Search the web
Sign In
New User? Sign Up
oc_ccfa · Orange County CA CCFA Support Group
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Hear how Yahoo! Groups has changed the lives of others. Take me there.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Asocol question??   Message List  
Reply | Forward Message #570 of 908 |
Re: [oc_ccfa] Asocol question??

I agree with Michelle.  You won't be on prednisone forever (hopefully) and you need to be sure that you're not going to flare again once you start tapering off it.  If you wean off pred and there's nothing else in place to maintain control over the inflammation (Asacol, Mesalamine enemas) you're likely to start back at square one.  Just my 2 cents.
 
Jean
 
 
----- Original Message -----
Sent: Tuesday, May 22, 2007 5:37 PM
Subject: Re: [oc_ccfa] Asocol question??

shannon
the prednisone will make you feel good.  I would wait until you see your doctor before stopping your medication.   that is my humble opinion.
michelle liptz

shannonbenavidez <shannonbenavidez@yahoo.com> wrote:
I have been taking 3 Asacol 3 times a day for about 3 months as well
as the Mesalamine enema at night. And the last 4 days i have stopped.
We were out of town and I forgot my meds. My pain has gone from an 8
to about a 1! I don't have any bleeding, mucous, or diarrhea. And I
am less tired. Im still taking 30 mg of Prednisone once daily.
Should I stop taking the Asacol permanently. My Dr is out of town for
3 weeks and I have an appointment with Dr. Hernandez on June 19th (the
soonest I could get in). All I know is that I feel so much better.
But I don't want to do anything that is going to cause the UC to be
worse. Does anyone have any input??




Wed May 23, 2007 1:05 am

jaj_taber
Offline Offline
Send Email Send Email

Forward
Message #570 of 908 |
Expand Messages Author Sort by Date

I have been taking 3 Asacol 3 times a day for about 3 months as well as the Mesalamine enema at night. And the last 4 days i have stopped. We were out of town...
shannonbenavidez
shannonbenav...
Offline Send Email
May 22, 2007
10:10 pm

shannon the prednisone will make you feel good. I would wait until you see your doctor before stopping your medication. that is my humble opinion. michelle...
David Liptz
dmasliptz@...
Send Email
May 23, 2007
12:40 am

I agree with Michelle. You won't be on prednisone forever (hopefully) and you need to be sure that you're not going to flare again once you start tapering off...
Jim & Jean Taber
jaj_taber
Offline Send Email
May 23, 2007
1:06 am

The reason i was thinking it wasn't the Prednisone was because I have been taking it for a month with no relief. And the very day I didnt take the asocol I...
shannonbenavidez
shannonbenav...
Offline Send Email
May 23, 2007
6:16 am

simetimes it takes prednisone awhile to take affect. it took me over three months to respond to anything. I read everyone elses advice, I think they are on...
David Liptz
dmasliptz@...
Send Email
May 23, 2007
8:42 pm

Thank you so much everyone!!! I did take both forms of the med last night and today. My stomach has started to burn again so i thought i would take 2 instead...
shannonbenavidez
shannonbenav...
Offline Send Email
May 23, 2007
11:40 pm

shannon I did not know that is was your stomach burning. mine did as well. it was the prednisone that did that. my doctor started me on axid. this helped...
David Liptz
dmasliptz@...
Send Email
May 24, 2007
5:07 am

Shannon, I know of someone who cannot take Asacol at all -- makes him VERY nauseous, and once he stopped that med, he felt sooo much better. At first, his GI...
Jim & Jean Taber
jaj_taber
Offline Send Email
May 23, 2007
3:12 pm

Shannon, I am wondering if stopping the asacol and the pain getting better is just a coincidence or your body does not agree with it. If you just started the...
Casey Smith
caseylsmith
Offline Send Email
May 23, 2007
3:56 pm

Michelle... The pain is in a few places. Right below my sternum (Burning). across my belly at the belly button (Sharp sometimes achy). And down the left...
shannonbenavidez
shannonbenav...
Offline Send Email
May 24, 2007
7:53 am

shannon try the antacid, it can't hurt and may help. the achieness is a hard one everyone says it is the crohn's. sometimes the symptons can make me crazy....
David Liptz
dmasliptz@...
Send Email
May 26, 2007
12:27 am

Shannon, My daughter has Crohn's, and is currently on Remicade. She had been suffering for a long time; and no other medication worked for her. Initially, we...
Sharon
yjb1@...
Send Email
May 25, 2007
1:12 am

Hi Sharon, I don't think we've met yet. It's been a few months since I've been to a meeting. My son who is 12 1/2 also goes to Cedars for treatment with Dr....
Jim & Jean Taber
jaj_taber
Offline Send Email
May 25, 2007
1:59 am

My daughter also used Remicade. It worked for awhile but then she built up antiboides to the mouse portion of Remicade. It is made of human and mice. She...
Joseph L. Silva
josephsilva48
Offline Send Email
May 25, 2007
8:49 pm

Joseph - Since my daughter is on Remicade, I do worry that the same thing will happen to her. I was wondering how long your daughter was on it, and how often...
Sharon
yjb1@...
Send Email
May 26, 2007
5:47 am

Hi Michelle, How long have you been on Remicade? I know everyone is different. My daughter's doctor mentioned he has some patients that started on Remicade...
Sharon
yjb1@...
Send Email
May 26, 2007
6:03 am

I have been on remicade for almost a year. I never made it to eight weeks. by the time six weeks came aroun d I was sick again. so I was at six weeks for...
David Liptz
dmasliptz@...
Send Email
May 27, 2007
5:11 pm

Maybe you should ask your doctor about Humira. You may have built up antibodies to the Remicade. Joe Silva David Liptz <dmasliptz@...> wrote:...
Joseph L. Silva
josephsilva48
Offline Send Email
May 27, 2007
8:16 pm

that is our next step. my docto wants to keep me on remicade as long as possible. michelle liptz "Joseph L. Silva" <josephsilva48@...> wrote: Maybe you...
David Liptz
dmasliptz@...
Send Email
May 27, 2007
8:35 pm

What are your main symptoms? Either Crohn's or Colitis. Anyone?? I am still having trouble knowing if i am flaring. My Dr. took me off the Asacol and is...
shannonbenavidez
shannonbenav...
Offline Send Email
Jun 4, 2007
4:21 am

Michelle - Thanks for the information. Sorry to hear that Remicade isn't really effective for you. Hopefully, Humira will work when you're ready to change...
Sharon
yjb1@...
Send Email
May 27, 2007
8:22 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help