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oc_ccfa · Orange County CA CCFA Support Group
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New stuff on CCFA site!   Message List  
Reply | Forward Message #713 of 908 |
Re: [oc_ccfa] New stuff on CCFA site!

Hi Janice
 
I have a kids support group (all ages) and we actually go on outings instead of a sit down group. I am also working on a sit-down support group with CHOC but it is slow going. Feel free to pass my info on to the family and I can put them on my list.
 
Kristen


Janice McNeill <jmcneill4@...> wrote:
Is anyone aware of a support group in orange county just for teenagers?  I have a friend with a 15 year old recently diagnosed with Crohn's and I thought someone in the group might know...thanks.        Janice McNeill
----- Original Message -----
From: Amy
Sent: Tuesday, March 18, 2008 7:22 PM
Subject: [oc_ccfa] New stuff on CCFA site!

On the Web site today:

Share your Thoughts about Crohn's and Colitis: Visit Our New Online
Community

We know living with Crohn's disease or ulcerative colitis can be
difficult, but the right resources and support can make day-to-day
living easier. Join our newly launched, free online community to get
the support you need to manage your condition or help a family
member cope. Participate in discussion boards, share your story, and
much more. The 500th and 1,000th registrants will receive a CCFA
gift pack. Visit the community today!

Legislative Action Alert -- Support NIH Funding Amendment
Please support an amendment being proposed to the Senate this week
that would provide significant new funding for the National
Institutes of Health (NIH). The amendment would authorize an
additional $2.1 billion for the NIH in fiscal year 2009, bringing
the agency's total funding up by over 10 percent. You can help
support this announcement by contacting your Senators today. Take
action now!
Also:

Inflammatory bowel disease linked to poorer outcome from C.
difficile infection

Colectomy often required for children with severe ulcerative colitis

We distribute this e-mail to announce changes made to the Web site
during the week. This should help us all to better serve our
members and to understand the face we show to the world via the
Internet.

For the most current information on topics of interest to our
members, particularly research and medicine, be sure to always check
the Web site first. We have many interesting and exciting stories
in development that will be posted in the coming weeks and months.





Help support Emma in her efforts to raise money for the Crohn's and Colitis Foundation:
 


Thu Mar 20, 2008 7:19 pm

jayniesmom
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Message #713 of 908 |
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On the Web site today: Share your Thoughts about Crohn's and Colitis: Visit Our New Online Community We know living with Crohn's disease or ulcerative colitis...
Amy
amydechene
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Mar 19, 2008
2:22 am

Amy, I had every intention to attend last night, but my physical therapy really knocked me out. I sure hope next month is better. Hope you are feeling well...
Sylvia Quittman
gmsylvie@...
Send Email
Mar 20, 2008
3:23 pm

Is anyone aware of a support group in orange county just for teenagers? I have a friend with a 15 year old recently diagnosed with Crohn's and I thought...
Janice McNeill
games4mum
Offline Send Email
Mar 20, 2008
6:27 pm

Hi Janice I have a kids support group (all ages) and we actually go on outings instead of a sit down group. I am also working on a sit-down support group with...
Kristen Sweaza
jayniesmom
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Mar 20, 2008
7:19 pm

Saw your note, they have a great camp in the summer that has a week and maybe other daytes that is just for kids with Chrons and Colitis, everyone raves about...
John Alexander
visionwind348
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Mar 21, 2008
3:19 pm

Yes! Painted Turtle is great! There is also a camp more geared to teen-agers called www.Rally4Youth.org Painted Turtle is only for CA, parts of AZ and HI....
Kristen Sweaza
jayniesmom
Offline Send Email
Mar 22, 2008
8:17 am

Janice - My daughter was diagnosed with Crohn's when she was 16; she's now 20. Let me know if your friend's child would like to talk to another young person...
Sharon
yjb1@...
Send Email
Mar 21, 2008
2:29 am
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