Hi Hillary, great news :-) . Like Darren, Bruce's MRI is no change but the seizure also. Touch wood, none since. Hope the house moving has gone smoothly. Take...
Hi Becs, just wanted to say how saddened I was by your news. Hoping it's just one of those temporary glitches & Matt will come right as he can before long. You...
INteresting vaccine trial for gbm New Vaccine Fights Brain Tumors Scientists say a new vaccine has been developed which may be able to fight the most...
Hi Linda Thanks so much for your message. Unfortunately Matt has been admitted to the Mary Potter Hospice for pain management. He has had terrible headaches ...
Best of luck to you Becs, Matt, Liam and Ashleigh. I am thinking of you especially at this hard time. We ahve just been through the hard times with my Dad. I...
Dear Becs, Matt and family, Thinking of you all. Sending prayers to help you get through this difficult time. Take care Cathy and Don ... From: "Rebecca Todd"...
doncederwall
doncedes@...
May 2, 2006 7:06 pm
405
Hi Tracey Very sorry about you father. It sounds as though you have a lovely family and hopefully that will help you and your mum. I was pleased to read that...
Hi everyone, Well after our good news of no change in the MRI and moving into our new house on Friday which all went very smoothly except for going up and down...
Hi Hillary, You have had a very busy time! Nick has only had the one seizure and that is how they diagnosed his BT. However with the tumor being in the left...
Hi Kath, Thanks for that its a great help.Darren has had 5 seizures in total but the BT was only diagnosed after the 2nd one.The other two he has were before...
Dear Hilary, What a hard time you are both having!! We found it was always times of stress that Don had his seizures. Christmas, Weddings, business problems....
doncedes@...
May 4, 2006 1:32 am
410
Hillary, aside from a bracelet I carry a miniature address book with me. Under I, I have made an I.C.E. (In Case of Emergency) entry saying I am a BT patient,...
Hi Mike, Thanks for that great advice I am going to do that.Darren does have a card in his wallet but they never looked at it on Monday but I will programme a...
Hi Hillary, I was thinking along the same lines as Mike mentioned - Have you thought of enquiring with medic alert and seeing if they would do a bracelet? It...
Hi Hillary Yes how scary for you both. Stess aye! How I wish I could give it a big kick up the bum! After Bruce recently having his seizure we are looking at...
Hi Linda, Thanks for that.We are also going to get the medic alert bracelet too.Darren does a lot of mountain biking and its not just a gentle cycle he does...
Hi Becs, I have all the forms for medic alert just need to be filled out by the doctor.I think there is a delay of about 4 to 5 weeks to get one.It would...
Hi Hilary you should be able to get copies of everyting from patient records at tthe hospital. That mightr be easier than the docs sorting it. The radiology...
Hi Hilary, Darren and others We got Mark a medic alert bracelet in December...It was his Birthday present...lol. I picked a form from the GP and she filled it...
Thanks Liz it was lovely meeting you guys at the demo and I will pass on your regards to Matt. Thanks so much for your lovely message. Matt is deteriorating...
Hi everyone an update on how things are going. Dave and I went to the Waikato a few weeks ago to try some alternative therapy..."Colour Therapy". We had to...
Dear Penny and Dave, Pleased to hear your seizures are settling down. We saw a very good Specialist (Dr Frost in Auckland) re medication management. No...
doncederwall
doncedes@...
May 9, 2006 8:40 pm
421
Hi Penny and Dave Great to hear that your seizures have settled down Dave. We have missed the last couple of Headways meetings, Lynda is right in the middle of...
Hi Becs Really sorry to hear that Matt isn't doing so well lately but glad to know he is beng well looked after at the hospice. Not a lot we can say really,...
Hi everyone, If any of you have read or are reading Phil Kerslake's book "Life Happiness and Cancer" we saw on telly last night that he will be appearing on...
Hi Cathy and Don well wouldn't you know it at 1am Dave got rocked by a signifigant seizure! Man ...so we haven't gone away after all. I am really interested in...
Hi Lynda & Chris we haven't ended up going away, seizures got in the way....so I might get to the next meeting...missing the group too. cheers and good luck...
Dear Penny, Perhaps I'm the one with the BT!! The Neurologist is Dr Barry Snow. At least I was close. Mercy Specialist Centre 09 638 9945. Hopefully you'll...
doncederwall
doncedes@...
May 10, 2006 12:04 am
427
Hi Pen and Dave, Sorry to hear you are going through a rough patch with the medication and seizures.Darren is having a few problems too.He had had 5 grand mal...
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