Hi Becs Bruces tumour was left frontal/parietal which is his talking ear when he uses the phn/mobile phn. He never had a mobile phn until about 5 yrs ago, but...
Bruce had his MRI results today which are stable and no change:-) He has had a few headaches recently and some speech issues, plus a partial seizure 6 weeks...
Hi Everyone, Nick is on round 2 of temodal. The first 6 months were good and the platelette count was always above 100. HOwever we were meant to start month...
Hi Kath, can't comment on the Temodal regime, but chemo Bruce had was changed after the 2nd month due to low paletlets & neutrophils. Only had two blood tests...
Hi Linda, I think the problem with most of the studies is the differing usage of cellphones and as a result the research comes back inconclusive. This paper ...
Great to hear that the MRI results are stable. Always a tough time waiting for them. Enjoy your week away, I am sure you’ll survive without the children!!! ...
Thanks Linda, We thought Nicks count would go up too, but we have been having blood tests for the last week and they have only marginally gone up. Last week...
Hi Kath Lynda had to stop Temodal for about two weeks when she was on the 200mg/m2 dose due to low platelets. After her platelets came back up she was only...
Dear Linda, Always pleased to hear good news. Don always reacted badly to stress, good or bad.Often no change. Enjoy that holiday! Time out for you both is so...
doncederwall
doncedes@...
Apr 3, 2008 7:18 pm
1458
That is fantastic news Linda! I hope you have a great trip away to the gold coast :) Love Kath Linda <linzis@...> wrote: Bruce had his MRI results...
Hi there everyone.... that is great news Linda. Kath, Dave never had any problems with low counts so can't give too much advice. However, my Brother in Law has...
Hello everybody, my name is Kristin and I have joined your group as 2 days ago a very close friend of mine was told that he has a very large tumor in the front...
Hi Kristin very sorry to hear about your friend. Where does he live??? this would be good to know as there may be others in the group who have used the Brain...
Hi Kristin, Welcome to the group, I hope you get the support and information that you need. My advice re the meeting is over the next few days any questions...
Hi Aucklanders, To save me scrolling through past postings, can you tell me, do you have a Cancer Society support group up there- perhaps the equivalent of our...
HI Becs, No we havent. If I remember correctly Peter Shonk went to the cancer Society and asked if a group could be set up. They were against the idea. Hope...
Thanks Kath, Just had a friends sister diagnosed with BT in Auckland and thought if there was a group (which I had a suspicion that there wasn’t) was going...
Hi everyone...received this today from Pip..FYI HEADWAYS A TWO WEEK SEMINAR FOR PEOPLE LIVING WITH BRAIN TUMOURS AND IMPORTANTLY, ALSO THEIR CARERS With Pip...
2007-12-30 Diane Toscano re temozolomide.pdf - Adobe ReaderHi everyone, Just forwarding on to you the letter I received from Pharmac today, after I wrote again...
Hi Becs, Im sorry to hear that. Whereabouts in auckland is she? I am always willing to help or answer any questions if she needs help or even visit. Kath :) ...
Hi Diane Thanks for posting this, you are doing a great job corresponding with Pharmac. It is pretty poor that they have kept you (and the group) waiting so ...
Thanks Kath, not sure where she is living, shes been diagnosed with a grade II slow growing one which is great! Will speak with my friend, and get back to you...
Dear Becs, My Don had an Oligodendroglioma grade 11 when he was originally diagnosed. Slow growing also. Diagnosed 1996 and passed away 2007. If I can help,...
doncederwall
doncedes@...
Apr 11, 2008 7:57 am
1472
Hi everyone FYI the info below..this site has alot of up to date info. Just click on the link. cheers ... From: BrainLife.org To: services@... Sent:...
Hi everyone, just thought I would drop a line. I've been keeping up to date with everyone. Linda great news about Bruce MRI results, but yes I can imagine it...
Hi All Thank you for all of the great info! Just thought I would give a quick update on how everything is going. At the start of last week (before the second...
Hi everyone, It is somewhere near 2am and I am sitting up unable to sleep. There is a good reason for that being that my 7 year old son Liam has been...
Dear Becs, My heart went out to you as I read you email. My faith got me through Don's years of struggle and has got me through the past 8 months. I'm sending...
doncederwall
doncedes@...
Apr 16, 2008 8:38 pm
1477
Dear Becs, My prayers and thoughts go out to you at this time - you have been such a wonderful support to so many, despite the battles that you yourself faced,...
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