Remember Patient Power's January 23, 2008 excellent broadcast "Understanding
Huntington's Disease" featuring Dr. Jane Paulsen
[http://www.patientpower.info/listenhealthtopicdetails.asp?showid=HR012308&To]?
Well now they've added 3 more broadcasts on HD to be featured next week! I
received this from the IAH earlier this week. HDSA now has a link to the
attachment on their website. Remember you can call in or email any questions for
each segment or speakers ahead of time, see below for details....and please
share this with all HD families!

From: Julia Youssefnia
To: iha@...
Sent: Wednesday, May 28, 2008 3:49 AM
Subject: Next Week: Live webcast series on Huntington's Disease


Dear Dr. Dommerholt,

I wanted to make you aware of an upcoming webcast series by the health advocacy
program, Patient Power, discussing Huntington's Disease with medical experts in
the field. The shows will air live at noon US Central Time Monday, June 2nd
through Wednesday, June 4th, at www.patientpower.info. Listeners may call in
with their questions for the featured doctors live or e-mail questions ahead of
time. I know your members would gain valuable information from the show, and I
sincerely hope you can pass this message along to them via your website and/or
newsletters. As always, all of our shows are entirely free for downloading or
streaming.

Further information is below and attached. Please let me know if you have any
questions, or if I can be of assistance.

Best,

Julia Youssefnia
Patient Power
julia@...



SERIES ON HUNTINGTON'S DISEASE

June 2nd - 4th 2008



Patient Power® is recognized for its dedication to educating patients about
illnesses that are not covered by mainstream media. One such illness is
Huntington's Disease (HD), also commonly referred to as Huntington's chorea. HD
is a neurodegenerative disease that breaks down motor skills and cognitive
abilities, and causes various emotional and physical changes like depression,
uncontrolled movements, moodiness, obsession, compulsion, and even rage. Join us
for a series of three webcasts, with leading experts from around the country.



Monday, June 2nd - "Juvenile Huntington's Disease":

Juvenile Huntington's disease is rare, but certainly not unheard of. It can
affect adolescents any time between infancy and young adulthood. Join this
webcast to hear why symptoms of juvenile HD vary from that of adults. Hear from
two leading experts, Dr. Martha Nance and Dr. Sandra Kostyk. Both experts will
discuss the latest in the HD numbers affecting children, genetic testing, and
the importance of a team approach for this condition.



Tuesday, June 3rd - "Huntington's Disease in the Prime of Life":

This program will address issues surrounding Huntington's disease in the prime
of life. Why does this disease vary in the rate of progression? Are there
lifestyle factors that play a role? Join medical expert, Dr. Karen Anderson, who
will answer your questions about coping with HD in the prime of life, concerns
over child safety around HD parents, HD patients depending on others, and you'll
also hear Dr. Anderson separate myth vs. facts.



Wednesday, June 4th - "Huntington's Disease Research and Progress":

Researchers are making progress with Huntington's disease, as ongoing research
has been underway. Hear from two leading HD experts, Dr. Jody Corey-Bloom and
Dr. Joseph Jankovic, as they discuss the Memantine clinical trial, where we are
headed, and current and future clinical trials. This discussion is designed to
answer your questions about research and progress. Don't miss the chance to ask
leading experts the questions that matter the most!

HOW TO PARTICIPATE:

Listen live at www.patientpower.info at 12 pm to 1 pm Central Time

Email questions to questions@...

ABOUT PATIENT POWER:

Patient Power debuted in February 2005 and is a weekly show hosted by Andrew
Schorr, ten-year leukemia survivor, patient educator and patient advocate. The
show features renowned medical experts on topics that include cancer, pain,
diabetes, and heart specialists, as well as experts in clinical trials and top
pharmacists. The show serves to bring patients together in a radio and Internet
community to provide information about available treatment options. Patient
Power takes questions from callers and Internet listeners on topics such as how
to find the right doctor, how to advocate for effectively, when to get a second
opinion from a specialist and how to evaluate one treatment option over another.



Over 400 hours of replays are available for downloading, streaming or podcasting
at www.patientpower.info. You can search by date, by topic and by guest.








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