Thanks for the info Liz, that helps.

We got a weeks supply from ED this morning, only a 90 minute wait to be

seen!!!!!

Am going to discuss it again once he has his next blood test on Monday.  They

are testing him Mon, Wed and Fri so are in touch with where things are at.  Our

GP has been bloody amazing, so much contact with us and time but hasnt charged

us a cent.  I see there is conflicting info on whether it should be taken on an

empty stomach or not, have been giving it with food so wonder whether trying it

on an empty stomach might be better?







--- In nzbraintumour@yahoogroups.com, <methompson@...> wrote:

>

> NZ Brain Tumour SupportHi

>

> I work in a lab and test warfarin levels (INRs) all the time...Hopefully I can

be of some help here.

> If Glen has been on 15mg of warfarin this whole time, then more time is not

going to increase his level. It only takes 4-5 days for a change in dose to

become effective. So I think Glen actually needs a small increase in dose, then

INRs done every 3 days or so to see if it stabilises in the 2-2.5 range. Taking

Clexane will help prevent any clots meantime, but doesn't affect the INR at all

- it works an entirely different way.  No one actually bleeds on warfarin unless

their INR is about 8...unless they have liver disease or other bleeding

tendencies anyway. So don't let too much time go by before getting the doc to

agree to try another 2mg of warfarin.

>

> Liz (wife of Mark - with AA3 on Carboplatin chemo, having failed everything

else offered)

>

Well we are now up to 18mg and still not therapeutic, this weekend was a 2 hour

wait in the oncology ward to get more clexane, we are seeing the oncologist

today hopefully as the registrar on in the weekend and they have said that we

need to have it re-evaluated so we are not having to show up there every week

waiting for someone to do us a script every time.  Bureaucracy just sucks,

everytime we have to recount the story to be able to get what we need, I hate

having to tell and retell the same thing over and over.

To add to the stress Glen's left leg (where the dvt was)has swollen up over the

weekend, so things are obviously still not right.

He is just starting week 5 of radiotherapy and I have noticed he seems quite a

bit slower than previous weeks.  Mind you, he also started physio again last

week, 3 days  a week, so maybe he is just more tired.

I feel like I am always on edge, watching for any kind of change, worrying

constantly.  This last week I seem to have been more easily upset than usual

too, I have just been crying at anything.  I am so sick of crying!!!!!!

I despair of ever feeling normal again, of ever wanting to get on with normal

things, without falling apart at some point in the day, which is how it seems to

go at the moment.  I don't feel like I can plan anything, or look forward to

anything, it just feels like the joy has been completely sucked out of me.  I am

really stuck in the 'poor me's right now!!!!

Linda

--- In nzbraintumour@yahoogroups.com, <methompson@...> wrote:

>

> Should be no difference whether taken with food or not, but most important

dietary advice is to keep a medium but regular diet of veges etc and never go

overboard on one particular food esp tomatoes, onions and chocolate!!!

>

> If ever on broad spectrum antibiotics, your INR can go absolutely skyhigh...so

it is best to get monitored more frequently on these occasions. Also avoid

Gingko, and substantially limit ginger, garlic, green tea and alcohol!

>

> Hope this helps

>

> Liz

>