Hi Susan,
Like everyone else I am so terribly sorry
that you have had to join our group.
My husband Matt was diagnosed with an
Anaplastic Oligoastrocytoma in October of 2002 when our son was 2 and our
daughter just 8 weeks old. He fought a very tough battle but after two
surgeries (two years apart) radiation and a few rounds of chemotherapy he
passed away peacefully at Mary Potter Hospice in May 2006. He was 34
years old. I along with most people in this group went straight to the
internet after initial diagnosis and sought as much information as I could lay
my hands on. Most of it, as you have probably discovered, does not make
for pretty reading, however if you look hard enough there are long term
survivors of this terrible disease. Somewhere along the line there have
to be people who make up that statistic of survival, so there is no reason why
this cannot be your husband.
My advice to you regarding your children
is to be honest with them. They will throughout the treatment overhear
things being said and you will be amazed at how much they pick up. Call
on the Cancer Society and they will help you guide them through this, they have
a lot of good resources that may be useful.
Everyone here is just at the end of the
computer so please feel free to ask any questions and one if not all of us will
jump on and try to help out! Know you are not alone on this journey.
Becs Todd
From:
Sent: Saturday, 14 February 2009
7:55 p.m.
To:
Subject: [nzbraintumour] hi
Last month my husband had surgery to remove a 5 cm
tumour from his
front left lobe, which turned out to b a grade 4 GBM. This has been a
major shock and change to our family as Stefan is only 38 and we have 3
kids (15, 13, 10). He starts Rad and Chemo next week. Thanks Susan
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