Hi Jo I sent PHARMAC an email to just see where they were at with this funding recommendation. See their response below. Unfortunately this looks like another...
Because Glen developed a dvt after surgery he has been on warfarin and clexane to try and get his blood to 'therapeutic levels'. They are wanting his level to...
NZ Brain Tumour SupportHi I work in a lab and test warfarin levels (INRs) all the time...Hopefully I can be of some help here. If Glen has been on 15mg of...
Thanks for the info Liz, that helps. We got a weeks supply from ED this morning, only a 90 minute wait to be seen!!!!! Am going to discuss it again once he has...
Should be no difference whether taken with food or not, but most important dietary advice is to keep a medium but regular diet of veges etc and never go...
Well we are now up to 18mg and still not therapeutic, this weekend was a 2 hour wait in the oncology ward to get more clexane, we are seeing the oncologist...
... From: thefowlers97 To: nzbraintumour@yahoogroups.com Sent: Friday, July 03, 2009 9:20 PM Subject: [nzbraintumour] warfarin Because Glen developed a dvt...
Hi Chris Saw my oncologist today and getting geared to start radiotherapy. My medical oncologist has been in contact with PHARMAC as she believes concurrent...
Hi Jo Sounds very promising, do let us know how you get on. I think your oncologist is on the right track with the concurrent RT/TMZ. May as well throw the...
Hi Jo Dave and I always argued to PHARMAC that they should, at the very least, fund the Tumours listed on the Data sheet for the drug. And as you can see below...
Hi Penny, Have you heard of any cases of GBM IV, that do not respond favourably to Temadol. Dennis has finished his sixth course and the tumour showed...
Hi Elaine, originally I ws diagnosed with AII almost six years ago and I've had recurrent tumour removed twice and now it has been diagnosed AA. The memory...
Hi Heather There is always the possibility that tumours will build a resistance to medications, like we can to antibiotics. We are all individuals, there is...
Stefans latest scan (last week) showed a 3 - 4cm area that docs think (hope)is dead tumour, and fluid build up that is approx twice this size. He has started...
Susan, I feel for you, it does suck and it is NOT fair. We have been told that no MRI will be done on Glen until Feb next year (his surgery was May 4th- right...
We got the letter today saying we have been turned down for Glen's life insurance as according to their interpretation of the neursosurgeon's prognosis he does...
Hi Linda, I was glad to get your warning email. We have just started down the road of appying for Dennis's Life insurance, after his Oncologist advised us that...
Yes! My situation was very very similar. Matt had an Anaplastic Oligoastrocytoma which recurred and we got the news that he was terminal. We embarked on the...
Thanks for your reply Rebecca, I was thinking I would discuss this Glen's oncologist when we see him on Thursday and see where we can get to, I like the idea...
He is half way through chemo. 3 down and 3 to go. Stefan finshed rad at end of March and was told then that scan would be around 4 months after rad finish...
Linda you definitely have the right to have it reviewed, and you also have the Insurance Ombudsman also. In any dealings we have had with Insurance matters we...
Was wondering if when anyone posts that you could include a signature at the end, as I do get mixed up with who is who, what type of tumour, and what treatment...
Hi Linda, Just wondering how you are getting on with the insurance company? Becs Wife of Matt, Dx Oct 02 AAIII, - right frontal lobe Resection & radiation Oct...
Hi Rebecca, We discussed it with Glen's oncologist who said he would write to the insurance company 'clarifying' Glen's diagnosis. He basically said he would...
Hi Penny a very late thanks for your info. I feel so incredibly lucky - my oncologist has obtained funding for temodar so I'll be doing chemo and rad at the...
Hi Jo That's excellent news about getting the TMZ funded! Lynda was on TMZ for over 2 years and handled it pretty well, apart from one episode when her...
Hi all, Hope you are all enjoying the nicer weather. Well we saw the nureosurgeons registar and they have decided that mass in Stefans brain is actualy the...
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