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Reply | Forward Message #1569 of 1805 |
RE: [nzbraintumour] hi

Hi Susan,

 

Like everyone else I am so terribly sorry that you have had to join our group. 

 

My husband Matt was diagnosed with an Anaplastic Oligoastrocytoma in October of 2002 when our son was 2 and our daughter just 8 weeks old.  He fought a very tough battle but after two surgeries (two years apart) radiation and a few rounds of chemotherapy he passed away peacefully at Mary Potter Hospice in May 2006.  He was 34 years old.  I along with most people in this group went straight to the internet after initial diagnosis and sought as much information as I could lay my hands on.  Most of it, as you have probably discovered, does not make for pretty reading, however if you look hard enough there are long term survivors of this terrible disease.  Somewhere along the line there have to be people who make up that statistic of survival, so there is no reason why this cannot be your husband.

 

My advice to you regarding your children is to be honest with them.  They will throughout the treatment overhear things being said and you will be amazed at how much they pick up.  Call on the Cancer Society and they will help you guide them through this, they have a lot of good resources that may be useful. 

 

Everyone here is just at the end of the computer so please feel free to ask any questions and one if not all of us will jump on and try to help out!  Know you are not alone on this journey.

 

Becs Todd

 

 

 

 

 


From: nzbraintumour@yahoogroups.com [mailto:nzbraintumour@yahoogroups.com] On Behalf Of peake.susan
Sent: Saturday, 14 February 2009 7:55 p.m.
To: nzbraintumour@yahoogroups.com
Subject: [nzbraintumour] hi

 

Last month my husband had surgery to remove a 5 cm tumour from his
front left lobe, which turned out to b a grade 4 GBM. This has been a
major shock and change to our family as Stefan is only 38 and we have 3
kids (15, 13, 10). He starts Rad and Chemo next week. Thanks Susan

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Sun Feb 15, 2009 8:02 am

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Message #1569 of 1805 |
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Last month my husband had surgery to remove a 5 cm tumour from his front left lobe, which turned out to b a grade 4 GBM. This has been a major shock and change...
peake.susan
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Feb 14, 2009
6:55 am

Hi Susan, we are from Sth Auckland, and my husband was diagnosed at 41yrs of age back in 2004 with a Gde 3 Anaplastic Astrocytoma in his left frontal lobe. He...
linbrusco
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Feb 14, 2009
9:07 pm

Hi Linda, We live in Wellington. The prognosis we have been give is 1 to 2 years so its good to hear of someone doing much better than that. Susan--- In...
peake.susan
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Feb 14, 2009
11:44 pm

Hi Susan I live it Kapiti and work at the Police College in Porirua so not far from you. I am 38 so we are probably close in age. If you would like to meet for...
DanZac
danzac21
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Feb 15, 2009
12:08 am

Hi there I'm a now 38 year old mother of 3 under 4 and I've had a craniotomy for a right frontal AA III then radiation for 6 weeks. tumour was 3.5x3.5cms it'd...
cooksrus@...
cooksrus...
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Feb 16, 2009
8:36 pm

Hi Susan, my name is Nina Johnston (aged 35) and my husband (Aaron aged 38) was diagnosed in March 06 with a GBM, at the time our boys were 8 months old and...
nina.johnston
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Feb 15, 2009
12:29 am

Hi Susan Lynda was diagnosed with a GBM in March 2006. Her tumour was also roughly 5cm in diameter and located in the left posterior frontal lobe. She has now...
Tse Family
tsetribe
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Feb 15, 2009
1:14 am

hi chris and lynda thanks for the offer to get in contact.that would be great we can be contacted on 2366861 thanks heeps Stefan and Susan ... From: Tse Family...
Susan Peake
peake.susan
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Feb 16, 2009
12:50 am

Hi Susan Im very sorry to hear about your husband.  You have come to the right place, everyone is wonderful on here and we all help where we can. My husband...
Kathryn Mills
kathmills_nz
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Feb 15, 2009
6:28 am

Hi Susan, Like everyone else I am so terribly sorry that you have had to join our group. My husband Matt was diagnosed with an Anaplastic Oligoastrocytoma in...
Rebecca Todd
rebeccajtodd...
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Feb 15, 2009
8:01 am

Hi Susan, Last June I had the operation as your husband. Same size, Right Frontal lobe & GBM 4. It was a terrible shock. I then had Radiotherapy & Chemo every...
Heather Linncoln
dmha93
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Feb 16, 2009
9:06 am
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