Search the web
Sign In
New User? Sign Up
oc_ccfa · Orange County CA CCFA Support Group
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Real people. Real stories. See how Yahoo! Groups impacts members worldwide.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
New Member   Message List  
Reply | Forward Message #321 of 908 |
I had met one of your members at the Long Beach CCFA at the Long
Beach Convention Center in April 2006.

I wrote John with some questions since I have no one I had met with
UC. At the time of the conference, I fortunately was not in a flare
up and now that I have entered one a few weeks ago, I posted the
following questions to John:

Jim & I both hope to attend the 5K. Haven't received much info on it
though for some reason, even though we're members of the CCFA.

I certainly agree that we need a support group in the Long Beach
area. As a matter of fact, this is one of the reasons that I'm
writing you.

You are the only person I have met that is suffering from UC. When
we met at the conference, I was happy to say not in a flare up. As a
matter of fact, my last flare was in 12/05.

But, unfortunately, a few weeks ago a flare decided to visit me.

I was wondering what you do when you have a flare.

I take my Asacol religiously. I take 3 tablets 3xday. When I got
the flare I went up to 4 tablets 3xday, plus a hydrocortisone rectal
enema each night. I let my gastro know, but told her it wasn't
helping as much. Yesterday, she reluctantly prescribed prednisone
(30 mg. for 5 days, then 20 mg. for 5 days & then 10 mg for 5 days).
Hopefully that will take care of it. She thinks that since I have
about 2 flares a year, & she has put me on the prednisone, she thinks
that we might have to change medications. I think she's talking
about 6-MP. Not sure, but should be meeting with her in about a
month. I don't know much about this drug, but from what I've read, I
think I like Asacol better.

I started taking a probiotic late last year & I think they have
helped me in my flare ups. I take one by the company Jarrows-EPS.
Take 2 a day. I've heard about Flora Q. Do you take any probiotics?

Anyway, if there is any info you can give me, I certainly would
appreciate it.

Again, thank you so much in advance

John emailed me this evening & suggested that I write to this group
whereas maybe someone could give me some helpful hints.

I thank everyone in advance if you can assist.

Sincerely,

Maureen







Sun Jul 16, 2006 6:18 pm

maureen_gnzlz
Offline Offline
Send Email Send Email

Forward
Message #321 of 908 |
Expand Messages Author Sort by Date

I had met one of your members at the Long Beach CCFA at the Long Beach Convention Center in April 2006. I wrote John with some questions since I have no one I...
maureen_gnzlz
Offline Send Email
Jul 16, 2006
6:20 pm

Hi Maureen, My name is Leah and i'm 23 years old. I have CD (crohn's disease), although when i was first diagnosed i was told i had UC, but that was changed a...
Star4ever16
Offline Send Email
Jul 19, 2006
9:01 am
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help