Dear All, Just a note to let you all know I am in "the land of the living" but it will take me some time to recover from the trauma of this BT ride. All you...
doncederwall
doncedes@...
Sep 29, 2007 8:49 pm
1333
Hi Cathy Nice to hear from you. I have been a bit quiet lately with regards to emailing. I have been away for 6 weeks and only recently got home. The boys and...
Dear Penny, My thanks for your very helpful note. Sounds like you had a wonderful time with family and friends and I agree, this can be very helpful. I don't...
doncederwall
doncedes@...
Sep 30, 2007 7:12 pm
1335
Hi Penny, It was so lovely to read your "catch up" email just now, I am pleased you had a nice time over in the UK. Your's and Dave's story remains an...
Hi Cathy Good to hear from you...... To answer your question...."I don't know!!" All I do know that it must be different and personal journey for everyone. ...
Hi Cathy, As the others have already said I guess our journey of grief, like our journey through the BT world is always different. It has been 18 months since...
Dear Girls, I almost feel I have taken a step forward after reading your words of advice. I guess I thought after such a long time I would've done my grieving...
doncederwall
doncedes@...
Oct 1, 2007 6:11 am
1339
Dear Becs, Forgot to say,I had a similar experience with a song Don used to sing to me when he was in Hospice. I had never, ever heard this song on radio. I...
doncederwall
doncedes@...
Oct 1, 2007 6:19 am
1340
FYI everyone x Penny ... From: Denis Strangman To: Newsletter 4: Sent: Monday, October 01, 2007 4:30 PM Subject: Walk Around the World for Brain Tumo(u)rs and...
Hi Cathy, lovely to hear from you. Its a tough road loosing the ones we love but with time and lots and lots of supportive love around us we somehow manage to...
Dear Nina, Lovely to hear from you too. I think of you girls with your strength of character and it does make me think "I can do this". I must admit, like you,...
doncederwall
doncedes@...
Oct 3, 2007 7:07 pm
1344
Hi Cathy, Good to see you back on the airwaves again. I can relate to what you say about not wanting to be a caregiver again, that was a marathon for you. I...
Dear Marg, I hesitated to post as I know how difficult life is for all you caregivers out there. Hopefully like me, you will all have many years of good...
doncederwall
doncedes@...
Oct 6, 2007 7:43 am
1346
-Hi Penny, Is there going to to be anything happening locally in the Wellington Region for Brain Tumour awareness week??? I would be only too happy to get out...
Hi there, I wonder if anyone can tell me what the best line of defence is regarding temadol. At the moment I have just finished 6 weeks of radiation, luckily...
Hi, My partner Sarah was diagnosed with a Giant Acoustic Neuroma tumour which was removed about 10 days ago. She is now off most meds except for Codine and...
Hi Paddy, I think pretty much the recommendation is Temodal concurrently with radiation treatment. Penny may have more statstics? Just as a reminder of our...
Hi Paddy My understanding is that Temodal is only subsidised in NZ for newly diagnosed glioblastoma multiforme (GBM) and not for recurrent tumours or AA3...
Hi Matt welcome to the group. I am sorry in that I can't respond in more detail just at the moment as I have to pick the boys up from school but will be back...
Hi Paddy I have a few ideas, just have to pop out for a bit but will respond ASAP Its Daves (38) birthday today so a bit of running around to do Penny x ... ...
Hi Paddy Below is a link to the medsafe website with the information of how Temodal is administered. Most of the data has shown that best results are obtained...
Hi Matt I am not very familiar with Acoustic Neuromas but I have found a couple of web sites that may be of use to you see below...I hope they will be of some...
Hi Matt so sorry to hear of Sarahs dignosis. Personally i would have thought someone who is early days out from brain surgery would be on dexamethasone for...
Hi to everyone, Well another 6mnths have passed plus the anxious 2 days while Colette is away, and we are waiting for that phone call to hear how her MRI...
Dear Diane, Wonderful news!! I wish Colette many more years of good quality life. I know how much you worry about your girls. You and Tony are an incredible...
doncederwall
doncedes@...
Oct 12, 2007 5:53 pm
1358
Hi to you all, Things for Robyn are still going very well - in fact she has improved on the walking and stability stakes. So that is fantastic. I'm still in...
Dear Sue, Oh I am so sorry to hear your news please accept Tony and my sympathy. Gosh you have been such a tower of strength to Robyn and to now have your...
Fantastic new Diane thanks for letting us know...its great to hear postivie news ! Penny x ... From: Diane To: caregivers ; NB-Braiin Tumour group Sent:...
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