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Asocol question??   Message List  
Reply | Forward Message #572 of 908 |
Re: [oc_ccfa] Re: Asocol question??

Shannon,
 
I know of someone who cannot take Asacol at all -- makes him VERY nauseous, and once he stopped that med, he felt sooo much better.  At first, his GI was very skeptical, but the cause/effect when he stopped was too coincidental to ignore. 
 
Perhaps going back on the Asacol and seeing how you feel is a good test -- obviously let your doctor know if that's what you intend to do.  It might be wise to also continue the Mesalamine enemas -- I doubt that those would be causing a problem. 
 
Hope you get some relief soon!
 
Jean (Gregory, 12, CD, Imuran, resection slated for 6/19)
 
 
----- Original Message -----
Sent: Tuesday, May 22, 2007 11:15 PM
Subject: [oc_ccfa] Re: Asocol question??

The reason i was thinking it wasn't the Prednisone was because I have
been taking it for a month with no relief. And the very day I didnt
take the asocol I felt so much better. I guess I can just take it now
and see how I feel? I just dont want to go back to how I felt a few
days ago. I cannot function. We have 3 small children and it is so
hard to do it all when I feel so bad. What do you think?

PS. Thanks so much for responding!! I am so thankful to have found
this group. I have really felt so alone and lost in this whole UC mess.



Wed May 23, 2007 3:03 pm

jaj_taber
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Message #572 of 908 |
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I have been taking 3 Asacol 3 times a day for about 3 months as well as the Mesalamine enema at night. And the last 4 days i have stopped. We were out of town...
shannonbenavidez
shannonbenav...
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May 22, 2007
10:10 pm

shannon the prednisone will make you feel good. I would wait until you see your doctor before stopping your medication. that is my humble opinion. michelle...
David Liptz
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May 23, 2007
12:40 am

I agree with Michelle. You won't be on prednisone forever (hopefully) and you need to be sure that you're not going to flare again once you start tapering off...
Jim & Jean Taber
jaj_taber
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May 23, 2007
1:06 am

The reason i was thinking it wasn't the Prednisone was because I have been taking it for a month with no relief. And the very day I didnt take the asocol I...
shannonbenavidez
shannonbenav...
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May 23, 2007
6:16 am

simetimes it takes prednisone awhile to take affect. it took me over three months to respond to anything. I read everyone elses advice, I think they are on...
David Liptz
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May 23, 2007
8:42 pm

Thank you so much everyone!!! I did take both forms of the med last night and today. My stomach has started to burn again so i thought i would take 2 instead...
shannonbenavidez
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May 23, 2007
11:40 pm

shannon I did not know that is was your stomach burning. mine did as well. it was the prednisone that did that. my doctor started me on axid. this helped...
David Liptz
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May 24, 2007
5:07 am

Shannon, I know of someone who cannot take Asacol at all -- makes him VERY nauseous, and once he stopped that med, he felt sooo much better. At first, his GI...
Jim & Jean Taber
jaj_taber
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May 23, 2007
3:12 pm

Shannon, I am wondering if stopping the asacol and the pain getting better is just a coincidence or your body does not agree with it. If you just started the...
Casey Smith
caseylsmith
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May 23, 2007
3:56 pm

Michelle... The pain is in a few places. Right below my sternum (Burning). across my belly at the belly button (Sharp sometimes achy). And down the left...
shannonbenavidez
shannonbenav...
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May 24, 2007
7:53 am

shannon try the antacid, it can't hurt and may help. the achieness is a hard one everyone says it is the crohn's. sometimes the symptons can make me crazy....
David Liptz
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May 26, 2007
12:27 am

Shannon, My daughter has Crohn's, and is currently on Remicade. She had been suffering for a long time; and no other medication worked for her. Initially, we...
Sharon
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May 25, 2007
1:12 am

Hi Sharon, I don't think we've met yet. It's been a few months since I've been to a meeting. My son who is 12 1/2 also goes to Cedars for treatment with Dr....
Jim & Jean Taber
jaj_taber
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May 25, 2007
1:59 am

My daughter also used Remicade. It worked for awhile but then she built up antiboides to the mouse portion of Remicade. It is made of human and mice. She...
Joseph L. Silva
josephsilva48
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May 25, 2007
8:49 pm

Joseph - Since my daughter is on Remicade, I do worry that the same thing will happen to her. I was wondering how long your daughter was on it, and how often...
Sharon
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May 26, 2007
5:47 am

Hi Michelle, How long have you been on Remicade? I know everyone is different. My daughter's doctor mentioned he has some patients that started on Remicade...
Sharon
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May 26, 2007
6:03 am

I have been on remicade for almost a year. I never made it to eight weeks. by the time six weeks came aroun d I was sick again. so I was at six weeks for...
David Liptz
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May 27, 2007
5:11 pm

Maybe you should ask your doctor about Humira. You may have built up antibodies to the Remicade. Joe Silva David Liptz <dmasliptz@...> wrote:...
Joseph L. Silva
josephsilva48
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May 27, 2007
8:16 pm

that is our next step. my docto wants to keep me on remicade as long as possible. michelle liptz "Joseph L. Silva" <josephsilva48@...> wrote: Maybe you...
David Liptz
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May 27, 2007
8:35 pm

What are your main symptoms? Either Crohn's or Colitis. Anyone?? I am still having trouble knowing if i am flaring. My Dr. took me off the Asacol and is...
shannonbenavidez
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Jun 4, 2007
4:21 am

Michelle - Thanks for the information. Sorry to hear that Remicade isn't really effective for you. Hopefully, Humira will work when you're ready to change...
Sharon
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May 27, 2007
8:22 pm
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