Well we are now up to 18mg and still not therapeutic, this weekend was a 2 hour
wait in the oncology ward to get more clexane, we are seeing the oncologist
today hopefully as the registrar on in the weekend and they have said that we
need to have it re-evaluated so we are not having to show up there every week
waiting for someone to do us a script every time. Bureaucracy just sucks,
everytime we have to recount the story to be able to get what we need, I hate
having to tell and retell the same thing over and over.
To add to the stress Glen's left leg (where the dvt was)has swollen up over the
weekend, so things are obviously still not right.
He is just starting week 5 of radiotherapy and I have noticed he seems quite a
bit slower than previous weeks. Mind you, he also started physio again last
week, 3 days a week, so maybe he is just more tired.
I feel like I am always on edge, watching for any kind of change, worrying
constantly. This last week I seem to have been more easily upset than usual
too, I have just been crying at anything. I am so sick of crying!!!!!!
I despair of ever feeling normal again, of ever wanting to get on with normal
things, without falling apart at some point in the day, which is how it seems to
go at the moment. I don't feel like I can plan anything, or look forward to
anything, it just feels like the joy has been completely sucked out of me. I am
really stuck in the 'poor me's right now!!!!
Linda
--- In nzbraintumour@yahoogroups.com, <methompson@...> wrote:
>
> Should be no difference whether taken with food or not, but most important
dietary advice is to keep a medium but regular diet of veges etc and never go
overboard on one particular food esp tomatoes, onions and chocolate!!!
>
> If ever on broad spectrum antibiotics, your INR can go absolutely skyhigh...so
it is best to get monitored more frequently on these occasions. Also avoid
Gingko, and substantially limit ginger, garlic, green tea and alcohol!
>
> Hope this helps
>
> Liz
>