Hi Liz, I am so sorry to read your post. I am not one for obscenities, but in times like this...!! A few similarities with Bruce, and the fact of both having a...
Bruces MRI was stable and no change from 6 mths ago. His Oncologist says with a Gde 3 AA diagnosis he is doing remarkably well, considering he is coming up...
Hi Linda, Bruce, Chris, Lynda and others Mark had his appt yesterday with the oncologists that visit from Palm Nth. They wanted to start chemo straight away -...
Unfortunately, Russell had been unwell for most of our married life with
different health problems. The symptoms he did have were very similar to
those...
I think there are about 250 Brain tumours in Adults each year with about 100 being the GBM Anyone...please correct me if I am wrong. xx ... I think there are...
Hi I have posted a copy of the IBTA awareness raising book and the following letter to NZ media health reporters today. They should receive it next week. ...
Hi Everyone., Â Darren and I are doing good.He is just started his 3rd month of Temodar for his Oligodendrogioma.He completed 6 weeks of concurrent radiation...
Greetings to you all, Melissa and I thought many of you might be interested to know of Kathryn Ryan's interview this morning on National Radio with Chris ...
Hi there everyone apologies for being a bit quiet lately. I just wanted to let you know that "Million Dollar Tumour" is being replayed on TV3 today (Sunday) at...
Hi everyone I am just new to this group so thought I would quickly introduce myself. I am 19 years old and live in Palmerston North. In August this year my...
Hi Alicia, My husband Dennis was diagnosed with Glioblastoma Multiforme in early June this year so we are undertaking the same journey, just a couple of months...
Hi Alicia, my name is Nina Johnston (aged 34) and I live in Palmerston North also. My husband, Aaron Johnston (aged 38), was diagnosed with a high grade GBM...
Hello Everyone, I have lived with the Miracle of a Meniningiom for over 6 years now, and, the Miracle of it has been a powerful teacher changing the whole of...
Hello Alicia, A huge hug to you and your family all round, Alicia, you have a great attitude and this will be your strength to your family. May your love for...
Thank you so much for your replies. Heather - I am glad Dennis is doing well. So far the chemo pills Dad has been taking with the radiation haven't made him...
Hi to everyone, Not sure if you have ever read the story of David Bailey, a 12yr survivor of a GBM - he touches the lives of so many Brain Tumour survivors,...
Hi to our wonderful BT friends: We sincerely hope we all have a good Christmas - not getting tooo stressssseddd!!! Instead, simply spending really quality time...
Thats so lovely Liz that you and Mark had a great couple of nights at the chateau. Love to all and Merry Christmas...I guess there are no surprises as to what ...
In case anyone is lurking, there are active members here we just don't post too often at the moment:-) Hope everyone had an awesome Xmas & New Year. Bruce and...
HI linda nice to hear from you. I moved house over the xmas break so things have been rather hectic. Dan and Zac are really looking forward to getting back to...
Hi there I must admit to being a closet reader of this group for the past three years I signed up when my father in law was diagnosed with a grade 4 primary...
Last month my husband had surgery to remove a 5 cm tumour from his front left lobe, which turned out to b a grade 4 GBM. This has been a major shock and change...
Hi Susan, we are from Sth Auckland, and my husband was diagnosed at 41yrs of age back in 2004 with a Gde 3 Anaplastic Astrocytoma in his left frontal lobe. He...
Hi Lizzie what an extremely tough time you and your family have been through. To be affected by BT not once but 3 x is unthinkable. I am so sorry to hear of...
Hi Linda, We live in Wellington. The prognosis we have been give is 1 to 2 years so its good to hear of someone doing much better than that. Susan--- In...
Hi Lizzie I am so sorry to read your story. We too experienced things changing rapidly. There is a good resource on the web which I found really helpful during...
Hi Susan I live it Kapiti and work at the Police College in Porirua so not far from you. I am 38 so we are probably close in age. If you would like to meet for...
Hi Susan, my name is Nina Johnston (aged 35) and my husband (Aaron aged 38) was diagnosed in March 06 with a GBM, at the time our boys were 8 months old and...
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