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oc_ccfa · Orange County CA CCFA Support Group
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remicade help?   Message List  
Reply | Forward Message #99 of 902 |
first off I would like to say that the last meeting was nice and it
was a pleasure to meet people who are kind of going through the same
things i am.

my symptoms have not been any better since my flare up in the
summer. prednisone, and all these other meds just seem not to work
but for some odd reason i just can't sleep through the night. so
tuesday i am going in for this remicade thing. can someone just
explain to me what it actually does and if so does it help right
away. i would just like once to lay my head down and not wake up
until the morning time to go to the bathroom, problems would be
solved in my book if that could happen.

i only have my rectum left and 20% of it is inflammed, it's hard cuz
i don't see what is so hard to treat about that. any help would be
great and how often do i do this remicade thing. can't attend the
next meeting but i plan to attend more in the future. any help would
be awesome. thanks.

steven schaefer






Sat Jan 7, 2006 10:59 pm

strikemecold
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Message #99 of 902 |
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first off I would like to say that the last meeting was nice and it was a pleasure to meet people who are kind of going through the same things i am. my...
Steven Schaefer
strikemecold
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Jan 7, 2006
10:59 pm

Steven, I don't have any words of wisdom for you, but if it helps at all, you are in my prayers. My wish is that they find a way to ease your struggle and get...
Sylvia Quittman
essbecue@...
Send Email
Jan 7, 2006
11:39 pm

Steven, let me know how the remicade goes! I'm going to be talking to my doctor on Monday about it, but I have a similar tissue with inflamed tissue that just...
emilycron
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Jan 8, 2006
8:33 am

sure thing. i have heard nothing but good things about it so hopefully something will finally work for me. i start school on the 17th and I really want to find...
Steven Schaefer
strikemecold
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Jan 8, 2006
7:52 pm

Hi Steven I've had many Remicade infusions, I ended up being allergic to it, drastically by the 6th infusion, I believe, but it truly worked for me. You will...
Casey Smith
caseylsmith
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Jan 9, 2006
5:17 am

Hi Steven, Good luck on Tuesday with Remicade. I've been on it for 1 year now. Casey described it very well. It's about a 2-3 hour infusion process. You may...
Wagner, Jon
wagnerjon
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Jan 9, 2006
4:51 pm

I believe that the remicade infusion has helped me. It's wonderful. Im currently sleeping better and not getting up the multiple times I was. My bowles are...
Steven Schaefer
strikemecold
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Jan 18, 2006
7:18 pm

Steven, Good for you...glad it's working well! As far as length of time you should go on Remicade, it pretty much depends on your experience. If your...
Wagner, Jon
wagnerjon
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Jan 19, 2006
12:46 am
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