Hiya Elaine I'm sorry there are no replies for you? Let me know if you want me to post on your behalf a few other sites I'm member of. I'll get back to you on...
hiya, long time no post! I have to have a "limited ct scan" to determine if I can have an epdiural or not for this last pregnancy. My neurosurgeon at wgtn...
I have tried to go back through the messages here and see who put me onto this article (hell, maybe it was OzBT!!!!) but I thought I would put the link up here...
Hi Linda  Have you been getting copies of Glens MRI's? As then you can compare for yourselfs how things are looking, we also found that once the docs knew...
Thanks so much for your moral support Chris, it is so helpful. I am quite concerned that our oncologist has said that Glen should not take TMZ this round if...
Hi Linda The mere fact that you know about pseudoprogression, alternative TMZ schedules and Avastin means you are 2-3 steps ahead of a lot of other caregivers...
Hi Linda, Â We also had the same thought as Chris about the TMZ, as with Stefan the registar said to us after Stefs July scan that proberly the TMZ wasn't...
To be honest I am a little confused about the whole thing, we havent actually been shown Glen's MRI, and I also wondered about the whole psuedo progression...
Linda Just a couple of things - you may have covered them already but just to make sure... 1. Why is your oncologist so sure that the TMZ isn't working? Is...
Ooh, I have just seen that I got Dragan's name wrong, it was given to me over the phone by Glen's oncologist and I can't have heard it correctly! Thanks for...
That is so true, what price a life eh? This has been a very difficult decision for us, given that we now have the means to fund something but that comes at...
Hi Linda, Bruce & I can also recommend Anthony Falkov, and Dragan Damianovich, which is who Bruce currently sees and has done for the past 2.5yrs at...
Hi Linda You are 100% right, it's very much a guessing game. At the end of the day you have to listen to all the professional advice, combine it with your own...
Hi Susan Great to hear Stefan is doing well at the moment - long may it continue! We will keep our fingers crossed for you both for the next scan in Jan/Feb....
Hi Chris, thanks so much for your reply and ideas. We have an appointment to see Dragan Dragonovich at Auckland Oncology partners next Wednesday, so hoping to...
Hi Chris and Lynda  His last round of TMZ was in October and next scan is not until late Jan or early Feb. Mr Wicks was very surprised at the reduction of...
Hi Chris and Lynda  Last round of TMZ was October and havent got a date for next scan yet, it meant to be end of January or early Feb. Mr Wicks was very...
Hi Susan That's great news about the September scan - reduction from 6 to 4.3cm shows the TMZ must be working! Has Stefan completed his TMZ treatment now and...
HI, Â Stefans tumour has also started to return, his scan in July showed a 6 cm regrowth of tumour plus a large amount of swelling and fluid. It did explain...
Hi Linda 1. Avastin: seems very unfair that Roche are providing Avastin to patients overseas on a subsidised basis but offer a straight out "no" to requests...
I have just spoken with Roche, according to them each treatment would cost between $8-10,000, with there being no option for subsidy. Also it would have to be...
thanks so much for your replies and great information. Our oncologist here has suggest we see Anthony Falkov so good to know that you have had a good...
Hi Linda Forgot to add, the contact info for Roche NZ is here: http://www.roche.co.nz/contact/ They have an 0800 no. or you can use the online enquiry form. We...
Hi Linda Can't help you with Auckland oncologists (we are in Wellington) but can confirm that Avastin is approved in NZ for colorectal cancer, but not brain...
Hi Linda, I dont know much about avastin, as Nick has had temodol, however our neuro-oncologist in auckland is Gillian campbell and we find her outstanding. ...
Does anyone know what it costs and what the process of getting it is? Glen's oncologist effectively said today that the Temodal isnt working and that he should...
Hi Angeleen, I am so sorry to hear about your dad passing. It is very cold comfort to be told that your loved one is at peace when you are missing them so...
Angeleen, I am so very sorry to hear your news and how quickly things went downhill. It is such a very hard thing that you are going through and I really feel...
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