In case anyone is lurking, there are active members here we just don't post too often at the moment:-) Hope everyone had an awesome Xmas & New Year. Bruce and...
HI linda nice to hear from you. I moved house over the xmas break so things have been rather hectic. Dan and Zac are really looking forward to getting back to...
Hi there I must admit to being a closet reader of this group for the past three years I signed up when my father in law was diagnosed with a grade 4 primary...
Last month my husband had surgery to remove a 5 cm tumour from his front left lobe, which turned out to b a grade 4 GBM. This has been a major shock and change...
Hi Susan, we are from Sth Auckland, and my husband was diagnosed at 41yrs of age back in 2004 with a Gde 3 Anaplastic Astrocytoma in his left frontal lobe. He...
Hi Lizzie what an extremely tough time you and your family have been through. To be affected by BT not once but 3 x is unthinkable. I am so sorry to hear of...
Hi Linda, We live in Wellington. The prognosis we have been give is 1 to 2 years so its good to hear of someone doing much better than that. Susan--- In...
Hi Lizzie I am so sorry to read your story. We too experienced things changing rapidly. There is a good resource on the web which I found really helpful during...
Hi Susan I live it Kapiti and work at the Police College in Porirua so not far from you. I am 38 so we are probably close in age. If you would like to meet for...
Hi Susan, my name is Nina Johnston (aged 35) and my husband (Aaron aged 38) was diagnosed in March 06 with a GBM, at the time our boys were 8 months old and...
Hi Lizzie, what a time you've had. As I said to Susan, use this group, we're always around ready to reply....... and we really do understand what you're going...
Hi Susan Lynda was diagnosed with a GBM in March 2006. Her tumour was also roughly 5cm in diameter and located in the left posterior frontal lobe. She has now...
Hi Susan Im very sorry to hear about your husband. You have come to the right place, everyone is wonderful on here and we all help where we can. My husband...
Hi Susan, Like everyone else I am so terribly sorry that you have had to join our group. My husband Matt was diagnosed with an Anaplastic Oligoastrocytoma in...
Hi everyone, Just thought I would add a bit of a Toddie update! For those who don't know us, my son Liam was diagnosed with an extremely rare form of cancer in...
hi chris and lynda thanks for the offer to get in contact.that would be great we can be contacted on 2366861 thanks heeps Stefan and Susan ... From: Tse Family...
Hi Susan, Last June I had the operation as your husband. Same size, Right Frontal lobe & GBM 4. It was a terrible shock. I then had Radiotherapy & Chemo every...
Hi there I'm a now 38 year old mother of 3 under 4 and I've had a craniotomy for a right frontal AA III then radiation for 6 weeks. tumour was 3.5x3.5cms it'd...
Hi all, I'm a 38 year old mother of 3 under 4, and got diagnosed with a tumour last year, I had a grand mal in june last year out of the blue, no history of...
Hi Elaine We are not exactly in your situation - Lynda had a grade IV astrocytoma (GBM) - but we also live in Wellington (Seatoun). The treatment for AA III...
Hi Elaine Lynda takes a range of dietary supplements. The ones she currently takes are: Boswellia Boswellia AKBA Bromelain Quercetin+Bromelain Super...
NZ Brain Tumour SupportHi Elaine and family We live in Gisborne, and Mark, my husband, was diagnosed with a left parietal tumour AA2 with AA3 changes...right...
Bruce continues to amaze his Oncologist I think?! I told him he might just be the next poster child for Greenlane Oncology LOL.....sorry just the way our...
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