Hi Lizzie

what an extremely tough time you and your family have been through.
To be affected by BT not once but 3 x is unthinkable.
I am so sorry to hear of your FIL, and hope he is getting the best of
care and treatment

take care
Linda

--- In nzbraintumour@yahoogroups.com, "REDFERN" <REDFERN@...> wrote:
>
> Hi there
> I must admit to being a closet reader of this group for the past
three years I signed up when my father in law was diagnosed with a
grade 4 primary tumour. I remember being touched by Penny's husbands
documentary and signing up as Mike had recently been diagnosed. Sadly
my father died of cancer with secondary brain tumours when I was 18
and Hamish my husband's mother can you believe it survived a benign
tumor 25 years ago. Mike after being diagnosed with his tumour just
over three years ago had surgery, radiotherapy and chemo treatment
which he managed really well and to everyone's surprise has had clear
scans since and has been on no medication whatsoever! He has over this
time been diagnosed with Parkinsons apparently as a result of the
radiotherapy. However a routine scan in September showed some change
and he has since Christmas slipped dramatically with his recent scan
showing two new growth areas. We have been told now that after such a
good spell that this is what can happen and that things now progress
at an alarming rate and thre is now little we can do. We are sad and
scared for what lies ahead. I have gained so much from your emails
over the past three years that I wanted to say thank-you. We have
three full of life boys who sadly did not meet my father and 3 out of
4 of their grandparents have been affected by three different forms of
brain tumour! I am by nature a very possitive person but must say I do
struggle with this cruelty as I did with my father and am lost as to
why this happens to such good people.......
> Lizzie
>
> Original Message -----
> From: DanZac
> To: nzbraintumour@yahoogroups.com
> Sent: Monday, January 26, 2009 4:27 PM
> Subject: Re: [nzbraintumour] Just a hello to everyone
>
>
>
> HI linda
>
> nice to hear from you. I moved house over the xmas break so things
have been rather hectic.
>
> Dan and Zac are really looking forward to getting back to school.
>
> I know what you mean about wondering what the little changes may
mean. And I suppose they can be any number of things as you said. It
is good that Bruce has an MRI soon as then atleast you may have some
answers as to why the changes are happening. It may not be bad news at
all.
>
> all the best
>
> xx Penny
> ----- Original Message -----
> From: Linda
> To: nzbraintumour@yahoogroups.com
> Sent: Sunday, January 25, 2009 11:54 AM
> Subject: [nzbraintumour] Just a hello to everyone
>
>
> In case anyone is lurking, there are active members here we just
don't
> post too often at the moment:-)
>
> Hope everyone had an awesome Xmas & New Year.
> Bruce and I and the kids spent 2 1/2 weeks between Mount
Maunganui and
> Taupo and had a great break away.
> Now just on countdown until the children go back to school :-)
>
> Bruce is keeping well... although little things that I see make me
> wonder? Short term memory loss worsening, peoples names and word
> finding, and his hand/eye coordination (has been more clumsy).
> "Sigh!"
> Hard to know whether its something or nothing, and just continued
> effects form all his treatment.
> Hard to believe that it is 5 yrs coming up on March 1st since his
> diagnosis, but he also has an MRI scheduled for March also.
>
> take care all
> Linda
>