CONGRATULATIONS to all of us for having Steve Ireland as a new Member of the
HDSA Board of Trustee's!!!
Steve, from the HDAC and HD Lighthouse, certainly understands the needs of HD
families and I'm sure he'll become our voice on the Board!!! [Great picture of
you in this eNewsletter Steve!]

Just posting this email for anyone who is not on HDSA's mailing list. If you
would like to receive future eNewsletters from HDSA, you can sign up here:
http://www.hdsa.org/contact-us.html.

The eNewsletter indicates that the 2008 HDSA Convention Workshop documents can
now be found on HDSA's website, however I looked everywhere and couldn't find
them. I've written HDSA asking for the direct link. The eNewsletter states
"Videos of the Family Care Forum and the Research Forum will be available in the
near future." For anyone not reading this message in HTML format the direct
link for the July 2008 HDSA eNewsletter is
http://www.hdsa.org/images/content/1/1/11300.pdf

----- Original Message -----
From: Barbara Boyle
To: jemiller@...
Sent: Monday, July 21, 2008 5:18 PM
Subject: HDSA - July 2008 E-Newsletter




Dear Friends,

Attached please find a link to the latest HDSA E-newsletter, with
important research, advocacy and fundraising news, an introduction to our new
national trustees and a recap of our very successful convention in Pittsburgh.
We believe that we are making great progress and we know that with all of us
working together as a team, the answers that we seek are certainly within reach.

I, also, am looking to enlarge this team and I ask you to consider joining
me by making a donation, by writing letters to your family, friends and
acquaintances, by speaking to clubs or organizations within your town and by
delivering an "The Answers Are Within Reach" proposal to corporations and
foundations within your area. We will provide the materials, but you need to
provide the "face and the reason" for helping as there is no one more important
than you to tell our story.

I hope you're enjoying the summer and I look forward to hearing from you,
(212-242-1968 extension 216), seeing you at an HDSA event in the next few months
and working with you to making this the last generation with HD.




Best regards,




Barbara


Click here to view the latest HDSA E-Newsletter.



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