Search the web
Sign In
New User? Sign Up
oc_ccfa · Orange County CA CCFA Support Group
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Real people. Real stories. See how Yahoo! Groups impacts members worldwide.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
remicade help?   Message List  
Reply | Forward Message #103 of 908 |
Re: [oc_ccfa] remicade help?

Hi Steven

I've had many Remicade infusions, I ended up being
allergic to it, drastically by the 6th infusion, I
believe, but it truly worked for me. You will be
given an IV, then they start a 3 hour drip into the IV
and speed up the drip as time progresses. They will
monitor you closely, for allergic reaction, blood
pressure, fever, etc. I watched tv during those long
3 hours! If you are on 6mp you shouldn't have an
allergic reaction, I wasn't taking 6mp!

It should truly help your inflammation, but I think it
may take a little time to get the full effect, though
you should get some immediate relief within the first
few days. Some people get immediate relief within
hours, I think it took a week or two for me to notice
it, but after that I could eat whatever I wanted until
the dose wore off about 3-6 weeks later. I'd barely
make it till my next infusion!

I had the infusions done at a Kaiser Infusion Center
in Anaheim Hills and there were alot of chemo patients
getting infusions with me so I felt very blessed to be
getting Remicade and not chemotherapy!

Just email me with any questions,

Blessings,
Casey Smith

--- Steven Schaefer <strikemecold@...> wrote:

> first off I would like to say that the last meeting
> was nice and it
> was a pleasure to meet people who are kind of going
> through the same
> things i am.
>
> my symptoms have not been any better since my flare
> up in the
> summer. prednisone, and all these other meds just
> seem not to work
> but for some odd reason i just can't sleep through
> the night. so
> tuesday i am going in for this remicade thing. can
> someone just
> explain to me what it actually does and if so does
> it help right
> away. i would just like once to lay my head down and
> not wake up
> until the morning time to go to the bathroom,
> problems would be
> solved in my book if that could happen.
>
> i only have my rectum left and 20% of it is
> inflammed, it's hard cuz
> i don't see what is so hard to treat about that. any
> help would be
> great and how often do i do this remicade thing.
> can't attend the
> next meeting but i plan to attend more in the
> future. any help would
> be awesome. thanks.
>
> steven schaefer
>
>
>
>


Love, and Blesings,
Casey Smith


"Those who hope in the Lord will renew their strength. They will soar on wings
like eagles; they will run and not grow weary, they will walk and not be faint"
Isaiah 40:31



__________________________________________
Yahoo! DSL – Something to write home about.
Just $16.99/mo. or less.
dsl.yahoo.com




Mon Jan 9, 2006 5:17 am

caseylsmith
Offline Offline
Send Email Send Email

Forward
Message #103 of 908 |
Expand Messages Author Sort by Date

first off I would like to say that the last meeting was nice and it was a pleasure to meet people who are kind of going through the same things i am. my...
Steven Schaefer
strikemecold
Offline Send Email
Jan 7, 2006
10:59 pm

Steven, I don't have any words of wisdom for you, but if it helps at all, you are in my prayers. My wish is that they find a way to ease your struggle and get...
Sylvia Quittman
essbecue@...
Send Email
Jan 7, 2006
11:39 pm

Steven, let me know how the remicade goes! I'm going to be talking to my doctor on Monday about it, but I have a similar tissue with inflamed tissue that just...
emilycron
Offline Send Email
Jan 8, 2006
8:33 am

sure thing. i have heard nothing but good things about it so hopefully something will finally work for me. i start school on the 17th and I really want to find...
Steven Schaefer
strikemecold
Offline Send Email
Jan 8, 2006
7:52 pm

Hi Steven I've had many Remicade infusions, I ended up being allergic to it, drastically by the 6th infusion, I believe, but it truly worked for me. You will...
Casey Smith
caseylsmith
Offline Send Email
Jan 9, 2006
5:17 am

Hi Steven, Good luck on Tuesday with Remicade. I've been on it for 1 year now. Casey described it very well. It's about a 2-3 hour infusion process. You may...
Wagner, Jon
wagnerjon
Offline Send Email
Jan 9, 2006
4:51 pm

I believe that the remicade infusion has helped me. It's wonderful. Im currently sleeping better and not getting up the multiple times I was. My bowles are...
Steven Schaefer
strikemecold
Offline Send Email
Jan 18, 2006
7:18 pm

Steven, Good for you...glad it's working well! As far as length of time you should go on Remicade, it pretty much depends on your experience. If your...
Wagner, Jon
wagnerjon
Offline Send Email
Jan 19, 2006
12:46 am
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help