Thanks for your message. All the best for you two Cheers Sue ... From: Culverwell To: nzbraintumour@yahoogroups.com Sent: Wednesday, February 01, 2006 4:36 PM ...
Hi Melissa thanks for joining our group.Hopefully you will find it usefull. Unfortunately I don't have any experience with the symptoms you describe. The only...
Hi Penny, Yes my Uncle had radiation treatment at Dunedin Hospital after his 1st operation so that was just over 2 1/2 yrs ago now. The tumor is on the left...
Hello everyone Well we're finally got our Oncologist appointment for Weds 8th. Dr Simpson at Wgtn. Does anyone have any feedback on him? Also, I have been...
Sue, many of the Stats seem to be based on the trial where it was given concurrently with radiation and then followed by six cycles using a 5/23 protocol....
Thanks for your info Mike It would seem that TMZ many not be an option as complete resection and radiotheraphy was done 7 years ago and reoccurance diag. 4...
Sue, Further to this, my husband Matt had surgery and radiotherapy 3 years ago for an anaplastic oligoastrocytoma (Grade III), late last year he had second...
Hi Sue, hopefully you will get a straight answer as at Auckland Hospital it seems such a grey area, we have asked 4 different Oncologists re TMZ & reocurrence...
Hi, My name is Peter Shonk, just getting back to normal after the school hols etc and first reading of the site. Two things: I too have started to suffer from...
Hi, My name is Peter Shonk, just getting back to normal after the school hols etc and first reading of the site. Two things: I too have started to suffer from...
Peter it is really important to get the nausea under control - there is no need to suffer the misery of nausea. I switched to Navoban after using Zofron for...
Hi Peter Re "Second, I am astonished you can get TMZ from Australia! My brother lives in Sydney and also has a BT and has taken TMZ. I knew the cost was...
Hi Team I have forwarded the e-bulliten from the American Brain Tumour Assn. There is some interesting reading here.(see below) Also a few weeks ago I had a...
Hello fellow Auckland BTers, I agree a support group in Auckland is a great idea. We were in at Ak Hosp a few weeks ago and met a couple newly diagnosed...
Hi Peter do you mean Auckland Cancer Society as at Domain Lodge? If so I have mentioned before to one of the counsellors there how a BT/caregiver support group...
Hi again this update from Ross has some very interesting articles / reports, just click on the link he has provided. There is also a link to the bt survivor...
Hi Peter, I have previously arranged import of TMZ from Aussie but that was drugs that were gifted to me. I have spoken to MedSafe and customs and import is...
Hi Peter Fantastic idea! Nick and I would be very keen. In the morning would suit us also, however we have to come up from Pukekohe so around rush hour would...
Peter - good idea. Monthly is my preference. Suggest you nominate a date and time for the first meeting and then see who pitches (trying to work around ...
Culverwell
Culverwells@...
Feb 8, 2006 8:41 pm
184
Hi Peter, Yes the chemo drug is the TMZ. Got the two mixed up when I sent the first email. Now I'm sorry if you misunderstood my email regarding the chemo drug...
Hi Dave, welcome back. If you look to the very bottom of this posting you will see Melissa Aitken's message that prompted the question. The scan today seemed...
Hello fellow Jafas, I called the Auckland Cancer society late yesterday afternoon and spoke with Faye Kenny (didn't catch her title), who in turn has referred...
... You sent us this interesting site via Ross, but we can't get the actual full text of the article entitled "Surviving GBM for more than 5 years". ...
Hi Peter You need to move toWellington!!! Sorry thats not helpful. But it makes me really angry that you are not being helped to set up a group. What a ...
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