Hi, I am a GBM IV survivor (yes there is hope) from across the Tasman and am honoured to join this new support group. Hope some of my experiences, good and...
Hi Mike thanks for joining up I think this format will work better for us...but still feel free to contact us privately as required. Cheers Penny ... From:...
First of, a heartfelt thanks to Penny & Dave for setting up this board. I am 37yrs, my husband 42yrs and we have a daughter 3 & a son 8. Sorry for this long...
Thanks Dave and Penny. I am really honoured to have been the second person to sign up. Does this make me an honorary Kiwi? Mike ... From: DanZac To:...
Yes it does and you should be proud after the cricket eh! pen ... From: Michael Gabriel To: nzbraintumour@yahoogroups.com Sent: Thursday, December 15, 2005...
I think the series result speaks for itself! Mike ... From: DanZac To: nzbraintumour@yahoogroups.com Sent: Thursday, December 15, 2005 8:12 AM Subject: Re:...
Hi, As mentioned in a previous introduction e-mail we are good friends of Dave and Penny Bowman with us all growing up in the Kapiti area together. They have...
Hi Becs You wrote "He is on metoclopramide for the nausea". Over here they sell that as Maxolon and I personally don't think it is strong enough for a number...
Hi Everyone, My husband Nick (29) had an out of theblue seizure two weeks before our second baby was born. He was then diagnosed with a brain tumour. From...
Thanks Dennis for the advice. Matt was prescribed Zofran, but only to take before he took the first lot of tablets. He has now taken a couple to see if they...
Here is my story as discussed. Dx 18 March 05. Central Neuro cytoma Grade 1 13 April 2005 - Surgery to excise 4.5 cm x 2.5cm intraventricular tumour (both...
Becs so sorry to hear of Matts results. I hope you have lots of support at this time. Very hard going with a young family. I know every individual is different...
Hi everyone, I've just got back after being away fishing for 2 days and WOW!!!!!! we have our own chat room thingy. This is awesome. Thanks Denis for the...
Hi Kath, Nice to see you on board. I noticed that you have private medical insurance. I'm pretty sure that some insurers provide funding for a second opinion...
Hi Lisa, If you get a strange email from me don't worry as I made a balls up. I know of an awesome Dr who is the main man for BT's at JFK hospital in NewJersey...
Have re-read my message and think I'm being harsh by talking of NZ Surgeons collectively instead of saying "some" There are good and bad and sometimes I get so...
Becs, I'm with Denis, Matthew needs a much stronger anti-nausea medication. I initially took Zofran, which works for 8-12 hours, but later switched to...
Kathryn there are some non chemo options that you could consider, I take a very wide range of supplements, many of which I have learned about from the Ben...
Becs, when I took two Zofron and told my Onc he said I should not do that as there were some risks of perhaps a stroke, can't quite remember - sadly a BT does...
Kath, even if you can't access a second opinion overseas via your insurance, I think if in any way possible you can afford you should do so. My Surgeon is...
Hi Re: "I'm not 100% sure but I read somewhere on another American BT site that Dilantin can often cause a rash?" Yes, that is correct. In 2000 my late wife...
Hi, Matt is suffering from sore ankles and feet. There is no swelling and no fluid build up but they are tender from the ankles down. He is on PCV chemo...
My name is Peter Shonk, I am 41 and live in Auckland with my family, wife Michele and son Sam (5). Medium height and weight. My BT I had two monster headaches...
Hi Kath, My favourable view may be coloured by the fact I was fortunate enough to see Dr Law privately and have the surgery at Ascot. I found Dr Law...
HI Peter, Many thanks for your reply. We too are very fortunate and are going to Andrew Law. We first saw him at the Ascot hospital but he has now moved to...
The best site for Ruta 6 is actually a Yahoo group set up about it. Mike See: http://health.groups.yahoo.com/group/Ruta6/ ... saw him at the Ascot hospital...
-Thanks Mike for that. I have been doing a lot of looking on the internet about it, and from what I can see it tends towards the glioma tumour? They think...
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