |
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Need some help. I'm 30 at risk with late onset. I have a 3 yr old son who in just the past 4 weeks went from completely normal to having occiptal siezures...
April Hynes
thehynesfamily
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Jul 25, 2003
8:46 pm
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