Hi to you all, I must firstly wish everyone the very best for the year '08. Tony and I sincerely hope that you managed to have some great family times...
Happy New Year, I hope this year will be a positive one for us all on out BT journey. I have thought of you all over the xmas holiday break especially those ...
Hi Kath good to hear from you. Bruce has an MRI in May after our trip to Oz. Would have been in March but would rather wait. I'm sure I find all the waiting &...
Hi to everyone, Just wanted to forward onto you a reply that I received after writing to the Board of Pharmac - I wanted to start my New Year off by being...
Hi Diane Good on you for being pro-active and writing in to Pharmac. Can you share a copy of the final minutes with the group when you receive it - I am really...
Good on you Diane, well done on the follow up with Dr Moody asking for the minutes. It is VERY pleasing to see that FINALLY a group of Oncologists have deemed...
Dianne I can't seem to open the attachment? ... writing to the Board of Pharmac - I wanted to start my New Year off by being positive and saying just how I...
Hi Linda, It has been sent to me on 'Abode Reader' - do you have that - not sure how I can send it another way, perhaps some-one can help me there. I have...
Hi everyone, Just a quick question for those that have had temadol.....Once the first 6 month cycle has finished, and the results are good did you keep on...
Hi there Kath, Colette kept on taking it for the whole 18mths - even though she had no complications or regrowth............. but I do realise that her...
Hello, My name is Julie Foyle and i am Mike's sister-in-law. I have much regret to inform your group that Mike lost his battle with cancer at 4.45am on monday...
Thank you Julie for taking the time to pass on this incredibly sad news. Mike was such a battler and was constantly instilling his sense of courage and his...
Hello Julie, I am so sorry to hear of the loss of your Brother-in-law Mike. Although I do not know you, my heart goes out to you and your family at this very...
Hi Julie thanks so much for letting us know. Mike was a great guy and I know my late husband Dave really appreciated the support and advice Mike gave him...
Julie our sincerest condolences to you, your family and Mikes wife. Without realising, Mike touched alot of hearts within the Australian & NZ BT Groups. He...
Dear Julie So terribly sad to receive the news of Mike's passing. Sincere condolences to you and all of Mike's family. It is a tribute to Mike that he not only...
Hi Julie, I am Dave Bowman's Dad. Penny has already echoed our sentiments in her message but I must add my wife's ( Sue) and my admiration to the guts and...
Hi Julie, my thoughts are with you all. He was certainly a battler and gave us all alot of encouragement and hope. I am so sorry for your loss x Love Nina ...
NZ Brain Tumour SupportDear Julie We are devastated to learn of Mike's passing. We are so sorry. Please pass on our deepest sympathy to Deb and Mike's wider...
Bruce had a focal seizure last weekend - speech loss, numbness down one side of his face. Lasted 10 mins. Hasn't experienced these for about 18mths since they...
Hi Kath Sorry for late reply. Lynda has been on Temodal for 19 cycles now - 6 cycles standard therapy plus 13 cycles of metronomic (daily) Temodal. Our...
Hi Diane Just wondering if Dr Moodie sent you the minutes from their cancer sub-committee meeting yet? I see Pharmac are under the gun again from the Herceptin...
Hi Cris, No, have not heard anything as yet - but will 'refresh' their memory and will write again to them in perhaps another week or so, to keep the...
Im sorry to hear about the seizure linda. Nicks results were that the tumor had not shrunk or grown. We now have the dilema of paying for 6 months of...
Hi Chris, Thankyou for your email. Nicks results showd no shrinkage and no growth. So we have decided to stay with temadol even though the cost is a bugger!...
Hi Kath We were going to get a range of quotes but in the end our local chemist said he would give it to us with discounted margin and dispensing charge so we...
HI Chris / Lynda and any others taking Temodal (temozolomide) on an unsubsidised basis, maybe some things to investigate to ease the financial pressure. a.....
Hi Diane that is very interesting as AVASTIN (Bevacizumab) is a drug widely used by other countries including Australia in the fight against GBM / Brain...
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