Temozolomide consultation letterHi everyone...well a partial victory may have been won with regard to the subsidy of temozolomide, see the attached document....
Hi there Penny and Dave Whatever the final outcome, well done to you and the others for leading the campaign in this one, congratulations for today's ...
Hi Peter I have uploaded a copy of the file that Penny attached to her message, to the website for the Group. Hopefully you can access it here, after signing...
Hi Dave and Penny Looks like your hard work and persistence is starting to pay off. Congratulations! You guys have been doing a great job. Dr David Hamilton...
cheers Mike and Peter and thanks Denis for putting the file on the NZ Brain tumour web site, I will put it on our Headstart site also thanks Penny ... From:...
Hi Radio New Zealand story: http://www.radionz.co.nz/news/bulletins/radionz/200603021556/3065d5d Pharmac approves funding for brain tumour treatment Posted at...
Thanks again Denis for the help...you are a legend. To hear the interview Dave did with Mary Wilson from Radio NZ's Checkpoint programme todayclick on this...
Temozolomide consultation letterHi Penny and Dave Well done to you both for doing so much to help get things to this point. We will keep fighting! Sharonne and...
Culverwell
Culverwells@...
Mar 3, 2006 8:38 pm
242
Temozolomide consultation lettercheers...thanks very much ... From: Culverwell To: nzbraintumour@yahoogroups.com Sent: Saturday, March 04, 2006 9:38 AM ...
Temozolomide consultation letterYes, well done to you both. Now to get TMZ for reoccurance especially for those who have never had access to it. Mike PS when...
LATEST NEWS a.. ON AIR Date set for Daves documentary. "Million Dollar Tumour" Will screen on Thursday 23 March @ 8.30pm on TV3's Documentary series "Inside...
Hello all, I have spent the morning reviewing the Ruta information and realised I have not been doing it quite right. The Yahoo Ruta group has quite a bit of...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the nzbraintumour group. File :...
nzbraintumour@yahoogr...
Mar 8, 2006 12:54 am
247
Hi Everyone, Hopefully you all now know about the PHARMAC recommendation regarding subsidy of Temozolomide. No doubt many of you were dissappointed to find out...
What a year you have had Dave and Penny!!!....how much can one couple do in a year??? ...Diagnosis/treatment research and huge learning curve on all aspects of...
Hi Liz Firstly the good news..my brother in law is in remission...a long road though as he was in hospital for 6weeks. But now he is on maintenance doses of...
Have done so today Dave. I am off work on 2weeks stress leave, had a trip to Auckland A & E last Thursday. I might add PHARMACS decision was the icing on the...
Hi Linda, Hold in there. I know what a wonderful job you do as a carer and seeing what Penny puts up with I realise how hard your job is. Jackie Blue is...
Hi Penny and Dave We are working on our submission and it will be there before 16 March!! Onwards and forwards! Thanks for your efforts! Sharonne and Wayne ......
Culverwell
Culverwells@...
Mar 9, 2006 12:03 am
253
Hi Penny,Dave and all you BT survivors and caregivers, We are new members and my husband Don is a 10 year survivor who has just been newly diagnosed as having...
doncederwall
doncedes@...
Mar 9, 2006 12:41 am
254
Thanks guys, I already know of 7 or 8 others who are writing so the word is getting out Dave ... From: Culverwell To: nzbraintumour@yahoogroups.com Sent:...
Thanks Dave Yes it's amazing how an anxiety attack and hyperventilating can have you at A&E!! Have you not lost any weight at all througout this Dave? Must be...
Hi Cat good to see you have made your way here from the CancerNZ site :-) have been wondering how you are both going? come back soon Linda ... has just ... ...
Yes I have lost some weight. Went from 130kgs to 117kgs in 3 weeks. Maintained that weight for many months through good eating and exercise but in last 2...
Hi Linda, How are you and the family? Have just sent my submission to Pharmac. Hope it helps. Have had a rough couple of months.(sounds like you haven't had it...
doncederwall
doncedes@...
Mar 10, 2006 7:35 am
259
Hi Cathy, so did Don have a resection again, and unable to to do chemo due to blood counts? I think Temozolomide is generally tolerated better. Will have to...
Dear Linda, When I hear the difficulties you are going through it makes my own situation feel better. Lots of strength and positive thoughts going out to you....
doncederwall
doncedes@...
Mar 10, 2006 7:17 pm
261
Hi everyone Just catching up on the emails and it seems that there's quite a lot of us having a particularly difficult time at the moment. Robyn started her...
Hi Linda Sorry to hear that the anxiety is having you go to hospital. I have had a couple of attacks, but not to that point. And it was the most frightening...
