Hi folks, My 11yo son's 6-week blood test for 6mp came back "a little low" (whatever that means), and he's been instructed to go up to 75mg. I'm curious how...
Jean, I've been at 50mg for a while now. They run this Prometheus test which measures how much beneficial 6mp metabolizes in the body. If it's low, they can...
I know that we were told otherwise at last month's meeting, but a parent whose child is treated by Dr. Sandborn at Mayo sent me this info today: "Sandborn told...
I believe I may have GERD, or something like it, and would appreciate any recommendations for an "adult" GI. (Plus, I'm due for another colonoscopy in '07...
Jean, I always recommend the same person when people ask for a referral. She may not be geographically convenient for you since she is located in Los ...
Thanks, John! ... ============= Jean, I always recommend the same person when people ask for a referral. She may not be geographically convenient for you...
Hi Jean I know my sister Amy really likes her new GI, and he has a great bedside manner and has really taken time and found the real problems for her. He is...
Hi Jean! My sister is right, I LOVE my new Doc. His name is Jay Diliberto and he is in Huntington Beach. He has given me more answers in the last 2 weeks...
Welcome to the Orange County CCFA support group! I have an 11yo boy with Crohn's disease and just recently joined this support group, too. I met a really...
I met Maureen at the patient conference in April. She recently contacted me and I encouraged her to join the group. She tried to post to the group but was...
I had met one of your members at the Long Beach CCFA at the Long Beach Convention Center in April 2006. I wrote John with some questions since I have no one I...
Has anyone with CD in this group had experience with the balloon catheter procedure for improving a strictured area? If so: Where was your stricture (i.e. how...
Join your team and help find a cure! Hello OC CCFA, I have created the Orange County CCFA Support Group team "The OC" for the CCFA 5K scheduled for August...
Reminder from the Calendar of oc_ccfa http://groups.yahoo.com/group/oc_ccfa/cal Support/Information Group Meeting Wednesday July 19, 2006 7:00 pm - 9:00 pm ...
oc_ccfa@yahoogroups.com
Jul 19, 2006 7:15 am
326
Hi Maureen, My name is Leah and i'm 23 years old. I have CD (crohn's disease), although when i was first diagnosed i was told i had UC, but that was changed a...
Reminder from the Calendar of oc_ccfa http://groups.yahoo.com/group/oc_ccfa/cal Support/Information Group Meeting Wednesday July 19, 2006 7:00 pm - 9:00 pm ...
oc_ccfa@yahoogroups.com
Jul 19, 2006 8:10 pm
329
Hi Everyone, I'm Patrice. I was diagnosed with Crohn's Disease three years ago and I seem to be doing okay. I attended the meeting yesterday (7-19-06) and I ...
Welcome to the group, Patrice :) I was glad to meet you and your parents last night at the meeting. It's great that they are so supportive. While I've only...
Forgive my memory lapse, but the name of the gal escapes me who was asking about nutrition drinks at last night's meeting. I've got some info to offer that I...
Hi Patrice, My name is Leah. I am 23 years old and like you, have CD, was diagnosed 3 years ago! I was attending UCI, but have had to leave uci because i've...
Jean, Hi. My name is Leah. I'm 23 years old and was diagnosed with CD 3 years ago. My last 3 scopes (one endoscopy and 2 colonoscopies) i woke up screaming...
Hi Patrice! It was nice meeting you on Wednesday night. Hope to see you at the meetings in the future! Amy neongypsie2 <Nasicha@...> wrote: Hi Everyone, ...
Hi Patrice It was nice chatting with you at the meeting the other evening. I am so glad you made the drive down to The OC, I am sure you will find it...
Hi, My 17 year old son, Josh, has IBD. Recently, he developed a very blood shot eye. We took him to an opthamologist after a few weeks, because a doctor...
Hi Barbara, Here's an excerpt from the book "Crohn's Disease & Ulcerative Colitis" by Fred Saibil, MD: "Eye disease, associated with either IBD or its...
I know I set off some alarms when I mentioned the info about Remicade worsening strictures for some people. Here's the link to one recent bit of info on this...
Thanks Casey! It was so helpful to meet you and Amy at the Meeting. I'm already making friends and feeling a big improvement. I talked to my Dr. and he took me...
Please raise your hand if you plan to attend the CCFA 5K walk/run next month at UCLA. I'm curious how many of "us" will be there. I know John S. is working on...
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