Hi everyone, My husband was diagnosed with an oligodendroglioma 3 years ago. It has taken me that long to find this site! I wonder if there are any others...
Hi there Mary welcome to the group. My name is Penny and my husband and I set this group up a couple of years ago. You will find it is a very informative and...
Hi Marj my husband Bruce is 44yrs and was diagnosed March 04 with a Gde 3 Anaplastic Astrocytoma. Had surgery March 05 plus radiation. Had 2nd surgery March 05...
FYI ... From: Denis Strangman To: OzBrainTumour@yahoogroups.com Sent: Thursday, June 28, 2007 6:28 PM Subject: [OzBrainTumour] Cancer statistics Hi Hidden...
Hi Marg, My Husband Don was diagnosed in 1996 with an Oligodendroglioma 11, at that stage it was deemed inoperable because of its location. It was infiltrating...
doncederwall
doncedes@...
Jul 3, 2007 11:05 pm
1253
My name is Adele and my partner Regan was diagnosed with a GBM last August. He's only 33. He's been through surgery, radiation/temozolomide for 6wks and then...
Hi Linda, I found this site in a message sent to the Cancer Society site. Cheers, Marg ... From: Linda To: nzbraintumour@yahoogroups.com Sent: Tuesday, July...
Hi Cathy, I know how hard it has been for you and for such a long time. I guess I have that all ahead of me. The doctors have been trying to reduce Mac's...
Hi Adele, So sorry to hear about your partners bt. My husband has a different tumour so is on different medication, but just wanted to let you know that we...
Hi Adele, my husband did 7 cycles of POC (or PCV) chemo from May 05-Nov 05 after surgery for residual tumour in March 05. (funny how all these dates always...
Hi Linda Thanks for that. Regan has been put on a lower dose (I guess) as he had CCNU once on day 1, with Vincristine on day 1 & 8 and Procarbazine for 10 ...
I made a mistake there Adele Yes the CCNU was just on that first day. Where are you from? We are in Auckland and I know the Oncology nurses deal with all this...
He's on Morphine these days, as well as Medrol instead of Dexamethasone as Medrol can be given at a higher dose. The doctor said 10 days but I wonder why not...
Hi Adele welcome to the group. My husband was 35 when Diagnosed. He took temozolomide for 9 months then rotated to CCNU. He didn't change because his tumour...
Hi Marg Daves tumour, GBM (Highest grade of Glioma) was like Mac's and in his left parietal lobe. The first symptom was a massive seizure out of the blue, no...
Dear Marg, Don was diagnosed at 47. He kept quite well for the first 6 years. Over that period he had the max dose of RT, 6 rounds of PCV and one round of...
doncederwall
doncedes@...
Jul 5, 2007 8:10 pm
1265
Hi Marg, I am at preesently on holiday around New Zealand, before taking off for Brisbane tomorrow, but have been checking emails from wherever we are staying....
Hi Marg and Adele, I have just got back from holiday and checked all my e-mails, and it is great to see you have both joined the group, so a big welcome from...
Hi Adele and Marg Welcome to this site....I have found it to be invaluable, especially with talking with people who can really relate to what we are going...
Thanks Sharonne & Becs So far Regan hasn't had any seizures, just increasing headaches. His tumour is in the right parietal lobe and has started losing...
Hi Adele I wouldn't dwell on the 'life expectancy' thing. We went there once and left it because no one really knows .....and a cure or a miracle might be just...
Hi Sharonne and Becs, Thanks for your words of encouragement. I have already benefited heaps from this site, just knowing there are others out there sharing ...
Hi everyone, Nick has just finished 5 weeks of radiation and has very bad burns to his forehead and the side of his head. He has been told to just put aqueous...
Hi Kath, Bruce used Aqueous cream also. Another one to try from the Sunblock/After Sun aisle in supermarket is Hawaiian Tropic Cool Aloe I.C.E. Burn Releif Gel...
Hi everyone, welcome Marg & Mac, and Adele and Regan. My name is Nina (age 33), my husband Aaron (was 38) was diagnosed last April 06 with a high grade GBM...
Im new to all this and I think I may have sent someone an email by mistake, never mind. I'm 36 and have just been diagnosed with a grade3 anaplastic...
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